• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Two Weeks In....messed Up Twice
0

21 posts in this topic

Recommended Posts

Going on two weeks after diagnosis. Bad symptoms for a year and a half but looking back, much longer. Cleaned kitchen, bought new stuff, got my act TOGETHER!!! Or so I thought...

 

I've messed up twice. Once was out to eat - which I already see as something that won't be like it used to be. I think it was the twice baked potato - who knew they could mix up the potato filling and add a binder to make it go further? The other time was with my trusty old iron skillet. I knew better, man oh man I knew better, but hadn't purchased a new one yet. Sautéed chicken. Sick all night, foggy and still sick all day. Joint pain. The whole enchilada - made with corn tortillas, of course!

 

I'm learning. I'm taking subligual B12 and extra calcium. The label reading is driving me nuts but I'm adjusting. 

 

These forums are a lifesaver. I've read the Newbie section too!

 

Just feeling a little sorry for myself and realizing that this is life long. No cheating. Ever. It's OK!!! I felt so much better with my *clean* full week that it's all the incentive I need to keep on trying. I swear even my eyes are brighter!! And I slept all night that week!! And I didn't wake up, ummmmmm, covered if ya know what I mean! That part is awesomeness!

 

Just want to say thank you for all I'm learning. Thanks!

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


shadowicewolf    166

Going on two weeks after diagnosis. Bad symptoms for a year and a half but looking back, much longer. Cleaned kitchen, bought new stuff, got my act TOGETHER!!! Or so I thought...

 

I've messed up twice. Once was out to eat - which I already see as something that won't be like it used to be. I think it was the twice baked potato - who knew they could mix up the potato filling and add a binder to make it go further? The other time was with my trusty old iron skillet. I knew better, man oh man I knew better, but hadn't purchased a new one yet. Sautéed chicken. Sick all night, foggy and still sick all day. Joint pain. The whole enchilada - made with corn tortillas, of course!

 

I'm learning. I'm taking subligual B12 and extra calcium. The label reading is driving me nuts but I'm adjusting. 

 

These forums are a lifesaver. I've read the Newbie section too!

 

Just feeling a little sorry for myself and realizing that this is life long. No cheating. Ever. It's OK!!! I felt so much better with my *clean* full week that it's all the incentive I need to keep on trying. I swear even my eyes are brighter!! And I slept all night that week!! And I didn't wake up, ummmmmm, covered if ya know what I mean! That part is awesomeness!

 

Just want to say thank you for all I'm learning. Thanks!

Is the iron skillet a cast iron one? I've heard you can re-season those in the oven and it should be okay.

Share this post


Link to post
Share on other sites
squirmingitch    495

It's true, you can get them clean & then re-season them. Peter recently gave the method on a thread.

 

I always cooked with cast iron but decided to get rid of mine when we went gluten-free b/c they are just getting too heavy for me to handle these days & we aren't getting any younger!

Share this post


Link to post
Share on other sites
moosemalibu    48

Don't be so hard on yourself for messing up. Yes - it's not best and you don't want to do it but it happens. It's a totally new way of thinking. You have to be so suspicious of everything you eat. Read and verify and double check. Most people recommend that you try to avoid restaurants while you are healing and new to the process because cross contamination is such a risk when eating out. Hang in there! You're doing great! :)

Share this post


Link to post
Share on other sites
SkyBlue4    7

Ugh! The mistakes and cc are frustrating! I was accidentally glutened within 3 days of starting the diet and I was soooo mad....at myself! But this is a learning process and it just takes some time to get the swing of things.

 

Hang in there and don't get discouraged. With time, things will get better....and easier!  :)

Share this post


Link to post
Share on other sites
Ads by Google:


w8in4dave    75

Pretty soon it will be like second nature! Reading labels and such! Then one day you will just go get the brand you like and not have to read the label! It is scary to know they put Gluten in so much stuff! I do also wonder WHY? Why so much stuff in our food? I think alot of people are going gluten-free now adays! I see how horrid I used to eat now. Ohh well !! Good luck! I know after you do that CC a couple of times you sure learn to pay more attention! 

Share this post


Link to post
Share on other sites
squirmingitch    495

 Then one day you will just go get the brand you like and not have to read the label! 

I disagree with this. Formulations/ingredients change. That's how people get in trouble...... just picking up what they've always used. Your mantra should be:

EVERY LABEL, EVERY TIME. Forever.

Share this post


Link to post
Share on other sites


Ads by Google:


LauraTX    114

EVERY LABEL, EVERY TIME. Forever.

I agree with this.  You have to find a balance between totally anal retentive (like me, haha) and letting your guard down too much.  I will swoop through the store in a hurry sometimes and buy trusted brands but I always double check labels as I am putting up my groceries.  Just in case I didn't catch something.  You will get used to where on the labels the gluten free is, like on classico sauces it seems to be on the bottom left, etc. and it makes it faster for you.

Share this post


Link to post
Share on other sites

Tonight I went out to eat. I talked to the waitress and made it clear that gluten free was medical and not a choice. She came back and told me the chef said I could have a certain salad and that she'd grill me a chicken breast separately with no seasonings. I knew she was taking me seriously with the "no seasonings" part!! She even brought me out separate containers with oil and vinegar!

 

I ran into the chef later and she said she's been trying different pastas and the like to figure out what on her menu can truly be called safely gluten free.

 

Thank you all for your positive, "that a girl" comments! Didn't even want the bread and garlic butter tonight.  Not too much anyway. :o)

Share this post


Link to post
Share on other sites
cyclinglady    723

You can use your old cast iron skillet, if you have a "clean" cycle on your oven.  Put it in, run the clean cycle, and then re-season it.  There are plenty of blogs on how to re-season or check the Lodge Cast Iron website for directions.

 

Welcome!

Share this post


Link to post
Share on other sites


Ads by Google:


IrishHeart    1,634

Tonight I went out to eat. 

 

:unsure: I hate to sound like a broken record, but we are suggesting honestly that you hold off on the eating out for a few months while you heal up your gut a little bit. Eating out right away after diagnosis is not always the best idea.

 

Sometimes a reaction to gluten is delayed and you may not be able to tell where or how it happened.(and I do not think it was your cast iron pan, either) 

 

I've been at this for 3+ years and I still get hit by well-meaning chefs, no matter how many questions I ask and no matter how much they assure me they "get it".

 

Be careful! Hang in there. It gets easier.

Share this post


Link to post
Share on other sites
w8in4dave    75

I disagree with this. Formulations/ingredients change. That's how people get in trouble...... just picking up what they've always used. Your mantra should be:

EVERY LABEL, EVERY TIME. Forever.

You are so right!! Because they will change the recipe!! You see I am kinda a newbie!! But yes!! I should know!! Thanks for the reminder!! 

Share this post


Link to post
Share on other sites
squirmingitch    495

You are so right!! Because they will change the recipe!! You see I am kinda a newbie!! But yes!! I should know!! Thanks for the reminder!! 

Sure thing! I have to remind myself sometimes. I put something in the cart & then say OOPS!, pull it back out & read the label. On that, we have a lifetime of habit to change.

Share this post


Link to post
Share on other sites
w8in4dave    75

Sure thing! I have to remind myself sometimes. I put something in the cart & then say OOPS!, pull it back out & read the label. On that, we have a lifetime of habit to change.

Yes again!! Your right!! A life time of habit to change!! I do sometimes buy stuff at the store. I come home and read the label! Ughh stupid me!! But at least I read it before I cook it! Yes everyone has got to read every label every time! It is in your best interest always!! 

Share this post


Link to post
Share on other sites

I feel so lazy sometimes with all the label reading that I just don't eat. I've hardly eaten at all this week and only had three "real" meals. Other than that I just eat crackers and grab a slice of cheese or a handful of almonds. 

 

I keep losing weight and my goal is EAT and maybe prepare meals on Sunday that I can just grab during the week. Did any of you run into this in the beginning? I'm headed to the recipes forum to read. 

 

Whether or not it was my beloved iron skillet, I'm going to re-season them all this afternoon just to be on the safe side! I am amazed at how much better I'm feeling, so I'm going to take every precaution. I can actually stay awake past eight PM!!! 

Share this post


Link to post
Share on other sites


Ads by Google:


IrishHeart    1,634

Glad to hear you are felling better.

You have to eat, hon. You can't gain weight and your strength back just eating crackers.You need some protein.

You do not need to read labels on fresh veggies, fruits meats eggs and fish.

Make stews, soups, chilis if that's easier and reheat when you need something quickly.

 

I am cutting and pasting this from the Newbie 101 thread so I do not have to type it again. LOL

 

Leftovers from last night's dinner make an easy lunch
A sandwich with gluten free bread or rolls—UDIs, Rudi's, Glutino Genius, Scharr's and Canyon Bakehouse --all have decent packaged breads, 
A big salad or an antipasta with tons of veggies and grilled chicken or shrimp and Hard-boiled eggs/ with gluten-free or homemade vinegrette dressing.
A list of gluten free salad dressings is available online. Marzettis, and most of WishBone and Ken's are okay. BUT Homemade is best!
Homemade vegetable minestrone ,chicken soup, stews, black bean or White bean chili (use gluten-free stock--Pacific, Imagine or make your own from scratch--even better!)
Chicken or bean nachos (can use corn tortillas)
Red beans and rice
grilled burgers and beans (Sweet Baby Ray's BBQ sauce and Bush's Baked Beans are gluten-free) (Udi's makes hamburger rolls now or you can make your own. CHEBE bread mix makes good rolls)
almost all mexican food is safe (just no flour tortillas!)
Pasta and sauce w/meatballs (brown rice or corn pasta)
TINKYADA BRAND penne pasta is delicious! Cook 13 minutes exactly. Trust me!) and use gluten-free breadcrumbs (purchase or just grind some gluten-free bread and season)in your meatballs
Another good pasta is CORN pasta. BiAglut or Sam's Hill are a couple. Cook as directed.
meatloaf (beef or ground turkey) baked potato or yams, green veggie of some kind
Other proteins: roasted or grilled chicken, turkey, pork, beef, salmon, talapia, scallops, lamb, some sausages are safe, bacon (Check labels)
Vegetarian chili--homemade.
I eat a variety of veggies.....whatever looks fresh at the super market or farmer's market or stands...steamed, grilled--- or roasted root veggies in stock.
Sweet potatoes—baked at 350 degrees in a pan for 45-50 mins.--are yummy
Potatoes—roasted, grilled, in a gratin or whipped with milk
Fritattas with veggies and salad
Stuffed peppers—with ground turkey, beef or lamb and rice

Share this post


Link to post
Share on other sites

I feel so lazy sometimes with all the label reading that I just don't eat. I've hardly eaten at all this week and only had three "real" meals. Other than that I just eat crackers and grab a slice of cheese or a handful of almonds. 

 

I keep losing weight and my goal is EAT and maybe prepare meals on Sunday that I can just grab during the week. Did any of you run into this in the beginning? I'm headed to the recipes forum to read. 

 

Whether or not it was my beloved iron skillet, I'm going to re-season them all this afternoon just to be on the safe side! I am amazed at how much better I'm feeling, so I'm going to take every precaution. I can actually stay awake past eight PM!!! 

 

Don't be too hard on yourself... it may not really be laziness but simply that you don't have the energy.  Even when you eat you're not absorbing all of your food, so you don't get enough nutrients, so you're tired and have low energy - that's what has happened to me - much more before my diagnosis though.

 

Try to have other, more nutritious, quick food on hand for those times that you don't have the energy to cook.  Protein powder, nuts, raw veggies, soup, etc.  I always eat a protein bar on my way home from work so that I have the energy to fix dinner when I get home.  After awhile of eating regularly you'll start having more energy.  You may just have to break the cycle.

Share this post


Link to post
Share on other sites
notme!    287

 I am amazed at how much better I'm feeling, so I'm going to take every precaution. I can actually stay awake past eight PM!!! 

it's really surprising, isn't it?  i never thought i would get any energy back (last summer i actually played kickball and didn't die of exhaustion lolz)  it certainly is incentive to keep us on the right track  :)  keep on keepin' on! 

Share this post


Link to post
Share on other sites

it's really surprising, isn't it?  i never thought i would get any energy back (last summer i actually played kickball and didn't die of exhaustion lolz)  it certainly is incentive to keep us on the right track  :)  keep on keepin' on! 

YES!!! The slow slide back into life causes me to realize just exactly how sick I've been. My dry skin and itchy eyes and knee pain - not to mention the other, more embarrassing stuff! I could go on and on. 

 

I've cooked all day and feel ready for the week!!! Thank you all!!!

Share this post


Link to post
Share on other sites

Glad to hear you are felling better.

You have to eat, hon. You can't gain weight and your strength back just eating crackers.You need some protein.

You do not need to read labels on fresh veggies, fruits meats eggs and fish.

Make stews, soups, chilis if that's easier and reheat when you need something quickly.

 

I am cutting and pasting this from the Newbie 101 thread so I do not have to type it again. LOL

 

Leftovers from last night's dinner make an easy lunch

A sandwich with gluten free bread or rolls—UDIs, Rudi's, Glutino Genius, Scharr's and Canyon Bakehouse --all have decent packaged breads, 

A big salad or an antipasta with tons of veggies and grilled chicken or shrimp and Hard-boiled eggs/ with gluten-free or homemade vinegrette dressing.

A list of gluten free salad dressings is available online. Marzettis, and most of WishBone and Ken's are okay. BUT Homemade is best!

Homemade vegetable minestrone ,chicken soup, stews, black bean or White bean chili (use gluten-free stock--Pacific, Imagine or make your own from scratch--even better!)

Chicken or bean nachos (can use corn tortillas)

Red beans and rice

grilled burgers and beans (Sweet Baby Ray's BBQ sauce and Bush's Baked Beans are gluten-free) (Udi's makes hamburger rolls now or you can make your own. CHEBE bread mix makes good rolls)

almost all mexican food is safe (just no flour tortillas!)

Pasta and sauce w/meatballs (brown rice or corn pasta)

TINKYADA BRAND penne pasta is delicious! Cook 13 minutes exactly. Trust me!) and use gluten-free breadcrumbs (purchase or just grind some gluten-free bread and season)in your meatballs

Another good pasta is CORN pasta. BiAglut or Sam's Hill are a couple. Cook as directed.

meatloaf (beef or ground turkey) baked potato or yams, green veggie of some kind

Other proteins: roasted or grilled chicken, turkey, pork, beef, salmon, talapia, scallops, lamb, some sausages are safe, bacon (Check labels)

Vegetarian chili--homemade.

I eat a variety of veggies.....whatever looks fresh at the super market or farmer's market or stands...steamed, grilled--- or roasted root veggies in stock.

Sweet potatoes—baked at 350 degrees in a pan for 45-50 mins.--are yummy

Potatoes—roasted, grilled, in a gratin or whipped with milk

Fritattas with veggies and salad

Stuffed peppers—with ground turkey, beef or lamb and rice

 

Thank you so much for all the ideas!! It's silly how blank I am because I love to cook so much. I think I sort of had a shut-down pity party for a few days. I know it sounds crazy but when I realized tortilla chips at a lot of restaurants weren't safe, it was like a kick in the gut (haha no pun intended). 

 

I've always spouted NO PROCESSED FOOD and LET'S EAT HEALTHY....Guess I got my wish!!! :o)

Edited by livinthelife

Share this post


Link to post
Share on other sites
IrishHeart    1,634

YES!!! The slow slide back into life causes me to realize just exactly how sick I've been. My dry skin and itchy eyes and knee pain - not to mention the other, more embarrassing stuff! I could go on and on. 

 

I've cooked all day and feel ready for the week!!! Thank you all!!!

 

Annnnnnd...... she's "got it"...! :D

 

Hon, it takes a while to adjust to this whole thing, but you're doing it!! So proud of you!!

You're going to be okay. You will feel better and have more energy and soon, this will "be the new normal".

Hang in there, We've got your back.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      107,920
    • Total Posts
      938,698
  • Member Statistics

    • Total Members
      65,850
    • Most Online
      3,093

    Newest Member
    rachellelnd@gmail.com
    Joined
  • Popular Now

  • Topics

  • Posts

    • You make a good point about being neurotic. I'm slowly getting better. I guess time will tell. But thank you for the insight.   As far as roommates go, that's a good idea. I've definitely been thinking about that. But these guys are my best friends and the process of getting a new roommate this late in my schooling might be hard. Although, I will keep my eye out for the opportunity. 
    • Yes I have seen the allergist, dermatologist and tonight my general doctor and they all pretty much say I am crazy.  The dermatologist did a scratch test and the results came back saying allergic contact dermatitis.  So she has ordered a blood test for allergens gluten.  Will this be the proper test?  I know there is a celiac panel blood test as well.  My general doctor claims that a result that says allergic contact dermatitis means whatever it is needs to be in contact with my skin so it cannot be gluten, same as my rash comes and goes and she said since I eat gluten all the time it can't be DH and lastly since I don't have any bowel issues it can't be gluten.  I tried to dispute all of these from what I have read on here.  Believe me I hope it is not a gluten allergy, but I have not had an answer in 10 years so signs lead to this I need to explore it.  Why do all of the doctors not have the information that is being spread here, what is right?  I believe all of you guys as you have been through it.   Will the blood test for gluten allergy be sufficient?  Or should I have a full celiac panel or should I highly push for the punch test? Unfortunately money is an issue so I am trying to make sure the proper test is administered instead of just going through all of them. Thank you!
    • My son is 5 and his symptoms are all behavioral and neurological. If he eats a few pretzels he will develop something called a stereotypy where his fingers become sort of stuck in distorted positions for days. If he eats gluten he also experiences auditory and visual hallucinations, insomnia, loss of balance and fine motor, periods of confusion (doesn't know where he is), dialated pupils, chronic post nasal drip, keratosis pilaris covering torso, extreme behavioral issues, constipation and bloating. We've been to 3 neurologists, 2 allergists, an endocrinologist, psychological, psychiatrist, dermatologist,  infectious disease specialist and soon will see a gastroenterologist. He's tested negative for celiac and doesn't have the gene which would indicate gluten as an issue for him. Despite these facts, we entirely removed gluten and dairy from his diet and he is a normal happy playful child again, living the life he should be living.  He's had a few instances of dietary mishaps at school which were difficult to recover from. We implemented the AIP diet which for us included no grains (no corn, rice or quinoa), no dairy, no legumes (especially soy), no eggs and limited nightshades. Basically, we have been eating only vegetables, fruits, meats and nuts. Nothing processed. It works. Now we are at the point of adding things back into his diet and it's going well. We've determined that he's sensitive to a particular baking mix brand called Simple Mills. So there are only two possibilities to this a) Simple Mills brand isn't as gluten free as it needs to be or b)my son is actually sensitive to baking soda.  I also think he might be dealing with intestinal permeability or "leaky gut". I've been reading about a protein called zonulin and I question whether that could be a potential biomarker in our case. Prayers for your daughter. If you think it's a dietary trigger then you are right and I encourage you to never give up. You will find an answer if you keep looking. I promise.  
    • Well.... it can be... the plastic lid on the lovely chicken salad you brought for lunch sticks, you pull too hard and it, and half your salad going flying all over the company computer?  
    • @cyclinglady I heard that there were problems with Armour Thyroid when it came to gluten a few years ago. I thought it was no longer safe? @Megamaniac I had forgot to put that in my original post that I have a lot of issues with anxiety as well. I've never actually been officially diagnosed with a type of depression/anxiety/etc, but I've had problems with that ever since I was pretty young (I think before puberty). I'm sorry to hear about your medical field experience. I've actively sought out doctors (and got lucky having a great primary dr) over the past few years since very few seem to know much about it. The fact that a doctor would laugh at a patient for anything is pretty infuriating. Sorry to hear that. I went to a gastro that barely listened to a word I was saying and only offered a short term "solution" so I never went back to him.
  • Upcoming Events