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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Has Your Reaction To Gluten Changed?
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I ask this because I'm newly diagnosed and I have very mild symptoms, apparently.  Just wondering, from those of you who have been gluten-free for a while now, when you do get accidentaly "glutenized," has your reaction gotten worse, not as bad, or is it unchanged?  Is it always the same reaction?  I'm weirdly kind of hoping I get a little more of a reaction (but not too much!) simply so I can be aware when I've accidentally ingested gluten. It seems like there's a lot of "see what your body tolerates" when it comes to some of the grey area products. (soaps and shampoos, makeup, oats etc.)

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Don't worry you will know when you've been glutened! Ive been gluten-free since November now and although I am generally fine with the food I have cooked myself, I still keep glutening myself with things I think should be gluten free but turn out not to be. My last one was from a glass of fruit juice... First think I get is a burning sensation in my tummy which turns into constant tummy ache which could last for two days, at the same time I get blisters inside my mouth, shooting pain in my joints, spinning head, exhaustion, terrible mood.... And this lasts for days or weeks. Juice does not naturally have gluten, but often they add fiber to it to am e it more healthy.... and this tends to be wheat based. Disaster for any individual with gluten intolerance! Yes, my reactions have become worse since I have become gluten-free and also I seem to react to the tiniest amounts, even a breadcrum .... But individuals react differently- Becoming gluten-free is such a steep learning curb!! Good luck and remember we are here to encourage you along!

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Before my diagnosis I was asymptomatic - no intestinal issues, no nothing.  I've been gluten-free since the beginning of Oct. and 3 months into it I accidentally glutened myself with a tiny, tiny taste of tabuli - that had bulgar wheat in it (we got it mixed up with the quinoa salad) - anyhow... I had a definite, recognizable reaction.  Bloating 3 hours after ingestion (as in I looked 5 months pregnant - and I'm normally very slim), then woke up with the clammy, sweaty chills like you'd get with food poisoning or the flu.  Was exhausted for a good 3 days and generally "off" for close to a week.  And very irritable.

 

So I went from no symptoms to food poisoning-like symptoms in the matter of 3 months.

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My symptoms before gluten free were non-distinct and constant.  I had especially bloating, mind fog, and fatigue.  Now when I get glutened I notice swelling, bloating, cramping, and have diarreah four days later.  I am really thankful that my symptoms now come in go with more gusto.  I am absolutely motivated to avoid gluten.

 

D

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Like desperateladysaved said, I think we just notice reactions a bit more because we are in a healthier place.

 

Think of health as a ladder. When we are in good health we are higher on the ladder. When in poor health we are lower on the ladder. When we get glutened it knocks us down to lower health. If we were already low on the ladder, the fall isn't noticeable but when we are higher up, we feel the fall more.

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Thanks everyone.  This makes perfect sense and in an odd way I'm glad to know I'll probably have distinct symptoms once I'm sucessfully gluten free.  I think it's pretty much necessary to keep motivated and to understand my body and how safe the foods are that I'm eating.

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I ask this because I'm newly diagnosed and I have very mild symptoms, apparently.  Just wondering, from those of you who have been gluten-free for a while now, when you do get accidentaly "glutenized," has your reaction gotten worse, not as bad, or is it unchanged?  Is it always the same reaction?  I'm weirdly kind of hoping I get a little more of a reaction (but not too much!) simply so I can be aware when I've accidentally ingested gluten. It seems like there's a lot of "see what your body tolerates" when it comes to some of the grey area products. (soaps and shampoos, makeup, oats etc.)

This is an interesting question.

 

I get so very sick and have to stay in bed the entire next day and then am tired and foggy headed for two more. Sometimes I think I am *too* careful but then I remember how horrible it is when I let my guard down. I can look back at my old food journal and am amazed at the symptoms I had that i had no idea were gluten related.

 

I always wonder how some folks who are celiac can tolerate so much more gluten than I can. Isn't it still hurting them? Can a body tolerate a certain amount before any damage takes place? 

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