• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

How Long After Being Glutened Do You Feel It?
0

15 posts in this topic

I think I've been glutened...but I'm not sure. I've been feeling better daily until today. Had the big D after a week and a half without. Stomach cramping, achy joints, fuzzy head. Awful...tired...etc.

I ate out for the first time on Saturday...felt fine then, Sunday and yesterday. Then today it's awful. Could it take this long? I've looked at everything else I've eaten and prepared myself and I don't see anything. Thanks

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


How long have you been gluten free? It seems like people's reactions happen faster when they've been gluten-free for longer periods of time. When I first started eating gluten-free, I made lots of mistakes and never had any symptoms. A few years later, I was glutened and it took about 4 hours for the explosive D to hit. I've been gluten-free for more than 10 years and the last time I was glutened (last year), it was within an hour and incredibly violent as my body simply purged itself for hours and hours from both ends.

0

Share this post


Link to post
Share on other sites

How long have you been gluten free? It seems like people's reactions happen faster when they've been gluten-free for longer periods of time. When I first started eating gluten-free, I made lots of mistakes and never had any symptoms. A few years later, I was glutened and it took about 4 hours for the explosive D to hit. I've been gluten-free for more than 10 years and the last time I was glutened (last year), it was within an hour and incredibly violent as my body simply purged itself for hours and hours from both ends.

It's been about 4 weeks. I feel like I've been so careful.
0

Share this post


Link to post
Share on other sites

That's awful luvs2eat! I've heard the symptoms can get worse but I am not there yet. Icelandgirl, I've been gluten-free for 15 months. The third and fourth days are the most obvious for me. The first thing it impacts is my ability to think so it sometimes takes the symptoms getting a head of steam for me to realize it's happened. That's unless I try out a restaurant (which is rare) and if I leave really dopey & tired, I know I've been hit. When I don't expect it, I become clueless until the bigger symptoms happen. Also, I have found that stress and lack of sleep can give me some symptoms. Sometimes, I feel generally unwell because the gut hasn't had time to fully heal and sometimes it's because I'm sensitive to a food other than gluten. The first year was hard for me.

I hope you feel better soon!

Cali

0

Share this post


Link to post
Share on other sites

That's awful luvs2eat! I've heard the symptoms can get worse but I am not there yet. Icelandgirl, I've been gluten-free for 15 months. The third and fourth days are the most obvious for me. The first thing it impacts is my ability to think so it sometimes takes the symptoms getting a head of steam for me to realize it's happened. That's unless I try out a restaurant (which is rare) and if I leave really dopey & tired, I know I've been hit. When I don't expect it, I become clueless until the bigger symptoms happen. Also, I have found that stress and lack of sleep can give me some symptoms. Sometimes, I feel generally unwell because the gut hasn't had time to fully heal and sometimes it's because I'm sensitive to a food other than gluten. The first year was hard for me.I hope you feel better soon!Cali

Thanks Cali. Ugh...it feels icky. And it's so disappointing after starting to feel better. I think I'm gonna have to blame it on the restaurant and it took me 2 1/2 days to feel it.
0

Share this post


Link to post
Share on other sites
Ads by Google:


Just throwing this out there... any chance it's a bug?

0

Share this post


Link to post
Share on other sites

Just throwing this out there... any chance it's a bug?

I'm not a doctor so I don't know I guess. It feels much more like everything I was feeling before going Gluten-Free. Even my lower left rib cage is sore again and that was going away.
0

Share this post


Link to post
Share on other sites

Looking over everything I've eaten leading up to what I think is glutening I also realized that I had oats for the first time since my diagnosis. They were Bob's Red Mill gluten free. So...The 2 thoughts are either being glutened by Red Robin and feeling it about 48 hours after or the oats and feeling it less than 2 hours after.

Does anyone else have delayed reactions? How long does it take to get better? And is there anything I can do to help it?

Thanks so much for any advice.

0

Share this post


Link to post
Share on other sites

I haven't touched oats since my diagnosis so I can't say for sure whether I could tolerate them.  But both my uncle and my mother have Celiac and neither of them can tolerate oats - even the certified gluten-free ones.  They both react the same to them as they would to wheat or anything else with gluten in it.  (Which is why I haven't gone near them.)

0

Share this post


Link to post
Share on other sites

I haven't touched oats since my diagnosis so I can't say for sure whether I could tolerate them.  But both my uncle and my mother have Celiac and neither of them can tolerate oats - even the certified gluten-free ones.  They both react the same to them as they would to wheat or anything else with gluten in it.  (Which is why I haven't gone near them.)

I really didn't think anything of it. I was making meatloaf and it called for oats and I had gluten free ones. Now I'm suffering.

Have you ever been glutened? What does it feel like? How long does it last? Does anything help? I was feeling so encouraged and this feels like a setback and it's hard emotionally.

0

Share this post


Link to post
Share on other sites

I really didn't think anything of it. I was making meatloaf and it called for oats and I had gluten free ones. Now I'm suffering.

Have you ever been glutened? What does it feel like? How long does it last? Does anything help? I was feeling so encouraged and this feels like a setback and it's hard emotionally.

 

I was glutened once when I took a little tiny taste of tabuli that I got mixed up with another salad.  The tabuli had bulgar wheat in it - and I couldn't have eaten more than about 6 or so tiny pieces of it.  A few hours later I went to bed and shortly afterwards was woken up with chills and cold sweats - like what you get when you come down with the flu or get food-poisoning.  Thankfully I didn't experience any intestinal symptoms and was able to force myself to go back to sleep.  The next day I couldn't concentrate, was still freezing cold, and completely exhausted.  I was tired and "off" for about 5 days and was irritable for a couple weeks or so.  I was so pissed at myself!

Everyone seems to have different reactions though - partially based on how much gluten they actually consume.  Seems like a person's reaction will vary over time too.

Many Celiacs can tolerate gluten-free oats, but some of us can't.  Sorry you had to learn the hard way.

Did you put ketchup on the meatloaf?  I don't think all ketchup is gluten-free either.

 

Edited to add: Forgot to mention, my first sign that I was going to get symptoms was bloating.  Before I went to bed my stomach blew up like a balloon - I swear I looked pregnant.

0

Share this post


Link to post
Share on other sites

I was glutened once when I took a little tiny taste of tabuli that I got mixed up with another salad.  The tabuli had bulgar wheat in it - and I couldn't have eaten more than about 6 or so tiny pieces of it.  A few hours later I went to bed and shortly afterwards was woken up with chills and cold sweats - like what you get when you come down with the flu or get food-poisoning.  Thankfully I didn't experience any intestinal symptoms and was able to force myself to go back to sleep.  The next day I couldn't concentrate, was still freezing cold, and completely exhausted.  I was tired and "off" for about 5 days and was irritable for a couple weeks or so.  I was so pissed at myself!Everyone seems to have different reactions though - partially based on how much gluten they actually consume.  Seems like a person's reaction will vary over time too.Many Celiacs can tolerate gluten-free oats, but some of us can't.  Sorry you had to learn the hard way.Did you put ketchup on the meatloaf?  I don't think all ketchup is gluten-free either. Edited to add: Forgot to mention, my first sign that I was going to get symptoms was bloating.  Before I went to bed my stomach blew up like a balloon - I swear I looked pregnant.

Thanks...I'm bummed. The ketchup was gluten free. So either the oats or red robin. I'm so painfully gassy and constantly burping and uncomfortable and the D. Hopefully it starts to get better soon? I just went and got digestive enzymes since a lot of people on here say those help.

I guess I want to think it was glutening because I don't want to have something else be wrong with me. Between late December and late January I received 4 diagnoses...Uterine polyps, gallbladder polyps, h pylori and celiac. I'm 2 weeks out of gallbladder removal and uterine polyp removal and was really ready to have my life maybe start feeling normal. Sigh.

0

Share this post


Link to post
Share on other sites

I'm not a doctor so I don't know I guess. It feels much more like everything I was feeling before going Gluten-Free. Even my lower left rib cage is sore again and that was going away.

when i get that lower left under the rib cage pain, it is a dead giveaway.  my reaction time is also 2 days - very frustrating!  lolz - and the last time i ate out, it was (ta daaa!)  red robin.  i had eaten there before with no issue, but they got me the second time i tried it.  i start getting a headache and gradually, joint pain, fatigue, the big D, all those lovely symptoms i lived with for years.  annnd for me it takes 14 days to get back to normal.  sorry you got hit - hope you feel better (everybody's duration of symptoms seem to be different, as well...)

0

Share this post


Link to post
Share on other sites

I feel it before my dinner is over.  Takes the question work right out of the equation.

 

Colleen

0

Share this post


Link to post
Share on other sites

when i get that lower left under the rib cage pain, it is a dead giveaway.  my reaction time is also 2 days - very frustrating!  lolz - and the last time i ate out, it was (ta daaa!)  red robin.  i had eaten there before with no issue, but they got me the second time i tried it.  i start getting a headache and gradually, joint pain, fatigue, the big D, all those lovely symptoms i lived with for years.  annnd for me it takes 14 days to get back to normal.  sorry you got hit - hope you feel better (everybody's duration of symptoms seem to be different, as well...)

OMG...The rib pain. I hate it. Does anything help with it? It's a constant.

I was so excited to go out to eat...first time since being diagnosed. The waitress was very knowledgeable. And now this...ugh.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,751
    • Total Posts
      932,196
  • Member Statistics

    • Total Members
      64,213
    • Most Online
      3,093

    Newest Member
    rrwalter25
    Joined
  • Popular Now

  • Topics

  • Posts

    • I've had them about six or seven times at several different Starbucks locations.  My sister has, also.  Neither one of us have had any signs of getting glutened. They are served in a parchment paper bag that should be handed to you straight from the oven sealed.  I've heard many internet complaints about the bags being dusty, too many ingredients, unhealthy, etc., but honestly, they are pretty darned tasty! And, when you are traveling and hungry, they are even tastier.  They sell out quickly at most Starbucks, but I've been able to purchase one as late at 6 p.m.  
    • I wish they didn't use " gluten" as a headline.  People abuse and starve children for a variety of " reasons".  gluten-free was just one they picked, it could have been paleo or kosher or whatever... 
    • Ugh!  This again..... first ...it was one person...not a study... just someone's speculation. if I am remembering correctly - no one actually tested the retainer. The kid was a 12-16 yr old an drew could have gotten caught eating gluten, etc, etc, etc.   And then those internet folks who love to spread " bad news" or  use that stuff to further their purpose, jumped on it.  And then let's talk to a chemist or plastic scientist - if the plastic leaches our actual proteins, like gluten, wouldn't the plastic piece break down after a while? welcome to the world of Celiac internet myths.   adding - none of the Celiac Centers, Associations, etc have warned people not to use a retainers.
    • Ok, so, here goes. Today I had my teeth cleaned, and this was my first time there since I've been diagnosed. I double checked that their tooth polish is gluten free, and they told me it's safe. I feel fine. Tonight I was at Walmart looking at buying some mouth wash (I was scolded, as per usual), and I Googled gluten free mouth wash. I stumbled upon an article about gluten free products and dental stuff. The person mentioned a study that was released stating that a child's retainer was making her sick because it contained gluten - in the plastic. I had braces when I was a teenager and had them out about 12 years ago. I got one of those old school retainers. The kind with the plastic part for the roof of your mouth and the metal wire that goes around the front. It's cuuuuute. Let me tell you. Anyway, I decided to delve into this more, because I don't know if my retainer is safe now. I found an old thread on here where it looks like people were debating this, and for the most part, seasoned Celiac's agree that it's a bunch of bunk.  Do people have opinions? I know that many of you do a great deal of research into Celiac and that you may have some information. I'm looking for real science - not fear tactics. I wear my retainer religiously, My mom paid almost $5,000 for my teeth to look like they do, and I'm not about to let them get shnaggled again. I'm 29, but they still move if I don't wear my retainer. I've been debating getting a new one - one of the plastic ones that you can't really see, but I don't want to shell out the dough for that until I have to. I'm shocked mine has held up as long as it has.  When I was diagnosed back in November my TTG was >100. Two months later it was 12. So I assume that my little retainer isn't causing much damage, as that's pretty significant. I have to go back in July to have my blood tested again. In the meantime, is this something to stew over? I have no idea where my retainer was made, or who made it. It was a long time ago and I bet if I called my orthodontist to find out who the manufacturer was they wouldn't be able to tell me. Maybe I'm wrong. It was 2004 or 2005, so I'm assuming they won't know at this point. But I could check if people think I should. I feel fine, for the most part. But I was a silent Celiac when I was diagnosed so I don't trust my body to not tell me if I'm being glutened. I'll just say that.  Thanks!
    • They are awesome! But they are not available at Starbucks at some places--like hospitals. Pity!
  • Upcoming Events