• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Rate this topic

Recommended Posts

My son is 6, he wieghs 39 pds  and has not gained a pound in 3.5 years. He has always had cronic consipation, headaches,  Throwing up weekly, terribly smelly stools when he does poop, bad stomach pains that makes him hurl over in fetal postion screaming of pain, he has vitaligo ,which is a form of autoimmune diese, he has a rash, always icthy. He has had these problems since he was about 2, doctors said it was his vegas nerve that was sentive and being constipated. 

 

After some reasearch of my own, blood test that said Allergy Level was high and protien was low. I beleive he has Celiac.GI doctor said it was probable. We are waiting on a a biopsy to confirm. I have had him Gluten free for about  a week now and he is pooping regular and doesnt complain as about stomach. After eating gluten free yogurt he had a fit with tummy and complaining of heart hurting. So I have taken him off of dairy.

 

My question is do yawl think I on the right track? Also he is a very picky eater he will eat fruits and granola all day but I have a really hard time getting protien in him? Is there a childrens protien  supplement for children? Any advice is appreciated

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


He needs to be on gluten until all testing is done per the University of Chicago Celiac Center and then you can remove the gluten.  Please research their website as they are one of the leaders in Celiac Disease Research and treatment.

 

By the way, granola is not gluten free as oats can be cross contaminated (unless it's certified gluten free granola).  

 

Welcome and search the forum for ideas and suggestions!   Read the newbie section under coping.  It's a great place to start.

Share this post


Link to post
Share on other sites

On the pickiness question, maybe our experience will provide some comfort: My DD is extremely picky, and she basically refused all food at many meals in the weeks before diagnosis without ever explaining why. We were on the total wrong track in trying to get the bottom of her food refusal, but fortunately her celiac was diagnosed through a routine screening related to another health condition. Once we initiated the gluten-free diet, she started eating normal to large quantities again (including lots of eggs, fruits, and veggies). DD still has a pretty limited range of foods that she likes, but she will now eat a TON of the food she does like.

 

I'm sure this varies hugely among kids, but the gluten-free diet basically cured our DD's lack of appetite within a week of starting it. Something to keep in mind if your child does turn out to have celiac.

 

As for the protein supplement question: does your GI have a dietitian in his practice that you can call? The dietitian should be able to offer some suggestions, and also flag other nutrient deficiencies that can arise on the gluten-free diet.

Share this post


Link to post
Share on other sites

Prior to diagnosis, one of our best ways to get a somewhat decent breakfast into our daughter was a Carnation Instant Breakfast. In our search to find a replacement for that, I ordered a product from VitaCost.com called Spiru-Tein for kids only (not sure on that spelling). I thought it was a perfectly suitable replacement, but our Miss Particular didn't agree. I don't know if she would have been less particular at age 6, but I think it's worth a try!

Share this post


Link to post
Share on other sites

If you want him tested for Celiac, he must be eating gluten.

http://www.cureceliacdisease.org/archives/faq/how-much-gluten-should-be-consumed-prior-to-being-screened-for-celiac-disease

How much gluten should be consumed prior to being screened for celiac disease?

It’s best to continue a normal, gluten-containing diet before being screened and diagnosed. If a gluten-free diet has been followed for more than a few weeks, then we recommend eating at least 1 serving of gluten (1/2 slice of bread or a cracker, for example) every day for 12 weeks prior to a blood test and 2 weeks prior to a biopsy. This is often referred to as a “gluten challenge” and should be done under the care of a medical professional.

Share this post


Link to post
Share on other sites
Ads by Google:


What do you mean by picky eater?  PICA, iron defiency that causes the desire to chew non-food items, can seem like picky eating.  Chewing food and then spitting it out is a sign of pica.

Share this post


Link to post
Share on other sites

Just wanted to say hang in there! We dealt with unexplained stomach pain and headaches for a while too. 3.5 years without gaining a pound is a bit scary. Has his pediatrician started anything( tests) about it? Did he go through Celiac blood panel yet? If not, as others have mentioned he needs to stay on gluten diet until after biopsy for all of it to be valid.

I am so sorry you are going through this. :(

Share this post


Link to post
Share on other sites

Yes to what everyone else said . . . especially about not changing his diet until all testing is done.  Sounds like he already had the endoscopy?  Then you are all set.

 

Just some encouragement:  my son was a picky eater until after his celiac diagnosis . . . a few months gluten free and he is now the most adventurous eater in the house.  I think he just didn't enjoy eating much because it seemed like every time he ate he didn't feel well.

 

Also - celiacs in the early stages of healing are often sensitive to dairy products.  Often, once the gut has healed, you can reintroduce dairy without a problem.

 

What about fruit smoothies with protein powder?  We do a lot of smoothies using coconut milk and I add greek yogurt for protein.  If you are avoiding dairy, try adding other sources. Peanut butter, frozen bananas, and coconut milk smoothies are delicious.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,949
    • Total Posts
      943,643
  • Member Statistics

    • Total Members
      67,316
    • Most Online
      3,093

    Newest Member
    George Hurry
    Joined
  • Popular Now

  • Topics

  • Posts

    • The thing is.  They didn't have to say anything about gluten free food.  They didn't have to put that mean-spirited dig in there at all.  They could have just showed the awesome thing for serving food.  People with food sensitivities would have just substituted gluten-free or peanut free food in their minds.  Just like anyone would have said - I hate cucumbers - so my party tray won't have that on it.
    • Thank you so much! So is the positive IgG pretty indicative of celiac (could it be anything else)? I havent read any of those posts on diet, so I’ll have to start. Honestly, I’m happy to start gluten free. At the start of this, I was so bummed out that I’d have to give up foods. But confirming that it is gluten making me sick, I don’t want to eat it anymore. Kind of nice I got a “farewell to gluten” tour but so happy it’s over. Unfortunately, there is only one office here in Asheville, NC and it’s renowned for being awful (just look at the reviews!!) I’m on Nashville a lot for work, so maybe I can look for a good doctor there instead. 
    • So PC is not celiac pc? I'm sure fictitious  "Tina" in the ad will discard her "immature anti celiac ad friends" like used napkins and find new friends that are less grossed out by her autoimmune disease.  Or perhaps fictitious "Tina " will patiently educate the baffon friends in the ad. Tina's choice. Another company made a bad choice to join the gluten dude list of celiac bashing in the public media  Hey PC want to attempt to get out of dog house ? contact me for where to send my check For your next marketing idea/ script for your commercial  Your next commercial show two tables one designated gluten-free and one non gluten-free show 2 different color coded themes one gluten-free and non gluten-free example red for gluten-free and black non gluten-free ( whatever game day team colors- catch my drift) showing gluten-free cake served on red plate and non gluten-free cake on other table on black plate. Yo support celiac awareness and safety. this marketing tip per AWOL  contact me for my royalty checks  👍  
    • .....damn I thought I had run into stupid doctors on my own, yours flip flop more then a ADHD kid and I should know that one. Yep celiac and gluten-free for life....get copies of all your POSITIVE test and compile them in a folder, write the others off as doctor stupid was tripping on acid. Get copies of all your medical records and personally take them to a new doctor....might want to look through them first and make sure the idiot did not put anything in there wrong. Well if you can anyway......
      Congrats on the diagnosis and sorry you found one of the idiots, you get those a lot in life just sucks when it is someone in charge of your well-being and health like that. I take it you have already been through the newbie 101 thread and gone to a whole foods diet to boost up the healing, cleaned out the kitchen and set for the haul.  
    • Also I should add that in the 12 weeks, my vitamin d plummeted and now am deficient. Would you guys accept a celiac diagnosis (I am pretty confident that I have it- I was sad before the challenge that I couldn’t eat gluten anymore. Now after the challenge i am EXCITED to never eat it again as I feel like such crap now) or can a positive diamodated Gliadin  IgG indicate anything else? Or is it specific to celiac? I am happy to get a diagnosis,  but want to make sure it’s the right one. I wish I trusted my doc more (example- 3 days ago they called and said congrats, no celiac, u can eat gluten!! The doc signed off on it. But I looked at my results and pointed out that the deamidated IgG levels were not reported yet. The doc said whoops my bad. The next day they came back positive and I got another call & they said, nevermind, no gluten, you’re positive! They are idiots). 
  • Upcoming Events