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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

So, When Do The Symptoms Stop?
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14 posts in this topic

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C-Girl    11

I'm past one month gluten free, have been extremely diligent thanks to the support of my husband and nutritionist, but can't shake the big D.

 

I've given up, in addition to gluten: chocolate, coffee, alcohol, all FODMAPs foods (dairy, onion, garlic, fruits, beans, all sugary drinks except a small glass of OJ) and I still have had diarrhea on a nearly daily basis.

 

I've also been taking digestive enzymes with meals, eating mostly home cooked, whole foods like eggs, rice, potatoes, greens, meat. My only cheat is one or two gluten free cookies and maybe some kettle chips.

 

Does it go away? I'm still dropping weight, albeit not as startlingly as at first, and at least i'm not having D 6x/day - only once or twice. 

 

I am absolutely certain I've taken every step to eliminate gluten contamination so it must be either one of the 5 things I have been eating... doctor suggested maybe microscopic colitis in addition to the celiac, but I really, really dont' want to go in for the colonoscopy just to find that out. The endoscopy made me sick enough.

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Pegleg84    50

Simple answer is that you need more time. One month is not that long, and it usually takes several to heal. It sounds like you're doing everything right though, so there is the possibility that you have another intolerance. Are you still eating dairy? You could try dropping that and see what happens.

 

Maybe others will have better advice?

 

Hang in there!

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w8in4dave    75

Great job on your new diet! I agree tho give it time! I am almost 6 months! I am now starting to feel better :) Keep up the good diet!

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If you want to know when your started healing, I would say, "One month ago!"  You cannot always feel the progress, at least I couldn't.  But you are getting somewhere.  Your recovery will be depending on how long you were ill, what nutrients you give your body, and how good of detective you are for any other intolerances.  I hope you will be feeling progress and feeling overwhelmed with that soon.

 

D

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cap6    85

It took me almost two years to heal.  The length of time can vary greatly from person to person depending on how severely you were sick, how old you were, how long did you suffer undiagnosed.  A month is just the beginning, a great beginning tho! 

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It sounds like you're off to a great start!  My only suggestion is that if you're essentially only eating the same 5 foods every day you may want to try eating a greater variety of vegetables.  Different veggies have different nutrients that your body needs - especially now - and it makes the gluten-free diet much more tollerable.

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moosemalibu    48

 doctor suggested maybe microscopic colitis in addition to the celiac, but I really, really dont' want to go in for the colonoscopy just to find that out. The endoscopy made me sick enough.

 

I was also told by my doctor that if my symptoms do not fully resolve on the gluten-free diet that he wanted to check me for microscopic colitis. I'm about the same schedule as you as far as recovery goes but you've got me beat on the D. I still go 3-5x/day. But I was eating gluten-free oats and I think that was not helping my situation.

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GFinDC    609

Hi,

 

Some psyillium husks might help, and pro-biotics.  I don't think you need a colonoscopy at this point.  Your gut is healing and that takes time.  The auto-immune attack takes some time to taper off also.  Is the kettle corn gluten-free and dairy free?  That might be something to try not eating for a few days.

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GretaJane    2

You might have bacterial overgrowth. You can get tested for that.

Eat more probiotics and try cutting out all grains for a while. They all contain a little bit of cc.

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I had a bacterial overgrowth years ago - I forget the test they ran now, but the target number was under 200 and I was at 12,000.  Anyhow, I really, really, really did not want antibiotics (they don't discriminate and just go in and kill everybody)  so I went to a nutritionist who suggested Colosan (I've mentioned it on here before).  It is a magnesium oxide powder that breaks apart in your intestine, releasing oxygen.  Oxygen naturally kills bad bacteria (which are anaerobic) and simultaneously feeds the good bacteria - which need oxygen.  It took about 6 months of taking it every day to get my number back down under 200.  I still take a little bit every day with my Metamucil in the morning, along with a probiotic and other vitamins.

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C-Girl    11

Thanks everyone - I guess I will try and be patient. I'm hoping I can start getting some more variety in the diet, but right now a lot of things cause problems - salad, dairy, chocolate (sigh!) any sort of cabbage or its relatives (brussel sprouts!). It's getting really dull and if I cut out all grains I wouldn't be eating anything except meat. I think I shall stick with potatoes and rice, thanks! I'll be bored for a while longer and pray the guts will heal quickly.

 

On a positive note, after $3000 of blood work, I'm confident that I'm getting enough vitamins. They all checked out normal. Too bad my bank account hasn't. :-D

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moosemalibu    48

On a positive note, after $3000 of blood work, I'm confident that I'm getting enough vitamins. They all checked out normal. Too bad my bank account hasn't. :-D

 

My diagnosis was also hard on me financially. And I'm not done paying my bills yet. :blink:

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w8in4dave    75

I think Diane is right! It depends on how long you were sick and how much damage you have had. no one is the same. just stick to the gluten-free diet. Eat healthy and you will feel better soon. Good Luck! 

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I'm just over two weeks in and my life has changed. I'm definitely not all the way healed but my energy level coming up keeps me eating right and helps with a positive attitude. My whole family even raved over dinner last night - and they actually sounded sincere! 

 

I'm taking sublingual B12, calcium, probiotics and extra daily vitamins. I'm also eating better than I have in years, which I think also helps. I proudly announced to all my family and friends that, for three days, I was tooting with confidence. LOUD AND PROUD!!! Sorry if that's too much information, but it's these little things that mean that most!

 

KEEP UP THE GOOD WORK!!

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