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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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Porcelina

Dh On Face?

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Is that possible? I'm getting this crazy itchy, red and blotchy rash on my jawline and cheek area. Its starting to peel and just looks disgusting.

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Yup.

 

I haven't officially been DXd with DH, but I'm 99% positive that's what it is. I've had it since childhood. It's maddening - both itchy and painful.

 

I often get it on my neck right up near the hairline in the back (that's where I always got it when I was a child and teen) but now I also get it on my face at times. Sometimes I get it on my back and once in a very blue moon, my upper arms.

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Hairline behind ears and in the back here.

 

By the way, Hidradenitis suppurativa is gluten-related too. But there probably has been no reseach verifying this.

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Hi again, I think DH mainly appears around the neck and scull area in the upper body, but I have seen photos of a lady in the celiac.com photo bank who had it in the face I think.... Especially during the second part of the challenge ( w 5- 9) I also constantly had herpes-like ulcers in and around my mouth.. Charming!! But I get something like DH on my upper back legs ... For years I though I was getting chicken pocks constantly...

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There are also some posting on DH forums who have i inside the mouth. Ouch.

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Yup.

 

I haven't officially been DXd with DH, but I'm 99% positive that's what it is. I've had it since childhood. It's maddening - both itchy and painful.

 

I often get it on my neck right up near the hairline in the back (that's where I always got it when I was a child and teen) but now I also get it on my face at times. Sometimes I get it on my back and once in a very blue moon, my upper arms.

It seems to me that my DH usually affects the same area over and over and everyone is different as to their most sensitive areas.  Mine does affect the hairline, around my lips, on chin; but my worst breakout areas are from elbows thru upper arms across my upper back and my buttocks and the backs of my upper legs. I recently visited my son and of course we ate out which I rarely do due to CC. Of course I was assured it was gluten free but you know that is never 100% true.  I am going thru a terrible breakout right now.  By the way I have been gluten free for 3 years and as time goes on the littlest bit of gluten causes a DH outbreak. For me It takes a long time to clear up.

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It seems to me that my DH usually affects the same area over and over and everyone is different as to their most sensitive areas.  Mine does affect the hairline, around my lips, on chin; but my worst breakout areas are from elbows thru upper arms across my upper back and my buttocks and the backs of my upper legs. I recently visited my son and of course we ate out which I rarely do due to CC. Of course I was assured it was gluten free but you know that is never 100% true.  I am going thru a terrible breakout right now.  By the way I have been gluten free for 3 years and as time goes on the littlest bit of gluten causes a DH outbreak. For me It takes a long time to clear up.

 

For me, too. I've actually had DH lesions last a couple of months on occasion. Typically, though, they last about a week.

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There are also some posting on DH forums who have i inside the mouth. Ouch.

Thanks so much for pointing this out to me, I actually get them inside my mouth too, especially all over my front and middle palate... Extremely painful when eating...

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DH can present anywhere on the body. Just ask me. I've had it everywhere except mucus membranes. Bottom of my feet, hands, fingers, upper legs, lower legs, knees, elbows, neck, scalp, in my ears, in my belly button, on my nipples, collar bone, chest, breasts, stomach & pubic area, shoulders, any area of the back, any area of the arms, armpits, ankles, toes, upper feet & some on my face.

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I get DH on my face, always on my top lip- which makes it look like cold sores. I adhere to a very strict gluten free diet, but on the odd occasion I still get “glutened “ there are a few things I have found that help. Stomach enzymes DPP-IV help hugely if I think I may have eaten some gluten (at the time of eating, I take the enzymes). I’m currently having quite a bad outbreak that was actually triggered by some medication I took- I find sudacrem helps to dry out the blisters, I also try a cold compress to reduce swelling, then once healing I use hydrocortisone cream. Green concealer can help cover the redness & then dermablend concealer. 

Hope it helps!

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