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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Thoughts On My Symptoms? Should I Be Tested?
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Hello, everyone!

 

Forgive me for posting my symptoms and asking for opinions, as I know many people do. I've scrolled through the other posts and I have decided to post my own symptoms. I'd appreciate any feedback or suggestions you may have.

 

My story - I'm a 23 y/o female. I do 23 year old female things, such as drink beer with my friends. I enjoy running and working out. I have run 2 half marathons and I am running a third this spring. I have always, always, ALWAYS been gassy. Like, can't hold it in and it's gross in front of my boyfriend and friends. I have laughed it off forever, but it is starting to bother me more and more lately (and it's not necessarily polite to do in front of people!). I have found that after eating, especially after lunch or dinner, I am bloated. Not necessarily full from food, but bloated. Abdominal pains, lady cramps, the works. Generally within 1/2 hour to an hour after eating, I am headed to the bathroom. My gas lately has been outrageous!!

 

For example - Last night we had Moe's for dinner. I had a burrito with rice, beans, chicken, etc. Chips on the side. I have never been so gassy/run to the restroom so fast in my life. This morning, I had a granola bar, and a coffee with milk. This afternoon, homemade veggie soup with whole wheat crackers. I did not have a ton of food - but I am so bloated and have already went to the bathroom once this afternoon.

 

I had beer with my friends two nights last week, Weds and Saturday. I had about 3-4 each night. I don't often drink beer, maybe once a month, but I was bloated from Thursday (given, it was Thanksgiving..) through Sunday evening. I didn't eat a ton at Thanksgiving because I felt stuffed within eating half of my plate.

 

I could also agree with a few other symptoms - my hair is thick but it falls out like crazy! These are just some of the recent things that have occurred, but like I said, gassiness is always a problem, as is the bloating after meals. What do you all think??

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I'll caveat my response with... I'm relatively new at this.  That said, your symptoms sound very much like potential Celiac.  There's no harm in getting tested - request a full Celiac panel (bloodtest) from your doctor.  Keep eating gluten in the meantime or it will mess up the test.

In the meantime, a digestive enzyme may help alleviate some of your symptoms.

 

Good luck!

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If you're planning on continuing to eat gluten at least for the short-term, then there is no harm in you looking into testing. It's ultimately up to you. I'm pretty sure if I had been able to bear my symptoms any longer, I'd have held out and continued eating gluten for the long haul of convincing my doctor to see me about the sensitivity to begin with, then an appointment (my doctor is VERY conservative, yet it's impossible to get an appointment less than a month away, more likely two), then the time to schedule and have the tests performed. I'm a kind of person who just likes to "know." But I already know I can't keep eating gluten - the splitting hairs between whether my villi are being destroyed or whether my intestines are simply being chewed up and spat back out after every cracker because of NCGI isn't worth it for me.

 

If you're willing to put up with the symptoms, then keep eating gluten for now, but schedule that testing as soon as you possibly can.

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Thank you SO much for the feedback! I'm also sensitive to lactose (not really cheese, but if I drink milk, eat yogurt, etc., I have similar issues), but it has been made way worse by gluten lately. My mom thinks I'm over reacting, but I say it's better to be safe than bloated and smelly.

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