• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Gastroparesis...so They Say.
0

6 posts in this topic

I have been having digestive issues for years.  My family has always been convinced I was suffering from Celiac's, but I never bothered to get it checked out.  Recently, either 20 minutes to 3 hours after eating I would get severe lower abdominal cramping and then have awful loose bowel movements.  I finally broke down and when to the GI specialist.  He had me get a blood test for Celiac's and did a biopsy for it.  However, during the endoscopy, despite having fasted since 6pm the day before, he found food in my stomach.  He told me I was suffering from Gastroparesis.  Some of my symptoms were consistent with the diagnosis of gastroparesis, but the lower abdominal cramping, the loose stool, the headaches, the lethargy were not consistant.  I do not have the results back from the Celiac biopsy or the the blood panel.  Anyone else have this issue? Any ideas what I should do, or what I should pursue with my doctor?

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I do not have gastroparesis, but I think that there have been a few others who have posted in the past. Try doing a search within this forum.

It is hard waiting for test results. Assuming your doctor took plenty so samples during your endoscopy, you could start the gluten free diet or enjoy gluten until you get the results ( that is what I did since my only known symptom was anemia). If you do have celiac disease, it can really slow down your digestion (or speed it up), so the gastroparesis could easily be related to celiac disease.

0

Share this post


Link to post
Share on other sites

I have gastroparesis.  I do not have celiac or even wheat or gluten issues.  But...  I do have mulitple food intolerances and if I eat eggs, dairy or some other things, I can get the big D.  I don't usually have headaches but I do occasionally have lethargy.

 

When my gastroparesis is the worst, I will usually just start to feel off.  My stomach won't necessarily hurt or feel sick.  It just won't feel right.  Then usually I will feel saliva backing up.  And I need to grab the pukey bowl and then head to the toilet.  I will begin to vomit but if it is really bad, it will come out the other end as well, often at the same time.  In that case, my stomach will hurt and very badly.  I can see it having violent spasms.  Oddly enough if I am not feeling right and I lie down in bed, that will get the ball rolling.  And of course it usually strikes me around the time that I need to go to bed.  I will try to stay up just in case but exhaustion will overtake me.  Then by morning I will be exhausted from all of the violent vomiting.

 

Following an episode, I mainly just eat plain white rice and perhaps a little applesauce.  I used to have chicken broth until I learned of my chicken intolerance.

 

From what I have read, Celiac can cause gastroparesis.  So it is possible.  But the most common cause is diabetes.

1

Share this post


Link to post
Share on other sites

I know that my gut is slow to empty but I assumed it was due to hypothyroidism and celiac disease.  

 

When I was pg, I could vomit meals that I had eaten 24 hours earlier, and I can fast for a few days and still have bowel movements... I'm like a camel with food. LOL

 

As the others said, I have seen that as a symptom of celiac disease too.  :(  

 

Good luck with the biopsy.

0

Share this post


Link to post
Share on other sites

I have been having digestive issues for years.  My family has always been convinced I was suffering from Celiac's, but I never bothered to get it checked out.  Recently, either 20 minutes to 3 hours after eating I would get severe lower abdominal cramping and then have awful loose bowel movements.  I finally broke down and when to the GI specialist.  He had me get a blood test for Celiac's and did a biopsy for it.  However, during the endoscopy, despite having fasted since 6pm the day before, he found food in my stomach.  He told me I was suffering from Gastroparesis.  Some of my symptoms were consistent with the diagnosis of gastroparesis, but the lower abdominal cramping, the loose stool, the headaches, the lethargy were not consistant.  I do not have the results back from the Celiac biopsy or the the blood panel.  Anyone else have this issue? Any ideas what I should do, or what I should pursue with my doctor?

Stacy, I was diagnosed with gastroparesis in 2009.  My main complaints at the time were frequent vomiting after eating and a lot of stomach acid that no acid refulx meds could cure.  I did a stomach emptying test that showed slow emptying and was prescribed reglan.  After reading up on reglan I was too frightened to take it and ended up in the alternative medicine arena.  I've been gluten free for over 11 years now.  Never been tested for celiac but if I eat gluten I have abdominal cramping and diarrhea and blisters that break out behind one of my knees.  Avoiding gluten cured all of that and the sudden onset in 2009 of vomiting and acid was a huge emotional upset for me since I thought I'd figured out how to eat and be healthy and feel good.  I went to the ER several times over six weeks and had every test imaginable (gallbladder, endoscopy etc.) and all looked fine other than stomach inflammation on the endoscopy results.  A natural medicine practitioner was convinced I was dealing with a gallbladder issue that couldn't handle certain fats/proteins and told me she was certain I was blood type A and needed to try vegetarianism.  Turned out she was right.  I've lived on a diet avoiding high fat foods in addition to no gluten and no meat and been perfectly fine since 2009.  Fish, eggs, cheese and yoghurt seem to be OK although I have to go easy on the cheese and yoghurt amounts.  I am actually in the middle of a relapse right now due to overconsumption on many fronts including chocolates and wine over the Holidays, although the final straw seems to have been a small helping of ham I decided to try a week and half ago.  I spent the night with the toilet after eating the ham.  Apparently I needed a reminder that meat is not my friend.  What I've learned over the years is that there can be many causes of food digestion problems, and sometimes changing your diet is all that is needed.  This doesn't work for everyone, but if you can feel better avoiding certain foods then it's totally worth it.  There's lots of resources for how to start a food intolerance elimination diet - that's what I did 11 years ago for the gluten.  Intolerance or allergy to gluten seems to often go hand in hand with intolerances or allergies to other foods.  Good luck to you, Joanna

0

Share this post


Link to post
Share on other sites
Ads by Google:


My gastroparesis was diagnosed just before my Celiac diagnosis. My gallbladder was also removed at that time. This all happened many yeArs ago. I was prescribed Reglan which worked like a charm for a long while. My doctor informed me there's a medicine lime Reglan that's sold in Canada, but the Canadian version is much more effective and safer than Reglan. I kept taking the Reglan for probably a year. Now when I here all the reports about Reglan I'm concerned. I found adjusting my diet to easy to digest, low fat, gluten free foods made a huge difference. Digestive supplements also help. 

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,362
    • Total Posts
      935,696
  • Member Statistics

    • Total Members
      65,042
    • Most Online
      3,093

    Newest Member
    Cristina0720
    Joined
  • Popular Now

  • Topics

  • Posts

    • Thankyou ch88 you are so very kind, im so glad there are forums like this, so helpful.  Only signed up the other day and everyone is great.
    • My GI told me that everything looked great visually (endoscopy), but my biopsies revealed moderate to severe intestinal damage.  ☹️  You just have to wait for the pathologist's report.  
    • I ate there July 23 2017, had cheeseburger with gluten free bun (charged extra 2 dollars) which tasted very good. dressed burger with tomato, pickles and onion and even mayo with no unpleasant affects.  I appreciated the choice of gluten-free bun.  Also, the young man serving us asked if I wanted my French fries on the same plate as my burger, I guess their fries are not fried in a dedicated fryer.  Nice of him to give me a heads up though.  I am NCGS not proved as celiac disease.
    • I think you will find that aromatherapy is safe.  I have had the same thing when having facials many, many times over 12 years gluten free and have never, ever had a problem. I have never found any aromatherapy that contained gluten. I am a very sensitive, diagnosed Celiac.  As far as lotion is concerned, you won't have a problem if you wash your hands, which I cannot imagine NOT doing before eating.  That is Celiac 101.  You only have to screen hand lotions for personal use and anything that goes onto the lips.  Eye drops also should be gluten-free as you put that directly into the eye and it can make it's way down into your gut. Hair salons........no, never had a problem.  If a salon uses good products, they will not contain gluten. Again, in 12 years of checking anything new they use, never found any gluten component.  I color and trim my hair once a month and I'm pretty sure I'd be dead by now if I ingested gluten for so often for 12 years.  You really do not want to ingest anything that is sprayed and I can't say that I have.  It's a bad idea for many other reasons besides gluten. I know you are newly diagnosed and yes, you need to check ingredients BUT gluten is not everywhere. If you check whatever they are using and it does not contain the dreaded gluten, then do not worry about it.
    • There is a lot of information on site about living with Celiac disease. A good idea is to take a look at the "coping with" section and the "newbie info 101" thread. There is a lot of good information about cross contamination and proper nutrition.
  • Upcoming Events