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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Just Wanted To Share... Race Training Before And After Diagnosis
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5 posts in this topic

For those who don't know, I was diagnosed whilst training for my first marathon and experiencing extended runner's tummy, as well as worsening training times. I was diagnosed with severe anaemia at the same time and one of my big questions was, how will this affect my training? Should I stop, cut down, how long for? So I just wanted to share my story so far for anyone who may have the same questions.

 

I was diagnosed mid-September, ran my first marathon at the end of the month and went gluten free in early October. After that I had a few crappy months adjusting to the new diet and getting the anaemia under control - I would say I had about three months of only running twice a week and doing my pole fitness and aerial acrobatics once a week each. There doesn't seem to be hard and fast rules re. coeliac and training so this was made up as felt right.

 

Enter January 2014, three months gluten free, two months on iron tablets and a new training plan for a 10 mile race at the end of March. I'm in my second full week of the training plan and it feels so amazing to train (running) five times a week AND SEE AN IMPROVEMENT! And to not feel exhausted during every run and to be able to get oxygen to my muscles properly (and not plan my routes around public toilets)! Whereas before I would run with a feeling of trying not to do my worst, now I run wondering how good I can make it. 

 

I just wanted to share this as a lift for anyone in my situation and a reminder to be patient with yourself (as everyone here reminded me to be). You are getting a second chance to be your actual best - the results will be worth it :) 

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Congrats!

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Thanks! I am driving everyone nuts here going on about how much I'm enjoying training now (because after all, I've been doing it for ages, right?) It's just so much better.

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So happy for you!!! I love this update so much! :D  :P  :lol:

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Aha thank you! So nice to have the support of this board on this :) 

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    • Is your concern the social aspects of eating on the job, or not always feeling well enough to get out the door? I'm in health care, and just happened to be in home care when I was diagnosed.  It actually works well, as I make my own hours, and can reschedule visits as need be. I would think you could complete your MBA easily, maybe part time if necessary.  It's not clear what your career path might be ....counseling?   Industrial psych? Research? Once you are established (and you can do that part time if need be, to start), you will have more options for flexed or reduced hours.  If the social aspects of eating are an issue, you can always excuse yourself at meals, drive to a pleasant location, and eat in your car. Or go for a walk and find a place to eat. For work luncheons,  I just have a beverage or pick up a piece of fruit, so I give the appearance of participating. 
    • Can you tolerate nut milks? I find macadamia milk the gentlest on my stomach. The only brand I've seen here in the US is Milkadamia, and it comes sweetened or not, and fortified with some vitamins. I think this brand is from Australia. Or you could make your own. As for time, it can take awhile, and that seems to be more the norm. A recent new dairy intolerance that peaked May 3 has made me sicker than celiac ever did. Almost 3 months later and I am just starting to get better and my fatigue is improving. I had the usual ups and downs, inadvertent exposures, and trial and error.  I had only mild symptoms (comparitively speaking) at my celiac diagnosis 4 years ago, yet it took 6 months to a year for them to fully resolve after going gluten-free. It's hard to be patient when your GI tract is off, as it makes you feel ill all over.  Just keep doing the right things, introduce new foods one at a time. I would also suggest more protein for weight issues ... can you tolerate tuna? Tuna and some version of mayo? Salmon, vitamin D supplements, and bone broth seemed to have helped me recently with gut healing. Wishing you well...  
    • Thank you for your response! Again I am pretty sure my doctor did all these checks however I will definitely check to make sure and take the necessary actions if not. It just feels like a never ending run of doctor appointments and blood tests at the moment and the whole thing really did come as a surprise to me. I think I have really tried to eat healthy as I believe its so important especially being diagnosed with this disease. I feel as though its not just about eliminating gluten but also having a really healthy and balanced lifestyle. Also, I find that at the moment it is not just gluten that upsets my stomach, fruit for some reason also does. Unfortunately, people do not realize this and dismiss it which can also be annoying on top of the diagnosis. I will definitely be avoiding processed foods and have been for the last few months. Thank you for your response and I will listen to my body as you have said, it is without doubt very important.
    • Is aroy d milk gluten free?I couldnt find an information on its package,it says it doesn't have any additives.It's full fat and sold in a bpa free carton box.Anyone tried it?
    • Thank you so much for your reply, it has really helped! Your feedback on the grieving side has really comforted me to know I am not the only one and that it will get better. I am not always upset and sometimes I feel optimistic but occasionally it really just does get overwhelming especially at the moment if I am eating in a restaurant for the first few times or out with friends and have to be concerned with what I can eat and not just concerned with having fun.  In relation to my diet I have seen a dietitian and got very positive feedback. I love cooking so this has been helpful with changing diet. But, I just find that I run out of recipes and am sometimes eating the same thing on repeat which is agitating. Unfortunately, I currently cannot eat lots of fruit as my stomach responds poorly to it so my dietitian has said to eat only one or two servings a day and build up. I definitely am going to research more recipes and snacks over the next month and really try to get my diet sorted so I can feel more relaxed and better. Thank you again your response it has helped massively just to know there are people out there who understand! Thank you.
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