• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Gluten Free 5 Weeks Some Symptoms Getting Worse
0

33 posts in this topic

Yes, sadly some of us do get worse before we improve.  If you have not, remove dairy -- it is the most common intolerance for those with Celiac Disease.

 

Hang in there!

1

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Hi again ,

when I couldn't get up from the sofa , I drank the broth from the chicken , please ask someone to boil up a chicken for you so you can at least drink the broth ,

also your dietician can they prescribe food drinks for you whilst you cannot eat , I had some prescribed and they did help ,

plenty of water and the chicken broth will help until your doctors find out what the problem is for you

x x jiggles

0

Share this post


Link to post
Share on other sites

Wow!  We have a lot in common!  I recently posted a thread similar to yours asking for help.  I'm now six months out from diagnosis and I feel worse all the time!  And, like you, I continue to lose weight.  I haven't seen any blood, and I'm not in the bathroom quite as many times as you are, but other than that we are quite similar.  It seems like every week I discover something else that I can't seem to tolerate.  I've had two endoscopes a year apart.  The first showed "slight inflammation - non specific, and I was told that I didn't have celiac.  The more recent one "moderate inflammation", and this time I was told I tested positive. I can't find a protein drink either, so the dietician told me to try pea protein powder. I haven't tried it yet.  I've been drinking MuscleEgg for awhile.  You can order it online.  It's simply pasteurized egg whites that comes frozen.  I seem to tolerate it well.  I have an appointment with a new gi in a few weeks.  I'm hoping he can help figure out if there's an additional problem.  I hope you see some improvement soon.  Keep writing!  I'm so anxious (for both of us) to hear what you find out.

0

Share this post


Link to post
Share on other sites

My nutrient levels fell somewhat after I went gluten free.  They have since gone up again.  Keep on it you should get somewhere!

 

D

0

Share this post


Link to post
Share on other sites

Just an update for anyone who was wondering. My colonoscopy was completely normal so I was sent for a CT Scan to rule out lymphoma. I do not have lymphoma, however, during the CT scan they found inflammation near the end of my small intestine (not anywhere outside of the small intestine though) indicating Crohn's disease and recommended a colonoscpy to confirm. My GI, however, thinks the CT scan is a false positive because my colonoscopy was negative and has prescribed hysocyamine to stop the diarrhea. I am having a second opinion given by a separate hospital that has a highly regarded celiac program since I have many symptoms of crohn's including eye issues. I also dropped below the minimum sodium levels so I was tested for addison's disease too waiting on the results. My b12 also tanked and I am dumping more than half of my shot in 3 days or less so I was moved to every two weeks again. I think we are finally getting somewhere it's just slow going...

0

Share this post


Link to post
Share on other sites

I'll be thinking of you....

0

Share this post


Link to post
Share on other sites

This is old but I know when people google these or search the forums there aren't always follow ups when the problem was solved. We solved my problem, it was not crohn's or hidden gluten, I have fructose malabsorbsion as well as bit of a sorbitol intolerance. Ironically I figured it out at the gluten free expo because most of the samples were sweetend with HFCS or Fruit Juice and it left me sick as hell since I wasn't eating processed food the samples wreaked havoc on my insides even more so than day to day eating. I met with my celiac specialist GI shortly after and she confirmed it. At 4 months post diagnosis my ttg IgA went down and was a weak positive and both DGP's went back to normal/negative so I am following the gluten-free diet carefully. It is not SIBO it's just fructose malabsorbtion. So I am now Gluten free, dairy free, very low fructose/fructans, low sorbitol/polyols. Within 24 hours of going fructose and sorbitol free in addition to gluten free and dairy free I was feeling like a new person. Thank you for all of the advice here. Hopefully if anyone pulls this up with the same situation this info can help them.

0

Share this post


Link to post
Share on other sites

Very glad you found another piece of your puzzle and hope you continue to improve.

Thanks for the update.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,362
    • Total Posts
      935,695
  • Member Statistics

    • Total Members
      65,039
    • Most Online
      3,093

    Newest Member
    Alii
    Joined
  • Popular Now

  • Topics

  • Posts

    • My GI told me that everything looked great visually (endoscopy), but my biopsies revealed moderate to severe intestinal damage.  ☹️  You just have to wait for the pathologist's report.  
    • I ate there July 23 2017, had cheeseburger with gluten free bun (charged extra 2 dollars) which tasted very good. dressed burger with tomato, pickles and onion and even mayo with no unpleasant affects.  I appreciated the choice of gluten-free bun.  Also, the young man serving us asked if I wanted my French fries on the same plate as my burger, I guess their fries are not fried in a dedicated fryer.  Nice of him to give me a heads up though.  I am NCGS not proved as celiac disease.
    • I think you will find that aromatherapy is safe.  I have had the same thing when having facials many, many times over 12 years gluten free and have never, ever had a problem. I have never found any aromatherapy that contained gluten. I am a very sensitive, diagnosed Celiac.  As far as lotion is concerned, you won't have a problem if you wash your hands, which I cannot imagine NOT doing before eating.  That is Celiac 101.  You only have to screen hand lotions for personal use and anything that goes onto the lips.  Eye drops also should be gluten-free as you put that directly into the eye and it can make it's way down into your gut. Hair salons........no, never had a problem.  If a salon uses good products, they will not contain gluten. Again, in 12 years of checking anything new they use, never found any gluten component.  I color and trim my hair once a month and I'm pretty sure I'd be dead by now if I ingested gluten for so often for 12 years.  You really do not want to ingest anything that is sprayed and I can't say that I have.  It's a bad idea for many other reasons besides gluten. I know you are newly diagnosed and yes, you need to check ingredients BUT gluten is not everywhere. If you check whatever they are using and it does not contain the dreaded gluten, then do not worry about it.
    • There is a lot of information on site about living with Celiac disease. A good idea is to take a look at the "coping with" section and the "newbie info 101" thread. There is a lot of good information about cross contamination and proper nutrition.
    • Sorry to hear about your no meat, Ennis. It sucks his celiac disease messes with people in different ways. Matt I was living on sweet potatoes but now they bloat me, which is odd. Avocado's would be to much fat, I think. I'm three weeks in today, and the past few days my C has improved. So that's some good news. I do know I need to stop worrying about the weight loss. So easy to Google and worry. If I could get back to lifting weights and reclaim my shoulders I'd be more calm and less stressed. For now I'll just have to get used to being lean. Anyone up for a symptom swap. My off on fatigue has shown up. I will swap for headaches brain fog. R Be well all
  • Upcoming Events