• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Just Saying Hello!
0

12 posts in this topic

Hi Everyone,

 

I am new but new on the forum. I have been reading the forum for about  5 months now and have found tons of helpful  information here. I have seen this forum members provide lots of support to others. I have found the stories and the information shared here very informative and very encouraging. Cheers to all of you for such good work :)

 

Little about me:

 

   I was diagnosed with celiac late 2013. I had suspected I might have it after my mom was diagnosed with Celiac in 2009 but I guess I was in denial and in university  :D  so I decided to push my diagnosis back for a while. My symptoms for Celiac were constipation, fatigue and anemia . Not having severe symptoms also contributed to not take the Celiac seriously but I guess I should count my blessings and be thankful that the symptoms are not severe.

  

 My mood started getting worse (very angry and irritable)  last year and I guess so did the damage to my gut. Endoscopy showed grade 3 out of 4 damage (it sound bad given that my GI  looked concerned ^_^ ). I guess I can't cry about it now given this is a consequence of my own choice -_- . 

 

I have been gluten free for about 3 months (well 4 months of I count the big blunders I made in the first month of the diet)  and hoping that my health will go no where but up  :D .

 

I just completed the follow up blood work yesterday and am hoping that it shows some good results of my hard work for the last 3 month. I need some positive vibes from you guys!!!

 

Thank you!

 

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


:D Hooray for you! :D

 

I'm glad you finally got tested. My Mom had it too and like you, I was in denial for a long time. But I'm so glad I finally went gluten-free. Glad you did too. I hope your tests show great improvement!

0

Share this post


Link to post
Share on other sites

Welcome JustGF!

 

The good news is that once the transition is complete it gets much easier.

 

It is great that your symptoms were not severe...you are still young and will heal now that you are living gluten-free.

 

Good luck with your upcoming check...let us know how it goes :)

0

Share this post


Link to post
Share on other sites

Welcome!   This is a great place to be, feel free to ask anything.

0

Share this post


Link to post
Share on other sites

Thank you everyone!

 

I am really optimistic about this positive (and at times hard) lifestyle change. I guess its all worth it in the end. 

I am just hoping to see some validation in the results for the blood work. I will share how it went. 

0

Share this post


Link to post
Share on other sites
Ads by Google:


Welcome! I say that like an old pro when I was just officially diagnosed 11/13! 

 

Yes, let us know how your blood work goes. I go back in April for my follow-up and am hoping for some good stuff! Keep up the good work!

1

Share this post


Link to post
Share on other sites

Welcome to the group! :)  As long as your antibodies are lower than before you are making progress.  You'll be an old-pro in no time! :D

0

Share this post


Link to post
Share on other sites




Welcome JustGF!

 

I was diagnosed on Oct 1, 2013 so haven't been at this for long.  I go back for the follow-up blood work towards the end of March.  You're very fortunate to have caught this thing before getting severe symptoms.  I didn't have any symptoms and yet the biopsy showed moderate to severe villi damage - so the myth about "no symptoms, no problem" (a.k.a. blatant denial) is a load of crap.  ^_^

 

Good luck on your gluten-free journey!

0

Share this post


Link to post
Share on other sites

Thank you everyone! I got my blood work results back today.

Now way back in 2009 I was tested in diff country while taveling and my ttg was 297and I have been on full gluten diet until last year november Here in canada I they never give a number. It just said > 200.

But happy to say its 160 Yay!! It might not be as low as others might have seen but I am happy for this progress. My other antibody is now NORMAL.

My hemoglobin had jumped from the 70s to 127. My ferritin has gone up to 73!

Just thought I should share the numbers. I am off to celebrate with some glutenfree honey and peanut butter sandwiches :)

2

Share this post


Link to post
Share on other sites

Thats great to hear.  You are on the right track, and the first few months are the hardest.  

0

Share this post


Link to post
Share on other sites




Congratulation to YOU!!.  Enjoy your celebration  :)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,378
    • Total Posts
      935,771
  • Member Statistics

    • Total Members
      65,070
    • Most Online
      3,093

    Newest Member
    Catseyez
    Joined
  • Popular Now

  • Topics

  • Posts

    • Just thought of something else.  Have you tried cream of rice cereal?   When I was at my worst, I'd have this a few times a day to settle my stomach. 
    • The full celiac panel includes: TTG IGA TTG IGG DGP IGA DGP IGG EMA IGA   You can either have a gastroenterologist order the full celiac panel plus whatever else they typically test for, or you can order your own test at a site like walkinlab.com. At walkinlab.com it's called the celiac comprehensive test and costs $298.00 (not covered by insurance). Then if any one test comes up high you can give it to your gastroenterologist so they can do an endoscopy. The blood draw is done at your nearest Labcorp. Personally I'd make an appointment at the gastro so they can order their other blood tests and just insist on the full celiac panel also. There's any number of things it could be, not just celiac. If you don't get diagnosed you probably won't stick with a 100 percent gluten free diet for the many months required to see if it works. Good luck in your search.
    • You could certainly try.  Just remember that, if the mix doesn't have xanthum gum, you may need a little.  
    • Maybe the 20 mg. was too strong for you and increasing symptoms?   I have a very low threshold for most meds, and do better on child sized doses.   If you tolerate the 10 mg., that may be the way to go just to get symptoms under control and get stabilized.  Or maybe 10 mg. every other day, if that works. I read that food intolerance symptoms can take 24 to 48 hours to show up.   Can you think of what you were eating in the week before all this started?   I have always used dairy to settle my stomach, so until I figured out the dairy intolerance I was using a small glass of warm milk whenever my stomach was upset.   It provided immediate relief, but caught up with me hours later.   It was kind of hard to believe that milk was the cause when it was so effective in immediate symptom management.    I had also increased chocolate, coffee, and peanut butter right around the same time.  They don't seem to be intolerances (or maybe they are in huge quantities!), but they were irritants, so I needed to avoid them to get things to settle down.  Now that I'm approaching the 3 month point and starting to do better, I have been able to drink coffee with soy milk to buffer, have a little chocolate, and sample some peanuts without much distress.  Perhaps the hardest part of all of this is the time it takes (why forever?!), and how limited one's diet must be for so long in order to stabilize.  I was so sick of eating the same thing for so many weeks, that I started dreading the next meal.  I agree that symptoms and recovery become a blur.  I started making notes on a calendar so I could be more objective and accurate in looking back to assess my symptoms, what I'd tried, and progress.  Otherwise, I just couldn't tell what really did and didn't work.   What seemed like a week ago was really 2 or 3 ... I know you know what I mean! Do follow up with your doctor as need be.  I find that GI docs aren't that helpful for this sort of thing as it's minor in the general scheme of GI things.  My PCP basically told me it was trial and error, as it's different for each one of us.  He could only guide me in meds.   
    • I am sorry that you are all having to go through this. I know all too well the neuro issues she is going through. The world seems so hopeless under that gluten cloud. But it does lift.  There isn't much a neurologist is going to be able to do except to encourage her to be as strict as possible.  It would be a good idea to have your GP or GI do a vitamin and mineral panel if that hasn't already been done. We do sometimes need supplementation while healing as some nutrients do have an impact on the nervous system function. What I find helps me the most is knowing that it is the gluten and it will pass. It is a horrible feeling when it is happening and is hard on ones loved ones.  All you really can do to help her is to remind her that it is the gluten that is making her feel so bad. Try to provide distractions and understanding. If you haven't already do read the Newbie 101 thread at the top of the Coping section it has a lot of good info for you.  These episodes will come less often as accidental glutenings become less frequent. Ask any questions you need and feel free to vent on the tough days.
  • Upcoming Events