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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

I Got My Results Don't Know What To Do Next, Please Advise
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I finally got my results, negative  for Celiac as I was expecting but they do seem to indicate something is wrong.

 

Anti-tissue transglutnase- 0.1U/ml 

 

Which is very negative

 

IgA- 1.52g/L

 

Serum Ferritin- 10ug/L  (which indicates iron deficiency)

 

Vitamin D- 17.9 ug/L (it should be over 50 which indicates vitamin D deficiency)

 

White cell count

 

Neutrophil count- 2.01 ( just outside normal levels) 

 

So I'm iron and vit D deficient and my white cell count is slightly out, anyone else had results like this for celiac?

 

My doctor thinks its just a vit D and iron deficiency combined with IBS that is making me feel so ill, I'm not so sure...

 

Should I push for more tests do you think?

 

This forum has been great, I feel really alone in this so I really appreciate your help :)

 

Tally

 

 

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Hi Tally!

 

can you post the reference ranges? 

 

check out this link from Chicago Celiac Center:

 

http://www.cureceliacdisease.org/archives/faq/what-common-nutrient-deficiencies-might-an-adult-experience-prior-to-diagnosis

 

Vit. D and Iron are two of the big ones.

 

a lot of people around here say IBS really stands for "I be stumped".  It's not really a diangosis, but a catch all term because doctors don't really know what to diagnose you with.

 

 

here's what I usually suggest testing wise

 

Comprehensive Celiac Panel:

DGP iga/igg

ttg iga/igg (You had the ttg iga.)

EMA

Total iga serum-this is a control test to make sure you make enough iga to validate the other testing (If you can list the reference range for the IgA level that will help to determine if you produce enough IgA.)

 

 

check out page 12 in this report for testing information:

http://www.worldgastroenterology.org/assets/export/userfiles/2012_Celiac%20Disease_long_FINAL.pdf

 

Hope this helps, and I would definitely push for more tests if I were you!

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My health practitioner told me that unexplained low iron is often the first symptom to appear with celiac. However, I believe that other difficulties may cause low iron, such as a diet low in iron, or heavy blood loss.   I recall experiencing anemia symptoms 35 years back.  I got diagnosed with celiac after 30 years of undeniable symptoms.  Now, at 20 months gluten free, my iron levels pulled up to normal. .  Can you go ahead and do an endoscopy?  it would be nice to have definitive results.  I hope you will feel better soon!

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Ditto The previous posters, you only had one test and it does not catch all celiacs, and could even be invalid if you are IgA deficient - more testing would be helpful.  Keep eating gluten until you are done testing.

 

You wrote :

 

 

My doctor thinks its just a vit D and iron deficiency combined with IBS that is making me feel so ill, I'm not so sure...

 

Those are just descriptors of symptoms, none actually answer the question "why" you are feeling poorly. I would push for more tests.

 

Good luck. I hope you find answers.

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Thank you so much for your comments, I know I shouldn't self diagnose but its hard not to when your doctor says you have ibs... I ate pasta and garlic bread last night, this morning I have a lot of stomach pain had to rush to the toilet and I woke up in the night with hip pain/leg aches.

I will post the reverence ranges later today,I going to start a food diary as well I think.

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I understand this entirely, tallypop! My doctor's first "diagnosis" for my abdominal pain was IBS, and they would not see or treat me again for a month and a half of agony. Then they did a biopsy and found lymphocytes in my small intestinal tissue, which is why I'm currently being tested for celiac. The endoscopy/biopsy would not have happened if I hadn't kept pushing for another look, so don't give up! And if your doctor is reluctant to consider other possibilities, it is ALWAYS okay to seek a second opinion.

 

Good luck!

 

Thank you so much for your comments, I know I shouldn't self diagnose but its hard not to when your doctor says you have ibs... I ate pasta and garlic bread last night, this morning I have a lot of stomach pain had to rush to the toilet and I woke up in the night with hip pain/leg aches.

I will post the reverence ranges later today,I going to start a food diary as well I think.

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Hi Tally!

 

can you post the reference ranges? 

 

check out this link from Chicago Celiac Center:

 

http://www.cureceliacdisease.org/archives/faq/what-common-nutrient-deficiencies-might-an-adult-experience-prior-to-diagnosis

 

Vit. D and Iron are two of the big ones.

 

a lot of people around here say IBS really stands for "I be stumped".  It's not really a diangosis, but a catch all term because doctors don't really know what to diagnose you with.

 

 

here's what I usually suggest testing wise

 

Comprehensive Celiac Panel:

DGP iga/igg

ttg iga/igg (You had the ttg iga.)

EMA

Total iga serum-this is a control test to make sure you make enough iga to validate the other testing (If you can list the reference range for the IgA level that will help to determine if you produce enough IgA.)

 

 

check out page 12 in this report for testing information:

http://www.worldgastroenterology.org/assets/export/userfiles/2012_Celiac%20Disease_long_FINAL.pdf

 

Hope this helps, and I would definitely push for more tests if I were you!

I believe this is what you asked for

 

Anti-tissue transglutnase 0.00-7.00/ml

 

igA    0.87-4.12g/L

 

I'm back at the doctors on Monday, it seems never ending at the moment

 

Thanks for the feedback 

 

Tara

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