This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.
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What are the major symptoms of celiac disease?
Celiac Disease Symptoms
What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic)
Celiac Disease Screening
Interpretation of Celiac Disease Blood Test Results
Can I be tested even though I am eating gluten free?
How long must gluten be taken for the serological tests to be meaningful?
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
Is celiac inherited? Should my children be tested?
Ten Facts About Celiac Disease Genetic Testing
Is there a link between celiac and other autoimmune diseases?
Celiac Disease Research: Associated Diseases and Disorders
Is there a list of gluten foods to avoid?
Unsafe Gluten-Free Food List (Unsafe Ingredients)
Is there a list of gluten free foods?
Safe Gluten-Free Food List (Safe Ingredients)
Gluten-Free Alcoholic Beverages
Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?
Where does gluten hide?
Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
What if my doctor won't listen to me?
An Open Letter to Skeptical Health Care Practitioners
Where can I buy gluten-free stuff?
Support this site by shopping at The Celiac.com Store.
You make a good point about being neurotic. I'm slowly getting better. I guess time will tell. But thank you for the insight.
As far as roommates go, that's a good idea. I've definitely been thinking about that. But these guys are my best friends and the process of getting a new roommate this late in my schooling might be hard. Although, I will keep my eye out for the opportunity.
Yes I have seen the allergist, dermatologist and tonight my general doctor and they all pretty much say I am crazy. The dermatologist did a scratch test and the results came back saying allergic contact dermatitis. So she has ordered a blood test for allergens gluten. Will this be the proper test? I know there is a celiac panel blood test as well. My general doctor claims that a result that says allergic contact dermatitis means whatever it is needs to be in contact with my skin so it cannot be gluten, same as my rash comes and goes and she said since I eat gluten all the time it can't be DH and lastly since I don't have any bowel issues it can't be gluten. I tried to dispute all of these from what I have read on here. Believe me I hope it is not a gluten allergy, but I have not had an answer in 10 years so signs lead to this I need to explore it. Why do all of the doctors not have the information that is being spread here, what is right? I believe all of you guys as you have been through it.
Will the blood test for gluten allergy be sufficient? Or should I have a full celiac panel or should I highly push for the punch test?
Unfortunately money is an issue so I am trying to make sure the proper test is administered instead of just going through all of them.
My son is 5 and his symptoms are all behavioral and neurological. If he eats a few pretzels he will develop something called a stereotypy where his fingers become sort of stuck in distorted positions for days. If he eats gluten he also experiences auditory and visual hallucinations, insomnia, loss of balance and fine motor, periods of confusion (doesn't know where he is), dialated pupils, chronic post nasal drip, keratosis pilaris covering torso, extreme behavioral issues, constipation and bloating. We've been to 3 neurologists, 2 allergists, an endocrinologist, psychological, psychiatrist, dermatologist, infectious disease specialist and soon will see a gastroenterologist. He's tested negative for celiac and doesn't have the gene which would indicate gluten as an issue for him. Despite these facts, we entirely removed gluten and dairy from his diet and he is a normal happy playful child again, living the life he should be living.
He's had a few instances of dietary mishaps at school which were difficult to recover from. We implemented the AIP diet which for us included no grains (no corn, rice or quinoa), no dairy, no legumes (especially soy), no eggs and limited nightshades. Basically, we have been eating only vegetables, fruits, meats and nuts. Nothing processed. It works. Now we are at the point of adding things back into his diet and it's going well. We've determined that he's sensitive to a particular baking mix brand called Simple Mills. So there are only two possibilities to this a) Simple Mills brand isn't as gluten free as it needs to be or b)my son is actually sensitive to baking soda.
I also think he might be dealing with intestinal permeability or "leaky gut". I've been reading about a protein called zonulin and I question whether that could be a potential biomarker in our case. Prayers for your daughter. If you think it's a dietary trigger then you are right and I encourage you to never give up. You will find an answer if you keep looking. I promise.
@cyclinglady I heard that there were problems with Armour Thyroid when it came to gluten a few years ago. I thought it was no longer safe?
@Megamaniac I had forgot to put that in my original post that I have a lot of issues with anxiety as well. I've never actually been officially diagnosed with a type of depression/anxiety/etc, but I've had problems with that ever since I was pretty young (I think before puberty). I'm sorry to hear about your medical field experience. I've actively sought out doctors (and got lucky having a great primary dr) over the past few years since very few seem to know much about it. The fact that a doctor would laugh at a patient for anything is pretty infuriating. Sorry to hear that. I went to a gastro that barely listened to a word I was saying and only offered a short term "solution" so I never went back to him.