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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

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Hi Everyone! I'm new to this forum. 

 

I recently went gluten free (it's been about a week and a half) because of some stomach issues and migraines. I thought gluten might be connected, so I decided to cut out gluten to see if it made me feel better. Before cutting out gluten, I did an Advocare cleanse for 24ish days, and didn't eat many gluten filled foods during that time. 

 

Long story short- I feel SO much better already. The very dull pain i've always had in my intestinal area is completely gone, which has never happened. I know it hasn't been long, but I am also not going to the restroom as much (used to go 2-3 times a day). 

 

So now I'm reading the forums, and I am kicking myself for cutting out gluten before I was tested for Celiac. With the cleanse and going completely gluten free, I'm not sure how accurate the tests would be.  I absolutely hate my doctor, and was hoping to find a new one, which is why I didn't go in the first place before cutting out gluten myself. So my question is... If I call and schedule an apt for blood work, how long do I need to be eating gluten first? Also- what should I ask for? Just a celiac blood test?

 

Thanks so much for your help! This forum has already been tremendously informative and helpful. 

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Hi Everyone! I'm new to this forum. 

 

I recently went gluten free (it's been about a week and a half) because of some stomach issues and migraines. I thought gluten might be connected, so I decided to cut out gluten to see if it made me feel better. Before cutting out gluten, I did an Advocare cleanse for 24ish days, and didn't eat many gluten filled foods during that time. 

 

Long story short- I feel SO much better already. The very dull pain i've always had in my intestinal area is completely gone, which has never happened. I know it hasn't been long, but I am also not going to the restroom as much (used to go 2-3 times a day). 

 

So now I'm reading the forums, and I am kicking myself for cutting out gluten before I was tested for Celiac. With the cleanse and going completely gluten free, I'm not sure how accurate the tests would be.  I absolutely hate my doctor, and was hoping to find a new one, which is why I didn't go in the first place before cutting out gluten myself. So my question is... If I call and schedule an apt for blood work, how long do I need to be eating gluten first? Also- what should I ask for? Just a celiac blood test?

 

Thanks so much for your help! This forum has already been tremendously informative and helpful. 

 

 

http://www.cureceliacdisease.org/archives/faq/how-much-gluten-should-be-consumed-prior-to-being-screened-for-celiac-disease

 

How much gluten should be consumed prior to being screened for celiac disease?

It’s best to continue a normal, gluten-containing diet before being screened and diagnosed. If a gluten-free diet has been followed for more than a few weeks, then we recommend eating at least 1 serving of gluten (1/2 slice of bread or a cracker, for example) every day for 12 weeks prior to a blood test and 2 weeks prior to a biopsy. This is often referred to as a “gluten challenge” and should be done under the care of a medical professional.

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The gluten challenge...  12 weeks...  Pretty sure mine was 12 years :-)  Having an official diagnosis is totally worth it if indeed you have celiac disease.  Good luck with things.

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    • It's good to know it was of use, thanks for letting me know   All the best, Matt
    • Hi Matt,   Thank you very much for a thorough response. Your link seems to cover pretty much all the questions one might have in my current situation. I appreciate it.   Have a wonderful day, Lex
    • I am worried about the cost but I think having that test done would help me rule things out. Either way I need to see a G.I my issues are getting out of control.
    • Thank you for all the information. I am sorry for the late reply to everyone. I have been feeling worse and worse lately. Got the blood test results, it came back negative. Seeing a G.I specialist in three months (too long for me :/) I've been keeping a food diary and realize I feel worse after eating gluten. After the G.I I want to start the diet. I'm going to call him and see if I can get seen sooner. The bloodwork said theres no signs of inflammation and they don't suspect it to be autoimmune but they want me to do the diet anyway. I wish I had answers because my vision is getting worse, cramping, nerve pain and trips to the bathroom are amplifying. Meh. Also I have a vitamin d deficiency so I am taking d3 2000iu with vitamin b12. Thanks for the help! 
    • I'm sorry you are dealing with this. My son deals with food intolerances that are not identified by any biomarker as well. I hear the same response from doctors in that, "if the food makes him feel bad then it's probably best to avoid the food." (Thanks for your insight doc!) His symptoms are not dermatological though. His symptoms are mostly neurological and psychiatric with some bloating and mild digestive issues. He loses his mind quite literally if he digests gluten. Also develops what is known as a stereotypy, involuntary movement of hands. He is otherwise a normal child. We are unable to obtain any kind of diagnosis though.  I know you're avoiding a lot of foods right now, but don't get discouraged. It's just a way of life and you're doing the right thing. Right now we are avoiding foods such as soy, all types of grain, chocolate, dairy and nightshades. I have limited his iodine intake as well. I have personally found that gluten, iodine and soy cause intensely itchy blisters and joint pain for me. Perhaps have you tried cutting back on iodine intake?
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