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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Gi Doc Ordered Another Ttg Test
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So I've only been gluten free since October 25th after my biopsy was performed. Will 6 weeks be a good indication of how I'm doing as far as antibodies go? I thought that antibodies could be elevated for quite some time (years even) after going gluten free...?

 

What's done is done. I already went and had my blood drawn for that plus a fasted lipid panel.

 

Jamie

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Why don't you show your doctor information from celiac experts?

http://www.cureceliacdisease.org/archives/faq/how-often-should-follow-up-testing-occur

 

Yeah.. that is what I thought.. Sigh. I get a totally new doctor in the new year with Obama Care discontinuing my old insurance so I get to find a whole new doctor to train (or not train.. maybe a good thing).

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Yeah.. that is what I thought.. Sigh. I get a totally new doctor in the new year with Obama Care discontinuing my old insurance so I get to find a whole new doctor to train (or not train.. maybe a good thing).

At least you will know not to get upset.

They discussed a study at ICDS, the point of the study isn't the interesting part right now. What was interesting is - they took Celiacs with negative TTGs. Fed them teeny tiny ( more than the 20 ppm though) amounts of gluten for 2 weeks. There TTGs didn't go positive. But 2 weeks later, after everyone went back to gluten-free food, the TTGs were positive. The point being - your TTG might rise for a while after you start eating gluten-free.

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Just from anecdotal experience - due to moving countries I got the results of my first blood test and went gluten-free for three weeks. I then had to eat gluten again for a week prior to another blood test. Both tests read the same despite the three weeks 'off'.

 

Going on the above and what I've seen elsewhere, that gluteny week might not have really affected my antibody levels at the time the blood was taken (GP had it half right then!) and presumably they didn't drop during the three weeks off? 

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Not sure why he is ordering the test at this stage at all. Totally pointless.

 

It takes 6 months for major healing to occur, so what's his reasoning? 

 

Do not let this stress you out, okay--no matter what the test results say. They may still be elevated, but

that's not an indicator of anything (you are not messing up, you do not have refractory sprue, you do not have some other disease) You are just still healing, hon.

 

Makes no sense to me. (shaking my head) 

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I am one year out and my blood serum antibody markers plummeted from being gluten-free.  My TTG is still pretty elevated.  However, I am IGA Absent.  I was told that with IGA deficiency it can take longer than the average Celiac to have my tissue antibody markers begin to decline.

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Yay... another test to pay for that I did not need. Fantastic.

well, he may have his reasons, but I'd love to hear what they were. (I am curious that way) LOL

you know...that  why? why? why thing you and I share?

 

Ask him nicely to tell you? 

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well, he may have his reasons, but I'd love to hear what they were. (I am curious that way) LOL

you know...that  why? why? why thing you and I share?

 

Ask him nicely to tell you? 

 

Oh - I will ask him. Never fear. I'll report back when I get the call or email.

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OK so I got my results back and a message from my doctor. He indicated that my titers were still elevated but had reduced from previous. He gave me access to the results. So... comparably they have reduced quite a bit. That at least is good to see. He said that he would like to re evaluate again in 2 months. I replied and sent him the link that Karen provided. He really has been a very good at listening and taking my concerns seriously. So I imagine if I didn't have to switch insurance he would have been a really good GI doc. He's a younger doctor so I feel like he may have been easier to talk to. Oh well.

 

So not a complete waste I guess. It actually makes me feel better to see them going down.

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Then, can I get a woot woot for missJamie yo?! woot woot!

 

Thanks Irish!! I am beyond happy to see some progress. :D

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Woot*Woot!   :D

 

Glad they are coming down already. :) I'm one whose tTG test took forever to come down. My last test was at about 15 month gluten-free and it finally had almost hit normal BUT I had started steroids so I'm sure that did something to the results.... The members on here helped me with my patience.  LOL

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Woot*Woot!   :D

 

Glad they are coming down already. :) I'm one whose tTG test took forever to come down. My last test was at about 15 month gluten-free and it finally had almost hit normal BUT I had started steroids so I'm sure that did something to the results.... The members on here helped me with my patience.  LOL

 

Must be a recurring theme to start out with zero patience! LOL Here's to your numbers coming down and staying down real soon!

:) 

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