• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Gluten Challenge, Not Many Symptoms, Do We Scope?
0

2 posts in this topic

Recommended Posts

lhollamon    0

Hi there, I have been searching these forums for days and thought I would just post to hopefully get some help.

 

Our son went gluten free about 9 months ago due to chronic diarrhea. After about two months we had normal stool diapers for the first time in his life. He is starting preschool now and basically its getting harder for us to justify keeping him on this diet without knowing for sure, so we decided to do the scope. He is scheduled for middle of December which will be 6 weeks back on gluten. So here is our dilemma. We started the gluten slowly per the doctor and its not been bad, he did have one night of full body hives and rash, which is not normal for him, and if anything his stool is actually MORE formed. His eczema is bad, but we just moved and the prior owners had a cat which he is allergic to, so I don't know what is causing what. Oh and he has had a bad cold for three weeks which just today turned into a sinus infection, not sure if that is related either.  We did do genetic testing before going gluten free and he has one of the genes and also a sensitivity gene..HELP?? What were your kids reactions on the challenge? Does it take a while? Should we scope?

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


greenbeanie    31

Poor little guy! It sounds like he must be pretty uncomfortable. If it's tolerable to stick it out until the scope date, though, I would keep it up if it were my child. As yucky as the challenge is now, it might be much worse if he had to do it again in the future (if an official diagnosis later became necessary for school or something). But if an official diagnosis doesn't really matter to you, then that's a different story.

My daughter was diagnosed with celiac by blood test and biopsy shortly after she turned four. She had never been totally gluten-free before testing, except for one long weekend, so she didn't have to do a regular challenge. But we normally only ate wheat a few times a week, so I had her eat bread every day for a month before her tests because I wanted to increase the chances of accurate results. That month was pretty bad, but I'm glad we did it and got a clear answer. Having an official diagnosis has made a huge difference for us in terms of getting her doctors to do other follow-up.

The rashes and whatnot are so hard because you can never be sure what causes them. My daughter used to get hives and random rashes on her cheeks quite frequently, plus horrible "diaper rashes" even after she was potty trained. After about three months gluten free, I realized that she hadn't had a rash in weeks. Now (six months after diagnosis) she only gets a mild itchy rash once in a great while. I'm pretty sure the rashes were mostly gluten-related, but it could be a coincidence because she also has pollen allergies that are usually worse in early summer. So who knows.

Good luck with whatever you decide to do! For what it's worth, the scope itself was very easy for my daughter. (The regular blood draws for the blood tests were much worse.) The nurses at our hospital were excellent, and she actually had fun at the hospital and didn't want to leave.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      107,865
    • Total Posts
      938,394
  • Member Statistics

    • Total Members
      65,763
    • Most Online
      3,093

    Newest Member
    Kirsty Fitzpatrick
    Joined
  • Topics

  • Posts

    • If you do have celiac disease, antibodies can continue to rise and attack for days, week or months after a gluten exposure.   I hope you feel better soon.  
    • Thanks for the thoughtful replies, everybody!  I want to highlight that it's just been almost 4 weeks since I've eliminated gluten (and I've been very strict about it) - prior, I could eat gluten with no issues that like this. A sandwich would rob me of energy, but not in a way I could associate with having eaten the sandwich. How insane that four weeks off of gluten could produce this new exposure reaction for me   1.5 weeks into being gluten-free I felt well enough to taper off my OCD meds and so, while I haven had had any noticible negative reactions, SSRI withdrawals can resemble gluten exposure (although the symptoms I don't think are often delayed) - so I wonder if a weird mix is happening there.  And also... I'm mostly just stunned that my body could react so extremely now to what it used to take with relative ease a mere 26ish days ago. It's good to know this is an actual thing and not me being dramatic about my new eating regimen.   It literally feels like death and like I'll never getting through it - but I'm staying reasonable about it and woke up this morning feeling less terrible (although I've had to make several trips to the bathroom - tmi I know).  Thanks so much!
    • Would like to add to this- while eating gluten I would get a random hive here or there. Since giving up gluten a few days ago, I've had a hive pop up yesterday and today. I'm at such a loss as to why I'm feeling worse. Is this some sort of detox? Is this something experienced by others?
    • Isn't it bliss to be able to eat normal food again!  And yet - things can't be right yet, as like you, I pay for it later.  The sparkling wine was a real surprise to me: I don't like alcohol normally and I drank it to be sociable - if alcohol has this affect on others with gastritis, I now understand why the last consultant I saw asked if I drank.  She was obviously going to tell me to stop!  What an irritant! I've got a month until I need to come off Zantac, so I need to stop these treats.  Partly I upped my intake of normal food as I was concerned about weight loss.  It showed me that yes, my weight will hold or go up if I eat more fat, so I think it is only that which is causing the weight to come off.  At least, I hope it is. Still, at my age I don't want too lose too much - I have a fear it will make me look like a prune!   Stress continues to be a factor for me which ain't helping. But I'm determined to beat this!  
    • Awww Jhern...I'm sorry you are feeling so bad.  (((((Hugs))))) Please ask your Dr for a full thyroid panel to get a complete picture.  That includes TSH, free T4, free T3, TPOAb and TgAb...the last 2 are antibodies.  With a TSH that high, I would feel terrible...tired and achy for sure.  Most people, including me, feel best with their TSH around 1.  Some labs show an outdated range of .5-4.5.  I would bet that you would benefit from some thyroid medication. The weight gain could be from healing and absorbing nutrients too. I hope you get some answers and start feeling better soon!
  • Upcoming Events