• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Man I Was Bumbed!
0

41 posts in this topic

I guess if I were only interested in celiac (wheat, rye and barley), I would have read the first post in this thread and, seeing it was about corn, not read any farther. But that's just me.

 

Anyway, I'm glad for you that you have no further intolerances. :)

 

and....what I would give to "only" have celiac without "additional intolerances" or other AI diseases and complications.

(which seems to be more the norm than the minority around here)

 

.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I know! My sentiments exactly! 

0

Share this post


Link to post
Share on other sites

I completely agree with you about me making any statements concerning what a corn intolerant person may eat. That's not my area of expertise, as it were. And I apologize. I wouldn't have even read that post if it had been in a forum thread devoted to "other insensitivities/intolerances" etc. Corn intolerance is not Celiac Disease. Many believe they are soy, casien/dairy, corn, cheese intolerant. And I'm probably leaving some others out here. It's very unfortunate, and I'm not unsympathetic of them. I just don't have the time and energy to follow everything. I'd rather just focus on Celiac Disease. You know, wheat, barely, and rye.

 

I'm guessing, and I'll defer to you on this, that as with Celiacs, there's a wide range in degree of corn intolerance. Some Celiacs, I'd say most, can eat foods that don't contain any listed gluten ingredients. And others are so sensitive that they must take exteme measures to avoid any possible exposure, no matter how infinitesimally small and unlikely that may be.  

 

Because of my ignorance of corn intolerance, I took one look at Velveeta's ingredients and didn't see any obvious corn.  And then when I looked up the three were discussing, I still didn't see any actual corn in the finished products. Just because a culture is grown on a medium, doesn't necessarily mean there's any of that medium left in the finished product. For instance, from those same sources, it states that even when Maltodextrin is derived from wheat, no wheat protein is left in the finished product. 

 

But I digress from the business at hand. And that's me getting out of the corn business. 

 

Again, please accept my sincere apologies. I promise to butt out of any corn business from now on.

 

best regards, larry mac 

Certainly did not mean to cause a ruckus, I think this is all a learning experience to us all. I do have Celiac, I do have corn intolerance , I did not say hubbs used Velveeta he used some off the wall brand. I am so sorry If I offended anyone by posting this. Will try and stay on topic of Celiac. 

0

Share this post


Link to post
Share on other sites

Certainly did not mean to cause a ruckus, I think this is all a learning experience to us all. I do have Celiac, I do have corn intolerance , I did not say hubbs used Velveeta he used some off the wall brand. I am so sorry If I offended anyone by posting this. Will try and stay on topic of Celiac. 

But hon, you ARE on topic. You did not offend anyone.

Do not let one person's comment cause you to feel as if you did something wrong.

If the moderators of the board did not move it out of the coping section, then we feel it's a coping issue.

You're still new at this and you were telling us how you coped with yet another new hurdle.

Am I right?

 

Please, do not give it another thought!

You got supportive replies and that's the whole point.

 

All's well that ends well. ;)

0

Share this post


Link to post
Share on other sites

OK :) To stay on topic. I will now say being corn intolerant and Celiac and Lactose intolerant. I am considering the Paleo diet. I call them Doits :)Not Diets.  I am so tired of looking at labels and trying to figure out what is Corn and what is not.I am no scientist.  I think it will be easier for me to just not eat processed. I think all I have to give up besides processed is Rice & Potatoes , Ohhh and Beans ...I had a beginners Paleo book need to look it up. Beans and Rice <- my fav! Soooo hmmm .... Maby Monday will be my day? Eat the rest of the rice I cooked yesterday, maby have Beans and Rice for the last time :) but I have got to do something. Maby this is the way to go? This processed cheeses and Processed Cream of soups and proccessed chips and processed processed processed.... Sick of reading labels and having reactions. I know we read it here all the time. Sick and tired of being sick and tired! I have got to do something. This will be my next thing. 

 

TY IrishHeart I will try and keep that in mind. Cannot imagine being miss DX'd for 25 years! 

0

Share this post


Link to post
Share on other sites
Ads by Google:


Wendy,

 

Why not consider just dropping all processed foods for now.  You don't know that rice and beans are a problem for you.  Many of us can't eat a lot of processed foods. I get some cookies once in a blue moon but I try to keep it all one ingredient food choices.  This is much easier to do than cutting out items that you don't know if you have a problem with or not.  It is also much healthier. Do this for a good 2 months and see how you do.  You can address a possible additional intolerance at that point if your still having problems.  I know others may say to limit everything now and add back in but the corn in processed food seems to be your problem.  

 

Colleen

1

Share this post


Link to post
Share on other sites

TY Colleen, 

 That may be easier than going on Paleo, And for 2 months sure is doable! I do know corn is a problem for me , there is no question about that. I was cooking last night and was reading ingredients and looked up and sure enuf something was corn derived so I ended out just having Chicken. Thats when it hit me about the processed stuff. For some reason it just struck me as Paleo. But I guess you have a good point. I LOve Beans and Rice :) I wouldn't have to give them up :) 2 months thats a deal! See what happens. If I am still suffering from "Something" then I will take rice away. Only because I eat more rice than beans and potatoes. for 2 months. If still problems I will cut out Potatoes. But I have a feeling just cutting out Processed will do ALOT! Thanks! 

0

Share this post


Link to post
Share on other sites

I agree with Colleen. Before you go all caveman, ditch anything from a package. Use my 5 ingredient rule: If the label has more than 5 ingredients (and I cannot pronounce half of them and even my chemist hub shakes his head and makes that face like "er, that's not food, that's just chemicals")  LOL

then, I don't eat them 

 

And for what it's worth, I have been on a primal diet for 7 weeks,....it's not horrid, but let's just say....... I still drink vodka.  :lol: 

 

Keep your rice and beans if you can!  ;) 

1

Share this post


Link to post
Share on other sites

I agree with Colleen and Irish....ditch everything processed before removing other foods.

1

Share this post


Link to post
Share on other sites

TY I think thats exactly what I am going to do :) I like to take the advise of the ones who have been there done that. As of today I am no processed foods :) for 2 months and see where that gets me :) I appreciate all the help in this :) 

0

Share this post


Link to post
Share on other sites

Wendy,

 

Glad to hear you are giving it a shot.  You have learned so much already and the corn intolerance is very difficult to deal with (just ask Barty) and so many processed foods have corn deriviitives.  I'm not eating anything processed right now either (different reason) so we can do this together  :)

 

Colleen

1

Share this post


Link to post
Share on other sites

Yeah, I'm still eating some processed foods. I went without them for a long time and when I finally found gluten-free/corn-free ice cream and gluten-free/corn-free potato chips, I jumped on them.

 

As a matter of fact, I found a new (to me) brand of potato chips the other day. The health food store was out of Kettle Brand but they had Boulder Canyon Olive Oil chips. Now, I love Kettle Brand but they are incredibly greasy. I mean if you tip the empty bag the greas will actually drip out! These Boulder Canyon chips are not as greasy and even if they were, we all know olive oil is good for us. So yeah, I'm still getting the salt and the calories, but I don't feel quite so guilty. And they are yummy. :)

1

Share this post


Link to post
Share on other sites

It's a deal Colleen :) 

 

Bartful I do have some chips I like , They are "Better Made" made with cotton seed oil/ Palm oil and sea salt. I will miss them for a while but Ohhh well! I will get over it for two months. At least it's not in the middle of summer where there are partys all the time. This is a good time to do this. 

0

Share this post


Link to post
Share on other sites

Ohh no I just read where Cotton Seed oil is not good for Celiacs Pfftt!

0

Share this post


Link to post
Share on other sites

I agree with Colleen. Before you go all caveman, ditch anything from a package. Use my 5 ingredient rule: If the label has more than 5 ingredients (and I cannot pronounce half of them and even my chemist hub shakes his head and makes that face like "er, that's not food, that's just chemicals")  LOL

then, I don't eat them 

 

And for what it's worth, I have been on a primal diet for 7 weeks,....it's not horrid, but let's just say....... I still drink vodka.  :lol: 

 

Keep your rice and beans if you can!  ;) 

Yesss the five ingredient rule looks like something I can do! I had a week of rehearsals, performances and late nights which meant living mostly on the only packet of crisps in the vending machine I knew were gluten-free. And now I have flu for the first time in five months. I think my body would appreciate the five ingredient rule... 

1

Share this post


Link to post
Share on other sites

Yesss the five ingredient rule looks like something I can do! I had a week of rehearsals, performances and late nights which meant living mostly on the only packet of crisps in the vending machine I knew were gluten-free. And now I have flu for the first time in five months. I think my body would appreciate the five ingredient rule... 

Do it KC :) 

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,783
    • Total Posts
      932,387
  • Member Statistics

    • Total Members
      64,258
    • Most Online
      3,093

    Newest Member
    Avril Perridge
    Joined
  • Popular Now

  • Topics

  • Posts

    • Thank you, again, for the support and help! The suggestion of sleep and lots of water and discussion the next day seemed to help a lot. 
    • ironictruth, I think you are so early in your diagnosis that most test don't account for so early a diagnosis. see this thread started by you and GFinDC conclusion at the end of the thread not sure how to quote from multiple threads. Here is what GFinDC thought the study meant and I agree. Posted March 7 "It seems like another way to look at the positive DGP and negative biopsy is that DGP could be an early indicator of celiac disease.  Perhaps before much intestinal damage shows up." Here is another thread that talks about what is happening to you I believe with so many test's we often can't clearly make out what is happening often. see this link embedded in the the post as linked by squirmingitch https://www.ncbi.nlm.nih.gov/pubmed/27352981 on the topic of  "Seronegative celiac disease: Shedding light on an obscure clinical entity." and might be what you are experiencing from your test results. But I want to say why while you so want it to be "Celiac" and not the "C" word I think Pellagra should be considered as a differential diagnosis. I say this and repeat it to those who will listen.  Niacinamide helped me. This article on celiac.com explains why this might be so https://www.celiac.com/articles/24658/1/A-Differential-Diagnosis-How-Pellagra-Can-be-Confused-with-Celiac-Disease/Page1.html and if taking a b-complex 2 to 3 a day (and Niacinamide) for a couple months greatly alleviates many of your GI problems then you also  have had pellagra co-morbid and the doctor's don't recognize it in a clinical setting today .  . .  mainly because they don't know to look for it any more today. I wrote about how to take niacinamide in my blog post about this topic so I wouldn't have to retype it several times. I want to quote from the discussions section the heart of most good research from the American Journal of Clinical Nutrition research article linked in my posterboy blog thread about how to take niacinamide and why you would want too Faq. poster here again for those who want to do the deep research from their discussion section. http://ajcn.nutrition.org/content/85/1/218.full "Random spot urine sampling, together with the measurement of 1-MN and 2-PYR concentrations, has been suggested as an alternative because it avoids these issues and would provide a guide to status (22). However, the ratio of these metabolites has been shown to vary according to the time after the last meal because they are sequential intermediates on the same catabolic pathway (21). This makes the ratio an intrinsically unstable variable for use in population surveys; in the present study we chose to use cutoffs previously established for the excretion of individual metabolites expressed relative to creatinine. The subjects whose excretion fell below the established cutoffs for either metabolite were considered to be deficient." A little technical but essentially we soo need b-vitamins that even if you have a test for low vitamin b-3 the amount of the b-3 in your meal (f you have not fasted before the test) can cause us to test in a low normal range thus making taking of the b-vitamin a self test of cause and effect. Did you get better after taking Niacinamide then if taking Niacinamide helped your GI problems you were low in Niacinamide. This is typically a 24 hour test and most people don't fast 24 hours before going to the doctor and will often fail this test since our body has absorbed enough from our food to help us pass the thresh hold set at the minimum level. Here is why it is good to take a b-complex with Niacin/niacinamide because it interacts with other nutrients. https://www.ncbi.nlm.nih.gov/pubmed/3804611/ including b-6 which is one of the metabolites measured to determine a pellagra diagnosis. see this mdguidelines link that summarizes this well. http://www.mdguidelines.com/pellagra where they say  quoting there treatment section "Treatment consists of high oral doses of niacinamide, a form of niacin. Usually, supplements of other B-vitamins are also given because many individuals with pellagra also have low levels of B1, B2, B6, and pantothenic acid." and possibly Zinc if the other research is correct. ***** this is not medical advice just my research on the topic and experience with taking Niacinamide to treat many of my GI problems. Prousky wrote about this 15+ years ago and still people are not aware of this fact that Niacinamide treats digestive problems. http://www.yourhealthbase.com/database/niacin-treats-digestive-problems.htm and if they are are aware of it are they are slow to accept that a vitamin could help with their GI problems. the gluten free works site also has a great article on this topic. http://glutenfreeworks.com/blog/2010/06/23/niacin-vitamin-b3-deficiency-in-celiac-disease/ while it is recognized that celiac's have many of these deficiency it is not well accepted/understood today low Niacinamide alone can treat many GI problems though the research is 15+ years old .  . . still people suffer. I don't want you to have pellagra or celiac but I want you to be aware there is a another valid differential diagnosis that can make sense for many people seeking to be diagnosed as a celaic disease patient. because people with pellagra often get better very quickly it is worth a try or least some of your time to research it some more. ***again this not medical advice.  Please check with your doctor about this possibility but don't be surprised if he doesn't know much about pellagra and probably less than he does about celiac disease. Dr. Heaney talks about why this is today on his blog about the 4 D's of Pellagra and why doctor's don't recognize it today in a clinical setting. http://blogs.creighton.edu/heaney/2013/11/18/pellagra-and-the-four-ds/ good luck on your continued journey. 2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included. posterboy by the grace of God,
    • You should probably have your doctor run a full blood panel for celiac if you want to be tested right, followed by a endoscope and biopsy. The blood test can give false negatives, and you have to be eating gluten for at least 12 weeks daily for the test. On the ferritin levels, mine was consistently 1-3 on every test even with 2x the normal dose of iron. I found I had to take it with vitamins C supplements to boost it a bit along with managing a few other nutrients that work in combination with it. Seems mine is in part due to constant intestinal inflammation caused by my UC and bleeding ulcers.
    • Hi, I am looking for a functional medicine doctor in the Chicago area?  Any recommendations?  I have never been to one.  I have celiac disease and ulcerative colitis.  What should I expect from a functional medicine doctor?
    • Omg just saw this again, but on Facebook. Wow there are 596 comments on it, most of which are completely crazy. I almost forgot that most people know nothing about celiac disease., yet they pretend they do and shame us.
  • Upcoming Events