• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
JHuffington

How To Live With Those Who Don't Have Celiac

Rate this topic

Recommended Posts

My name is Jon, I'm 40 and this is my first post.  I was recently diagnosed with Celiac.  I'm still trying to figure out the in and outs of this disease, so it has been frustrating for me.  When I received the diagnosis I said to myself, "big deal, all I have to give up is wheat bread."  The doctor at that point told me it was a little more complicated than that.  I was shocked at how many things gluten is in, even some prescription drugs.  

 

I'm scheduled to see a nutritionist next week, but until then, I've been reading everything I can get my hands on.  At this point, I'm extremely paranoid about what I'm eating.  I have just gone through 7 weeks of nasty symptoms and I don't want to consume any gluten.  Since I know so little about the disease I've been buying boxed "Gluten Free" foods (I generally don't eat a lot of processed stuff).  

 

My question is this.  How concerned should I be about my household family members and the cookware, utensils, plates, toaster, etc. that we use?  My family eats a lot of products with gluten in it.  Do I need to go buy new stuff for me only?  Can I use the toaster?  What about the colander that we generally put whole wheat spaghetti in?  Can gluten get on plates?  I have no idea what I'm doing, so any help would be much appreciated.

 

I look forward to talking to you.

 

Thanks,

Jon

 

 

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


hi, jon - welcome to the forum.  most of us were clueless when we were first dx'd, so don't feel alone!  there is a thread on the 'coping with' section of the forum called 'newbie 101' - go ahead and read it.  it has alot of helpful info that you won't get from a dr or nutritionist.  you and your family will have to make adjustments but living in a shared household is do-able.  i have a shared house/kitchen, although my husband (who is not celiac) eats gluten free meals, mostly.  (sometimes he gets bread, but he has to keep it quarrantined lolz)  it was a pain at first, but it becomes second nature.  certainly better than being sick all the time!  good luck!  :)

Share this post


Link to post
Share on other sites

Hi Jon!

I am learning the in's and out's to this diet myself and learning more everyday.

I live with gluten consumers and it has not been easy so far. I am the main cook in the house so I have control over some of the meals. Here's what I just did to prep my own kitchen recently... http://www.celiac.com/gluten-free/topic/105006-nesting/?hl=nesting

 

You should definitely read the newbie 101 thread Arlene mentioned... http://www.celiac.com/gluten-free/topic/91878-newbie-info-101/  Tons of good tips and advice there. You'll need to spend some time reading and learning where there is hidden gluten and how and where cross contamination occurs. 

 

You can ask questions as you go. There is a wealth of experience to draw from here and everyone is very helpful!

Share this post


Link to post
Share on other sites

hi, jon - welcome to the forum.  most of us were clueless when we were first dx'd, so don't feel alone!  there is a thread on the 'coping with' section of the forum called 'newbie 101' - go ahead and read it.  it has alot of helpful info that you won't get from a dr or nutritionist.  you and your family will have to make adjustments but living in a shared household is do-able.  i have a shared house/kitchen, although my husband (who is not celiac) eats gluten free meals, mostly.  (sometimes he gets bread, but he has to keep it quarrantined lolz)  it was a pain at first, but it becomes second nature.  certainly better than being sick all the time!  good luck!  :)

Thanks for pointing me to the Newbie 101 section; I didn't know where to start or even where to post.  Last year I went through being diagnosed with Diabetes, so I'm used to change.  Hopefully dealing with celiac disease will become as second nature as diabetes has.  It's nice to meet you and thanks for your help.  

Share this post


Link to post
Share on other sites

Hi Jon!

I am learning the in's and out's to this diet myself and learning more everyday.

I live with gluten consumers and it has not been easy so far. I am the main cook in the house so I have control over some of the meals. Here's what I just did to prep my own kitchen recently... http://www.celiac.com/gluten-free/topic/105006-nesting/?hl=nesting

 

You should definitely read the newbie 101 thread Arlene mentioned... http://www.celiac.com/gluten-free/topic/91878-newbie-info-101/  Tons of good tips and advice there. You'll need to spend some time reading and learning where there is hidden gluten and how and where cross contamination occurs. 

 

You can ask questions as you go. There is a wealth of experience to draw from here and everyone is very helpful!

I just read your previous post about how you are handling your kitchen.  Really good information.  I would have never thought about a lot of those things.  Thanks so much for your help.

Share this post


Link to post
Share on other sites
Ads by Google:


hi jon and welcome!

 

before you spend money on your nutritionist appointment I'd suggest visiting this page http://www.eatright.org/programs/rdfinder/

 

make sure you see a registered dietician (RD).  In addition, at the above link make sure the RD you see has both experience in diabetes and gluten intolerance/celiac disease.  the link above will allow you to search by expertise.  If the RD you are scheduled to see doesn't have specific expertise in the two areas, I'd suggest canceling the appointment and finding one who does.

 

hope this helps!

Share this post


Link to post
Share on other sites

hi jon and welcome!

 

before you spend money on your nutritionist appointment I'd suggest visiting this page http://www.eatright.org/programs/rdfinder/

 

make sure you see a registered dietician (RD).  In addition, at the above link make sure the RD you see has both experience in diabetes and gluten intolerance/celiac disease.  the link above will allow you to search by expertise.  If the RD you are scheduled to see doesn't have specific expertise in the two areas, I'd suggest canceling the appointment and finding one who does.

 

hope this helps!

Honestly I don't know if she does or not; you make a really good point.  I'll contact her and make sure.  She helped me with IBS (which was what the doctor initially thought it was), but I'm not sure if knowing about IBS would translate into Celiac nutrition.  And I'll check out the link.  Thanks so much for your help.

Share this post


Link to post
Share on other sites

Hey Jon,

 

I also suggest reading the book Real Life With Celiac Disease by Melinda Dennis and Daniel Leffler.

Tons of excellent advice by 50 celiac experts--on everything from the diet to living with WEs to nutritional advice to what the disease is all about. This book is awesome. Trust me!

 

Here is another helpful article on tips for living with WEs (wheat eaters) and how to avoid cross contamination in the kitchen and in  your home.

 

 

http://www.todaysdietitian.com/newarchives/100713p16.shtml

 

Anything else you need, just holler. And "IBS" is not the same as celiac and I think you will be pleased to see that "IBS" go away on the gluten free diet. My "IBS" surely did! :)

 

If I were in your shoes, I'd find an endocrinologist's RD who can help you figure out the best

diet for your diabetes and celiac.  Call the endo's office or your local hospital.

 

You can do this. Welcome to the forum and the celiac family. 

IH

Share this post


Link to post
Share on other sites

Hey Jon,

 

I also suggest reading the book Real Life With Celiac Disease by Melinda Dennis and Daniel Leffler.

Tons of excellent advice by 50 celiac experts--on everything from the diet to living with WEs to nutritional advice to what the disease is all about. This book is awesome. Trust me!

 

Here is another helpful article on tips for living with WEs (wheat eaters) and how to avoid cross contamination in the kitchen and in  your home.

 

 

http://www.todaysdietitian.com/newarchives/100713p16.shtml

 

Anything else you need, just holler. And "IBS" is not the same as celiac and I think you will be pleased to see that "IBS" go away on the gluten free diet. My "IBS" surely did! :)

 

If I were in your shoes, I'd find an endocrinologist's RD who can help you figure out the best

diet for your diabetes and celiac.  Call the endo's office or your local hospital.

 

You can do this. Welcome to the forum and the celiac family. 

IH

Thanks for the great advice!

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,925
    • Total Posts
      943,537
  • Member Statistics

    • Total Members
      67,144
    • Most Online
      3,093

    Newest Member
    Xaxa
    Joined
  • Popular Now

  • Topics

  • Posts

    • I agree 100% but in that disclaimer they said in a restaurant setting. They sell canned chili in the local stores so I would think that I should be okay. I've tried to make my own chili but the problem is that I suck. I'm a horrible cook. Gordon Ramsey would probably slap me in the face. Cincinnati style chili is different from most chili out there too. There is chocolate, cinnamon, and some other ingredients that you won't find in other chili recipes out there. It's different and if you screw it up, not good. Give it a try. Like I said, if you make it right, the best you've ever had.  
    • Hi Nikkster, They often call the celiac testing a celiac panel.  There is also a celiac screening test they sometimes do first, the ttg.  You want to get the full celiac panel if possible.  Not everyone shows up on just the screening test.
    • Maybe get your vitamin D levels checked.  And take some K-2. K-2 is supposed to help vitamin D absorb into bones.  Oh, and skip the Dominos next time! We all make mistakes at times,.
    • I am actually trying to bulk up and body build with this disease. I go with a keto diet of fats and protein, I use vegan protein powders throughout the day. I used to use nutrakey V-Pro and now mostly use MRM Veggie Elite, blend, and do my own mixes with Naked Pea, Jarrow Pumpkin seed, MRM Sancha Inchi, and various blends from Julian Bakery pegan line. I use them in shakes with almond butter or sunflower butter sometimes using macadamia, pecan, etc. If I can get them and drink it throughout the day. I found large omelettes and quiche made with coconut flour and almond flour with leafy greens mixed in every day for breakfast works out great. I found some nut based breads (found online then started making my own in my bakery) and eat them toasted with avocado. And I always have 1 scoop pumpkin protein (great for recovery) and 1 scoop pea protein before bed. I sometimes take extra BCAAs from Jarrow to help prevent muscle break down Try adding a bit of coconut oil to everything to get in more fats.   <.< recently trying some T boosters but not seeming much from them.
      Keto Fat bombs...look them up made with nut butters, coconut, coconut oil, and protein powder versions great way to stack on the calories.
    • I'm from the UK so I can't help you on the recommendation, but  instead of canned chili have you tried making your own? It's super easy to do, far nicer and cheaper than any  pre-made  variety and you can make a big batch and freeze small portions so its always available if you need a quick filling meal? There's no reason a chili should include gluten btw, but if they're telling you that there's a high probability of cc its best not to eat there in any case!   Edit: checked their site:  https://www.skylinechili.com/special-dietary-options.php#glutenfree They're basically telling you there could be cc  
  • Upcoming Events