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WinterSong

Grain Brain Diet - Gonna Try It!

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Before I was diagnosed with Celiac I was very skinny and had a hard time gaining weight. I was eventually able to get my weight to a happy place. After going on the gluten-free diet, my body started accepting the calories and the nutrients, so I gained an extra 2.5 pounds. I was okay with that because I knew I was in a healthier place. However, I've been dealing with a food injury since last summer and because my physical activity was limited I gained another three pounds. I thought "Okay, my jeans are a little tight, but I'll fix this when I'm able to do cardio again." And then Christmas happened. Ugg. I've lost two pounds through increased activity and not going crazy with my favorite foods, but the last 5 or 6 are being really stubborn. I know it's only a few pounds, but because I'm a small person it is uncomfortable and I don't fit into any of my jeans or my favorite dress. And when you try to squeeze into really tight pants it can cause swelling in that area, making it even more uncomfortable. 

 

Over the holidays I read "Grain Brain" and have decided to try out the diet. I already eat very healthy, but the jump start into this program is to get rid of all carbs and sugars in the diet. This includes grains, fruits, most protein/nut bars (which have a surprisingly high amount of carbs in them), starchy vegetables, desserts, and sugary condiments. One of the ideas is that when the body cannot rely on carbs for energy it will become more efficient at processing fat for fuel. The book also talks a lot about a low carb diet being beneficial for the brain and helps to prevent psychological disorders. I highly recommend the read.

 

So I'm going to try it out for a few weeks (I am giving myself one cheat day a week). I'm very excited to start on Monday. The only reason why I haven't started yet is because I have some fruit in my fridge and I hate seeing good food go to waste, lol.

 

I'm hoping that this will help me tone up. I feel like even though I'm a fitness instructor, I've always had a hard time developing muscle mass. It's always been my goal to have really toned and strong ab muscles, rather than just being skinny. 

 

I'll keep you posted on my adventure :)

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Sounds a lot like a paleo or primal diet (which I am on) but you can have dairy, is that right?.

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I think the only dairy that is allowed is cheese. Do you eat fruit on your diet?

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. Mostly berries.

 

but I like melon and an apple on occassion.

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Gotcha. In this diet you nix all fruit for the first month. After that you can slowly start adding in occasional fruits and gluten-free grains. My regular healthy diet is basically the post-month 1 diet.

I'm very interested in how this diet will affect me physically and mentally. I'm just concerned about when I'm at work and not able to get to my kitchen for a meal. Normally I'd bring fruit and a protein bar, but that's not an option. Almonds and raw veggies? Any tips?

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I keep a bunch of baby carrots & celery sticks in the fridge for when I get the munchies.

I have almonds, yes and I have almond butter to dip into, if I need something. 

 

One thing I noticed (sans grains, legumes, dairy, sugar) is....I felt funny the first week.

Then, by week 3 my sleep improved. I had more energy. My appetitie descreased, but then steadied.

I do not feel hungry and I am not searching for goodies anymore.

 

I admit it, I like salty stuff like chips and I like chocolate, so those were tough to give up.

I salt my sweet potato fries instead. And I did not give up a vodka and seltzer while prepping dinner.

Even Robb Wolf says in his book..".Do it if you want.".LOL

 

Oh, if you can have dairy, you could chunk up some cheddar and snack on that.  

 

I added back in some feta on my salads and so I am not 100% paleo. I also "cheat" using Against the Grain bread sometimes.

It is made from tapioca starch & mozzarella, (primal ingredients, technically) but I figure the paleo police are not around, and so...lol.

 

I am doing it  for myself to see if the inflammation in my body goes down so I can strengthen the weak and atrophying muscles  and bone pain I developed from celiac. I have been able to go to the gym 3X a week and I see great improvement. 

 

Overall, I feel better and I may stick to it indefinitely.

Good luck! :)

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Over the holidays I read "Grain Brain" and have decided to try out the diet. I already eat very healthy, but the jump start into this program is to get rid of all carbs and sugars in the diet. This includes grains, fruits, most protein/nut bars (which have a surprisingly high amount of carbs in them), starchy vegetables, desserts, and sugary condiments. One of the ideas is that when the body cannot rely on carbs for energy it will become more efficient at processing fat for fuel. The book also talks a lot about a low carb diet being beneficial for the brain and helps to prevent psychological disorders. I highly recommend the read.

 

So you recommend reading the book, is it overly dense/wordy? I've been meaning to read it. It's interesting that science proves the high fat, low carb way of eating to be healthy, and actually, superior to both the low fat and the mediterranean diet. As I'm sure Dr Perlmutter discusses in his book. (I've heard him lecture but have yet to read the book).

 

Actually what really freaked me out, and made a lot of sense, in his lecture was that 54% of the worldwide healthcare usage/strain caused by people diagnosed with Alzheimer's was preventable through lifestyle change. I mean… I knew that inflammation = bad… but 54% is a huge number. He estimated that to be 2.6 million Americans! *shudder*

 

Fun story, evidently autoimmune disease + inflammation + c reactive protein also leads to accelerated atherosclerosis. So, another good reason to manage inflammation/follow an anti-inflammatory diet, particularly for people with autoimmune diseases.

 

One thing I noticed (sans grains, legumes, dairy, sugar) is....I felt funny the first week.

Then, by week 3 my sleep improved. I had more energy. My appetitie descreased, but then steadied.

I do not feel hungry and I am not searching for goodies anymore.

 

Yup, that's carb flu! :P I get a wonderful headache that lasts about a week as I acclimatize and, in essence, detox from grains and sugar and all the other naughty things I ate before. But once your body shifts to burning fat for fuel, I agree you feel pretty good :)

 

Do you find you follow a more primal style or a paleo style? (primal allowing high fat dairy and the occasional beer [mark sisson] or paleo which is more strict [robb wolf or cordain])

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Do you find you follow a more primal style or a paleo style? (primal allowing high fat dairy and the occasional beer [mark sisson] or paleo which is more strict [robb wolf or cordain])

I suspect I fall more into the primal camp as I do use KerryGold butter, sometimes eat yogurt .....oh,  and I drink vodka.  :)

Giving  up grains, legumes, cheese, all high histamine foods (shellfish, cured meats, toms, citrus, etc.)

and going to the gym is torture enough.

Not giving up those, too. lol

 

I found Robb Wolf's book an interesting read and even he says "don't make yourself crazy with this....." he has a good point.

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I enjoyed reading the book. Not too dense, but if you've heard him lecture there are probably parts of it you can skip. In fact, you may already know all of the info that he presents. 

 

An update from me - I'm beginning day 4. I've been pretty successful sticking with the diet. My only cheat is an extra piece of dark chocolate (which is allowed in the "occasional food" category) and stevia (also an "occasional food") that I used in my almond milk hot chocolate (made with coco powder - no sugar and low in carbs, so I figured it's okay). No carb withdrawls or funny feelings. I'm eating a lot but still feel hungry in some aspect. I feel like eating a bowl of oatmeal gives me a different sense of fullness than an omelet does.

 

I'm using an app on my phone to track my food, and goodness you eat so much fat on this diet! Eggs, olive oil, almonds, avocados, salmon, cheese. I don't think he says in the book how many grams of fat vs protein you're supposed to eat. I hope I'm not eating too much fat. How much is too much?

 

I'm definitely eating more protein than I have in the past few years (I've found it hard in the past to get protein in my diet with my schedule and being away from home so much for work). I'm up to about 95 grams/day, which is actually the acceptable amount for my weight.

 

And let me say - I'm eating AMAZING food! Omelets in the morning (I'm thrilled that I can tolerate eggs now!), salmon topped with guacamole, sauteed green beans with onion and garlic, kale salad with lemon and feta, pan seared chicken (seasoning is everything). So anyone interested in trying this diet - you do eat real food. The challenge that I'm finding is that it's difficult to be away from my kitchen. A lot of these foods are things you have to prepare.

 

I haven't had a chance to work out much. I actually didn't sleep much (my own fault) on Monday night, was exhausted all of Tuesday, and of course ate everything in sight (mostly cheese and almond butter). So I'm going to get better about it this week. I haven't lost weight yet (Tuesday probably played a role in that), but I can sort of feel my body working in a different way. 

 

I'll post another update soon :)

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Another update from today - feeling overly full after each meal. It's the end of the day, and I've figured out that I'll have eaten roughly 1350 calories. It's not a lot, but I feel so full that it's hard to motivate myself to work out (I did a bit of weight training anyway and am on my way to teach a class in a bit). I feel like I couldn't possibly fit more into my stomach, but at the same time I don't feel 100% satisfied. I would love some more chocolate, lol. All of my food is amazing, but at the moment it's feeling like a long week waiting to see some results. 

 

IrishHeart, did you feel anything like this the first week? I'm hoping that it will get better. 

 

I also wonder how long it takes the body to start processing fat for energy efficiently.....

 

I have some loved ones who would be perfect candidates for this diet according to the book (in terms of brain/cholesterol issues), so I'm really hoping to have a good experience. I want to be a good example. 

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. All of my food is amazing, but at the moment it's feeling like a long week waiting to see some results. 

 

 

 

Nothing much happens in the first week, I am told.... be patient. :)

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Nothing much happens in the first week, I am told.... be patient. :)

 

Thanks. Gonna stick with it! :)

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I suspect I fall more into the primal camp as I do use KerryGold butter, sometimes eat yogurt .....oh,  and I drink vodka.  :)

Giving  up grains, legumes, cheese, all high histamine foods (shellfish, cured meats, toms, citrus, etc.)

and going to the gym is torture enough.

Not giving up those, too. lol

 

I found Robb Wolf's book an interesting read and even he says "don't make yourself crazy with this....." he has a good point.

 

So… bulletproof coffee? :Phttp://www.bulletproofexec.com/how-to-make-your-coffee-bulletproof-and-your-morning-too/ )

 

I also enjoyed Robb Wolf's book, Sission's was good too. I agree with the not making yourself crazy… although, I'm pretty sure I've already hit that point and beyond with celiac and research and some of the studies/projections for mucosal repair in the long term, etc. Sigh. 

 

But I really gelled with eating Primally (which is what I did for 6 months and then stopped due to life… and hopefully will start here again, soon.)

 

And let me say - I'm eating AMAZING food! Omelets in the morning (I'm thrilled that I can tolerate eggs now!), salmon topped with guacamole, sauteed green beans with onion and garlic, kale salad with lemon and feta, pan seared chicken (seasoning is everything). So anyone interested in trying this diet - you do eat real food. The challenge that I'm finding is that it's difficult to be away from my kitchen. A lot of these foods are things you have to prepare.

 

Your food sounds delicious! I'm sure it'll all pay off soon :) (also, yes, seriously, not nearly as convenient as other eating styles, it really pays off to preplan/make in bulk and freeze/store)

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No, I am old school. I just drink plain, brewed decaf with a bit of CREAM.   :D

sometimes, I get bold and put cinnamon or vanilla in the grounds so it brews in the flavor.

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A little update:

 

Unfortunately, I found out that I wasn’t doing the diet effectively. The book was misleading because it said you could eat as many vegetables as you’d like. However, the carb content in green beans, garlic and onion (which were on the "good" list) was pushing me WAY past 40 grams of carbs per day – I was probably more like 80-100g which doesn’t push the body into that “burning fat for fuel” zone. I was very frustrated to have given up fruit and grains for five days already to not have it really count. Luckily, I found out that one of my fellow personal trainers is doing the same diet this month and she gave me a wonderful pep talk. I’ve adjusted my foods, and am now clocking in at 40g.

 

Yesterday was my first 40g day. Disclaimer: I had some major problems with the NYC subway system around lunch time which made me pretty irritable (especially because I was already hungry). But the entire afternoon/evening I felt really mad, which is unusual for me. I also developed a headache, had a dip in energy, and felt like I was starving even though I ate around 1500 calories. I’m hoping that the intense hunger will go away soon. My friend told me that it is natural to feel unfulfilled and tired. This morning I ate a small serving of green beans and a large omelet and a piece of dark chocolate, but I’m still hungry. No difference in terms of weight loss (with how hungry I am I was hoping that I lost two pounds, lol), although my friend said that it takes the body about a week to kick into fat-burning mode. It’s amazing the difference I feel when eating the carb-filled veggies compared to not.

 

So far, it’s proving to be difficult because I’m officially in carb/sugar detox. Part of me really wants to eat an entire cake, but I want to stick with it. I have clients and family members who would like to try the diet if I feel like I have success with it. I want to be a good example. Although my inner cake-eater thinks that I’m crazy.  :wacko:

 

I am excited for Sunday, which is my cheat day. My friend said that she has a cheat day, too, and that it’s actually beneficial to the diet. That day I will do high carb/protein and low fat, keeping the carbs and fats separate according to her advice. (And this is a person who I greatly trust with accurate fitness/diet information)

 

On another note, I did post a few questions on a low-carb forum to ask people about my veggie/carb dilemma and ask for support, and a lot of people were very negative. A few people told me that I should only be eating 1100-1200 calories a day, which as a personal trainer I never recommend doing that for more than one or two days per week because it puts the body into starvation mode and could potentially ruin the metabolism if it’s done long-term. (And I’m not doing 40g/day forever – just for a few weeks as a kick start) When I said that I couldn’t do less than 1200 cal/day (especially while I’m working on building muscle) and none of my trainer friends would recommend it, several people got kinda snippy and said, “Well, good luck on your ‘diet’.” I didn’t read any more comments after that. So thank you to my friends on this board – it’s a joy talking with all of you. It has always been a wonderfully positive, encouraging, and helpful environment.

 

On yet another note: My boyfriend’s roommate made cinnamon rolls. It took all of my energy to resist them and to remind myself that I have a gluten intolerance. I told my bf that if he wakes up in the morning and sees that all of the cinnamon rolls are gone and I’m bent over in agony…..we know what happened. Lol……I really want that cinnamon roll…..

 

Onto another day! Today’s menu:

Green tea. Small amount of green beans sautéed in coconut oil. 3 egg omelet with sharp cheddar and broccoli. Piece of dark chocolate

Pan seared chicken and smoked gouda cheese

Kale/red bell pepper/garlic/onion sautéed medley and ground turkey. More dark chocolate  B)

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NO cinnamon rolls, young lady! :D

 

Do you eat red meat of any kind? I find that really satisfies me. 

 

Wish I could have chocolate. It does not like me right now. 

 

Last night, I veered waaaay off course and we are celebrating the fact our new home is done (it was being built and the process was lOOOOOng)

 

Not sure if it was the rice I broke down and ate or the creme brulee I was talked into (I am sure no paleo woman ate that LOL) but today,  I feel like dog poop.

All that sugar? oh man, I was awake half the night. :huh: There's something to this no sugar thing! 

 

And I have to move in to my house today. Good thing I have been working out again.

 

Hang in there! Your menu sounds de-lish, BTW

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I hope you feel better! .....I want a cupcake. Like a REALLY big one! lol I haven't had sugar cravings like this in a long time. I've been told that they go away after the first few days.

 

I try to not eat a lot of red meat because I feel like I don't digest it very well. Occasionally I'll have sausage or hamburger, but I mostly stick with chicken or turkey. I also think that my body is adjusting to all of the protein I'm giving it. In hindsight, I don't think I've been getting enough protein for the past few years. Now I'm having eggs in the morning and meat twice a day. Wow! I've never done that before. Another tip from my friend for when anyone starts to consume more protein than normal - drink a lot of water. It helps to keep things moving.  ;)

 

Congrats on your new home, IrishHeart!!!  :)

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Update!

 

I'm on Day #5 of the correct diet (40g carbs/day - I admit that sometimes I am between 41-43), and am feeling pretty good. I've lost two pounds! I've only been doing light strength training, nothing excessive outside of my normal routine. Just making a point to do a couple of extra exercises when I can. I'm still dealing with continual hunger despite eating TONS of food, but hopefully this will subside a bit. Here's a breakdown of how I generally felt over the past few days:

 

Day 1 - Massively craving cinnamon rolls, lol. Dealt with a bad headache at the end of the day and irritability (partially because of outside influences). A little tired. The cravings, irritability and general unwell feelings were so intense that I was unsure if I'd be able to continue the diet for a long time. 

 

Day 2 - Still craving sugar but enjoyed all of the food I could have. Felt odd and a little jittery as my body was trying to figure out where the carbs were hiding. However, I did start to catch a cold later that night, so that might have had some influence in my odd feelings on this day. 

 

Day 3 - Caught a cold. Decided not to do the cheat day that I had planned because it wouldn't have been any fun. Still very hungry. Most other odd feelings I blame on the cold.

 

Day 4 - I was down 2.5 pounds in just three days! And I had been stubbornly stuck at that top weight. I tend to be really sensitive about my stomach because I used to be one of those girls who had no problem staying super skinny, but when I did get sick I would bloat enormously and if I gained a few pounds it all went to my stomach. I began feeling like my system was working efficiently again - no feeling overly full or bloating. I began feeling leaner. I'm really liking these feelings. 

 

Day 5 - Was up 1/2 pound (but it is that time of the month, so I'm sure hormones have something to do with it. That may effect what comes on the scale over the next few days). Still hungry, but I still feel leaner than last week.

 

 

A few things I want to be clear about: 1) Even though I am hungry all the time I am definitely eating a lot, and I'm getting in more protein than I ever have before. Finally fueling my muscles. 2) I don't believe in "diets" because they are short lived and people normally end up gaining all of the weight back. I believe in lifestyles. I am doing this as a kickstart experiment to help my body efficiently burn off some fat and build more muscle. I don't plan on continuing the kickstart after February is over. From there, I plan on incorporating some carbs back in (because I don't want my body to forget how to digest carbs), and I will continue to weight train and eat more protein. I feel that I would be able to maintain with a balanced diet and exercise once I get to my happy place.

 

One of my clients asked me how I stay motivated to stick to a diet/exercise plan (The Biggest Loser winner gets money; a friend of mine is pregnant and dealing with complications, so she's doing it for the baby). I told her that there are a million excuses, and eventually you have to throw them all away and JUST DO IT. Now, this diet is incredibly difficult what with the inconvenience, cravings, hunger, and how you need to measure out and count every single carb. But I'm doing my best to follow my own advice, and so far I've seen a difference. I haven't had my cheat day yet. Basically I'm taking it one day at a time and trying to hold off as long as I can (Valentine's Day is coming up and I fully plan on enjoying some chocolate!). And when I get to the end of the day and I really want something sweet or extra carb-filled food to munch on, I remind myself that if I cheat at 8:00pm and have some bread or dessert, then I would have wasted the entire day of being good - and what a sucky cheat day that would be! I could have eaten fruit and a bagel and mountains of vegetables during the day if I really wanted a cheat day! So that's helping me push through. I hope that helps someone else. Sometimes you have to just do it. 

 

In moving forward one day at a time, I am hoping to go to the end of the month, but we will see where this experiment takes me. So far, I highly recommend it. 

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I forgot to mention two things in my last post:

 

1. The reason why I think I am so hungry is because my body is craving sugar. So my brain is telling me, "You aren't feeding me what I want, so I'm going to tell you to keep feeding me until I get what I want!"

 

2. Part of the good feeling that I'm getting is that I feel like my digestive system is working with me rather than against me. It wasn't bad before, but it feels better and perhaps more productive. So far at least. Good feeling to have  :)

 

Also, today's sugar cravings have been easier. I'm not feeling quite as "off" or "unwell" as I was in the first few days.

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I was thinking about turning this into a blog, but I'm just going to keep posting updates here in case someone does a search for it someday.

 

I did a total of 9 days without a cheat day! I feel amazing! It's SOOOO much easier now that I made it past the first few days. So far I've lost 3.5 pounds, and I feel like my digestive system is really working efficiently. Just not having those few pounds on me feels so good. And you know that feeling like your last meal was heavy or your food isn't digesting well? - none of that. Also, I only did a few light workouts, but next week I'm hoping to do some more strength training.

 

I'm reiterating this - cheat days really aren't a part of the first month on the Grain Brain diet, but I've given myself the option of having one a week (Valentine's Day and my anniversary are both in February). 

 

I'm celebrating a late Valentine's Day with my boyfriend and cheat day is today! Bagels, chocolate truffles, honey/coconut flour strawberry short cake, LOTS of veggies, chicken cooked in thai sauce. It's going to be a good day, lol  :D

 

I've already had a bunch of vegetables and a little bit of bagel this morning and no stomach aches or any other effect from the carbs. 

 

I'll update again in a few days. 

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Update on my cheat day:

 

I finished my bagel and got a big stomach ache soon after. I felt rather bloated and could feel that my body was having a hard time digesting it. I decided to have dessert with my boyfriend that night because I had already made strawberry shortcake and truffles for our make-up Valentine's Day. Sure enough I went to bed with a stomach ache and woke up with one. I told him that I was excited to be back on my diet plan today because it feels so good. My favorite thing about my cheat day was not necessarily the food, but just not having to plan out my carb intake for each meal. I could eat as many veggies as I wanted. I'll have to be more careful on my next cheat day to not overdo it as much.

 

I wonder if I have an intolerance to grains and should go primarily/permanently grain free or maybe this was just because I hadn't eaten any grains for two weeks....like how vegetarians will get a little sick if they accidentally eat a little meat?...we'll see how things continue.

 

Also today I weighed 1.7 pounds more than yesterday. Blah. It's 2:00pm and my stomach has finally completely calmed down. Onwards and upwards! 

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Latest update:

 

According to the scale, I weigh almost half a pound less than I was the morning of my cheat day 8 days ago (with the stomach aches and light weight gain, the cheat day wasn't worth it). In total, I've lost about 4 pounds in 18 days.

 

I skipped my cheat day this weekend. I had no cravings for anything. I did have a glass of wine (which I allocated the carbs for), but I couldn't finish it (it could have just been because the wine tasted cheap and I didn't care for it, lol). I also decided to have a piece of Dove dark chocolate (my normal chocolate of choice), but I wound up only eating half of a square - it tasted so sweet! I gave the other half to my boyfriend. 

 

I also found a new protein shake that comes in a can with 35 grams of protein, 2 grams of carbs, and virtually no sugar. Gluten free and tasty. Very grateful to have the extra option for when I am on the go, so I don't have to carry around cooked chicken in my purse worrying that it will go bad  :wacko:

 

I wore my skinny jeans for the first time in months yesterday and loved it. Feeling much more comfortable in my own body.

 

My boyfriend seems to have noticed a difference, too. He said that my curves looked more defined. Good boy  ;)

 

Until next time!

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    • I am sorry that I was not clear.    I only mentioned  your diagnostic background, not to discredit you, but because without any lab results (other than a positive gene test), how can you be sure that gluten (shampoo containing wheat protein) was the actual culprit (not a guess) of your symptoms?  It is common for celiacs to receive follow-up antibodies to monitor their dietary compliance.  This is not perfect, but it is the only tool in the toolbox for now.   My husband has been gluten free 12 years prior to my diagnosis.  He went gluten free per the poor advice of his GP and my allergist.  So, I am not trying to discount your diagnosis at all.  I am just trying to see if other lab tests (e.g. liver tests that were elevated previously for you when you were still consuming gluten) were measured after your shampoo exposure.   I am curious because I have had issues over the last year.  I was glutened last January, had the flu, a tooth infection, a cold and a tooth extraction, three rounds of antibiotics (verified to be gluten free) within a month or so.  Like, you, I am very careful.  I have no idea as to how I was exposed.   The last time I ate out was a year ago and even then it was at at 100% gluten free restaurant.   My hubby did not have any symptoms at this time.  He is like my canary.    I went to my GI and my DGP IgA was off the charts even some three months later.   My celiac-related symptoms diminished in three months, but I struggled with autoimmune hives for six.  My GI offered to do an endoscopy in the summer.  Instead I chose to follow the Fasano diet.  I still was not feeling well.  In December, my antibodies were 80.  They were either on a decline or they were increasing again.  I opted for the endoscopy.  My biopsies revealed a healed small intestine (you could see the villi on the scope too).  But I was diagnosed with chronic gastritis and had a polyp removed.   So, all this time I thought my celiac disease was active, but it was NOT the source of my current gut issues.   Again, my apologies.  I just wanted to know how you know for SURE that hydrologized wheat protein from someone else’s shampoo and conditioner could reach your small intestine to trigger an autoimmune reaction.  Maybe, like me, Gluten was not the actual culprit.    
    • The reason I think it was the shampoo? Process of elimination. Our house is almost entirely gluten free (except for this shampoo which slipped through the cracks until I read the ingredient label). My husband has bread that he eats at lunch, but he practices something that resembles aseptic technique from the lab when he's making his sandwiches. He's been doing this for years now and I've never been glutened from within my home. The previous week I hadn't eaten out, I cooked all my food, I don't eat processed food and I never eat something from a shared facility.  Usually if I get glutened it's a single dose sort of thing and it follows a very predictable course, to the point where I can estimate when I got glutened within 24 hours of when it happened. However, this time, I was feeling achy and arthritic and moody for about a week before it got bad enough for me to recognize it as the result of gluten exposure, at which point we went searching and found the shampoo (and conditioner, which does leave more of a residue than shampoo), which he immediately stopped using. Within three days I was feeling back to normal (which is the usual course for me).  Sure, it could have been something else, but I know how sensitive I am, and, as silly as it sounds, it was the only thing that made sense. The other thing you said: You're correct, mine was not a rock solid celiac diagnosis, but I have no doubt that gluten is the problem. I was SICK. I went through two different gluten challenges in an effort to get a more straightforward diagnosis during which I was a barely functioning human being. Consuming gluten may not have given me blunted villi or elevated antibodies, but it did inflame my gut, and actually started to damage my liver. If you look at my diagnosis thread, I had elevated liver enzymes, which have been correlated with celiac disease in the past. There was no alternative explanation for the liver enzymes, he checked EVERYTHING.  I too am a scientist and I have spent a lot of time with the literature trying to make sense of my condition.  https://www.ncbi.nlm.nih.gov/pubmed/26150087 I also have no doubt that gluten was damaging my intestines in some way, as any prolonged gluten exposure in the past has inevitably been followed by a severe FODMAP intolerance that goes away once I've eliminated the gluten and given myself a month or so to heal.  I also had a very fast diagnosis following the onset of symptoms (~1 year) so it's possible that the disease never had a chance to manifest as full celiac. I wasn't willing to eat gluten long enough to find out. As a result of my diagnosis, hazy as it was, I am *meticulously* gluten free. It is not a fad for me. I don't occasionally cheat. It is my life, for better or worse. All of that being said, I'm not sure what my diagnosis has to do with your question. You say you're not trying to be rude, but when you bring up my diagnosis in a thread that has nothing to do with diagnostics, it seems like you're trying to undermine the validity of my disease or the validity of my input in this forum. If I'm being hypersensitive, I apologize, but that's how you came across on my end. I'll admit that the fact that my diagnosis wasn't more straight forward does make me a bit defensive, but I promise that even if I didn't have a solid diagnosis, I interact with the world as though I did, and I'm not out there giving people the wrong idea about celiac disease by not taking it seriously. If there was a connection between your question and my diagnostics that I missed I would appreciate you giving me the chance to better understand what you were asking. 
    • I am just curious.  As a scientist (and I am not trying to be rude), how can you determine if hydrologized wheat protein from your husband’s shampoo was actually the culprit?  If I recall at your diagnosis, you were seronegative, Marsh Stage I, gene positive,  but your doctor still  suspected celiac disease.  You improved on a gluten diet.  Other than observation, how do you really know?  Could it not be something else that triggered your symptoms?   I firmly believe that even trace amounts of gluten (under 20 ppm), can impact sensitive celiacs.  But traces of a protein within a shampoo from someone else’s hair that was rinsed?    
    • I also can't have dairy but through a series of experiments and a lot of research I think I've pinpointed my problem. It may or may not be the same for you, but I thought I'd share.  There are two kinds of beta-casein protein A1 and A2. We'll call A1 "bad casein" and A2 "good casein". The two proteins differ only in a single amino acid, but this is enough to make it so that they are processed differently in your guy. Bad casein is actually broken down into a casomorphin, which is an opioid peptide. That does not mean that milk gets you high, or is as addictive as heroin, or anything like that, it just means that it can interact with opioid receptors (which the gut has a bunch of). It's worth noting that opioids cause constipation due to their interaction with the opioid receptors in the gut, and that a lot of people feel like cheese and dairy slow things down, but any connection between the two is pure speculation on my part at this point.  Now here's where things get weird. The vast majority of milk cows in the western world are derived from Holstein-like breeds, meaning black and white cows. In a few select places, you'll see farms that use Jersey-type cows, or brown cows (Jersey cows produce less milk than Holsteins, but many connoisseurs feel it's a higher quality milk, particularly for cheese).  Holstein-like cows have A1 and A2 casein (bad and good), however, Jersey-type cows only have A2 (good casein), unless their genetic line involved a Holstein somewhere in the past, which does happen.  A company in New Zealand figured out how to test their cows for these two genes, and selected their herd down to cows that specifically produce ONLY A2 (good) casein. You might have seen it in the store, it's called A2 milk. Some people have had a lot of luck with this milk, though it still doesn't solve the problem of cheese.  I have suspected, due to trial and error and a few accidental exposures, that I have a problem with A1 casein, but not A2. In line with this: I am able to eat sheep and goat dairy without any difficulty, so at least I can still enjoy those cheeses! I am also fortunate because I'm apparently not too sensitive, as I can still eat cow-milk butter. The process of making butter removes *most* (read: enough for me) of the casein.  However, if I eat cow cheese or a baked good with milk, I get really sick. It's a much faster reaction than if I get glutened. Within minutes I'm dizzy and tired and my limbs are heavy. I have to sleep for a couple of hours, and then, over the next couple of days, I'm vulnerable to moodiness and muscles spasms and stomach upset just as though I'd been glutened (though the brain fog isn't as bad). I actually haven't tried A2 milk yet, mostly due to lack of availability (and motivation, I don't miss milk, I miss CHEESE). However, last year, when I was getting ready to go on a trip to Italy, I had a thought. Once, in the recent past, when I'd been testing dairy, I'd had a slice of parmesan cheese. Miracle of miracles, I was fine. I didn't feel a thing! I was so excited that I ran out and got some brie to eat as a snack. That did not go so well... Turns out parmigiano reggiano is made from the milk of the Reggiana variety of cow which is, you guessed it, a brown cow (they say red). I did a little more research and found that dairies in Italy predominantly use brown cows. So I decided to try something. As some of you may know, Italy is something of a haven for celiacs. It's one of the most gluten-free friendly places I've ever been. You can say "senza glutine" in the smallest little town and they don't even bat their eyelashes. You can buy gluten free foods in the pharmacy because they're considered a MEDICAL NECESSITY. If travelling-while-celiac freaks you out, go to Italy. Check out the website for the AIC (Italy's Celiac society), find some accredited restaurants, and GO NUTS. While I was there, I decided to see if I could eat the dairy. I could.  Friends, I ate gelato Every. Single. Night. after that. It was amazing. Between the dairy being safe for me and the preponderance of gluten free options, it was almost like I didn't have dietary restrictions. It was heaven. I want to go back and never leave.  So that's my story. Almost too crazy to believe.  TL;DR: Black and white cows make me sick, brown cows are my friends.
    • I'm a scientist, and I did a little research into the study. Looks valid and it was published in a respected journal.  http://www.gastrojournal.org/article/S0016-5085(17)36352-7/pdf The science looks solid. As someone who didn't have a super clean cut diagnosis before going gluten free, I'd love to see something like this become available. Then again, there's no doubt in my mind that I can't have gluten, so any additional testing would be purely academic. But like I said, I'm a scientist. I can't help myself. 
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