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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Medical Chart Lists Gluten Meal Allergy
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4 posts in this topic

Hello!

I am about six months in to my new life of feeling better and I have recently noticed a sort of inaccuracy in my medical chart. The clinic I go to has our charts available for us to log into online and keep track of and I was seeing when my next appointment the other day and I noticed that Celiac was not listed anywhere on my chart. I have letters and email conversations, and plenty of personal experiences to boot, that include my doctor and I discussing Celiac and my diagnosis, while on my chart it is listed under the allergen heading as an allergy to gluten meal.

Since diagnosis, I have had to explain to two medical professionals that I have been diagnosed with Celiac and that no I can't have any gluten, not even a little bit.

Is this incorrectly listed on my chart or am I just overreacting? Should I be concerned?

Thank you!

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Next time you see your doctor, I would ask them to clarify that. I am assuming you were actually diagnosed with Celiac? Positive celiac blood tests? Positive biopsies? An allergy is very different from Celiac, which is an autoimmune disease.

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Was definitely diagnosed with Celiac, yeah. Positive everything. I had always thought that was the case and like everything I have ever read about it says that there is. Massive difference, so it was massively confusing when it wasn't reflected in my chart.

Thank you!

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Next time you go there just tell them, hey I was looking online and I noticed you don't have this listed on my chart, and have them correct it.  I do, however, always have places list gluten as an allergy as well, because that entry (particularly in hospitals and pharmacy settings) is one of the most prominent things visible to the healthcare professional.  When I went to a place for a test that was linked to my local hospitals electronic medical record system, I had them put gluten, wheat, barley, rye plus my other drug allergy, in the allergy section.  Chances are the person entering the allergy into the system wasn't sure which entry to select and clicked the first one giving them the gluten meal thing.

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