• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Hi! Support And Friends Needed.
0

7 posts in this topic

Hi.  My name is Catie and I have been sick a long, long time.  I will try to condense my story and make it as clear as possible.

 

My tummy has always hurt.  At 25, it got dangerous.  The abdominal pain was really scary.  The med that helped was Bentyl, but it was not a cure or even that effective.  Sometimes, I would take a prescription pain killer leftover from my DH's kidney stones.  Mutliple MD's, a positive celiac panel,  following a strict gluten free diet DID NOT improve  the pain AT ALL, and then I landed in the hospital.

 

The gastro told me that I did not have celiacs and I went back on gluten.  The major trigger I could identify for the previous pain was Splenda.  Came off Splenda, and the pain *mostly* went away, but I have diarrhea  EVERY DAY.  This went on for 2 years.

 

Fast forward to the end of January.  I had a checkup at my regular MD's office and I asked him if my tummy pain would ever go away.  He reminded me I had tested positive for celiacs and suggested I go back to gluten free.  

 

In the past week and a half, the diarrhea has been remarkably better, but not gone.  Bowel distention is improved, my girlfriend says it looks like I lost at least 2 inches around the middle.  I am doing more than just gluten free because I really, really want to feel better.  

 

So, I made eggs last night in a cast iron skillet.  Awful.  DH has cooked many a pancake in it.  The pain was so bad that 2 Bentyl took the edge off but I still was super restless, could barely sleep and awoke to MORE tummy pain.  Egad.

 

I understand that this is a process and takes time  I am ok with that.  I feel like I need an older sister.  Does that make sense?  Just a friend to kind of mentor me thru this process.  I am grateful to have found this forum but am nervous about posting as I don't really know the etiquette of forums boards.  Is it OK that I am a newbie and I start a thread, that kind of thing?

 

 

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Welcome,

 

You find out, on the forum, that other people have experienced the very things you do.  We all bumble around a bit at first and learn the hard way!  I wish you well on your recovery.

 

D

0

Share this post


Link to post
Share on other sites

You're in the right place!  This place has provided peace of mind many a time.  Post any time!

0

Share this post


Link to post
Share on other sites

Hi Catie and Welcome!

 

You're definitely in the right place!  Collectively, we can be your big sister and get you through this!  The first few months are the hardest but once you realize how much better you feel you'll know it has all been worth it.  Poke around on the forums - there is tons of good information in here - and post whatever questions you have. 

0

Share this post


Link to post
Share on other sites
Ads by Google:


Thanks y'all.  I really appreciate it!  xo

0

Share this post


Link to post
Share on other sites

Welcome to the board! You will always find friends and support on this forum. Many of have been on this site for years because we find this kind of community support is incredibly important and also because it so important to help out others - we were all in your shoes at one point.

 

Remember: it may be hard now, but once you get the hang of it you will feel amazing!!

 

Welcome! Search around on the board and feel free to ask questions!

0

Share this post


Link to post
Share on other sites




Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,321
    • Total Posts
      935,472
  • Member Statistics

    • Total Members
      64,982
    • Most Online
      3,093

    Newest Member
    RocioC
    Joined
  • Popular Now

  • Topics

  • Posts

    • Wow, I was on the EXACT same stuff, it is basically medical speed, amphetamine. Yeah it will motivate you but it is addictive and withdrawal is a real nightmare with it. I use EXTRA b-vitamins and give myself a extra kick with a red eye coffee sometimes now days to avoid those pills. And I do not want to go through that withdrawal again. I would honestly suggest a 5-hour no sugar energy shot and some cocoa nibs and hemp seed snack mix over those pills anyway. Sorta what gets me by now days.  THIS is going to sound really really odd, but I makes this great sprinkle for depression and energy made with ground cocoa nibs form ciro bru, hemp protein powder, and a sweetener like pyure, or xylitol and just sprinkle it over or in stuff. The blend of hemp and cocoa really helps my mood in combination with the Stress & Energy mix. I think the magnesium I take daily also contributes. I honestly can not get mad, sad, or depressed no matter what for the past 3 weeks.....like the most messed up stuff has happened and I just go "Oh well it will work out" ....and I mean some really bad stuff has happened this month lol.
    • So I have one pesky symptom that in the last few years has cropped up and never gone away. Lack of motivation to do some very basic things. So basic it's embarrassing to talk about. I barely manage to do a lot of adult tasks these days. It's a real stretch. It's like something is blocking me. Anyways, so I'm talking to my psych and she suggests adderal for it as we've tried lots of different avenues for this issue and none have helped. My bipolar is totally under control, for an entire year so far. My anxiety is ok with a script. It'll be even better once I get one major thing that I won't get into here taken care of. But I'm not the super motivated, extremely hard working person I used to be. It really changed basically when I got sick about 9 years ago. So, does anyone else take adderal? I've got the pills next to me but worried to take them. Not sure why. Any help, advice, reassurance is welcome.
    • Yeah I need someone to attend with me, I had someone else but they canceled on me. The hotel room is booked from the 16th-20th of August. I can pick up from the airport, greyhound, or train station and drop off if need be, room is booked from the 16th technically a day before the convention so you have time for sightseeing. Room is a double queen and you get your own bed. It is a anime convention with many Japanese guest this year, I will provide snacks, meals, etc with the room fee and I will accept paypal, credit card, or cash. Meals will be made decided on after talking with whoever is rooming with a diet build around what you can eat. The room will be gluten, corn, dairy, and peanut free. I do bring a chef kit with me including griddle, steamer, rice cooker, etc.
    • No anti-sm(lupus)? Yes, anti dsDNA is for SLE(lupus). No ENA panel,anti-RNP, anti-SS-A, anti-SS-B, anti histone, scl-70, etc? I'd ask for a referral, if you feel that there is something going on. I think that would be a logical step because of the positive ANA and lack of investigation. 1:640 is definitely positive. 
    • My MCH is always high too. Have some other oddities but doc always say labs are great as well. I dont think they ever really bother with the MCH. I'm also in testing and showed negative on the same ones you did. My IGA is fine though. As far as the other tests, maybe your girls GI can order or you could try your primary. 
  • Upcoming Events