• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

How Long After Being Glutened Do You Feel It?
0

15 posts in this topic

Recommended Posts

icelandgirl    81

I think I've been glutened...but I'm not sure. I've been feeling better daily until today. Had the big D after a week and a half without. Stomach cramping, achy joints, fuzzy head. Awful...tired...etc.

I ate out for the first time on Saturday...felt fine then, Sunday and yesterday. Then today it's awful. Could it take this long? I've looked at everything else I've eaten and prepared myself and I don't see anything. Thanks

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


luvs2eat    60

How long have you been gluten free? It seems like people's reactions happen faster when they've been gluten-free for longer periods of time. When I first started eating gluten-free, I made lots of mistakes and never had any symptoms. A few years later, I was glutened and it took about 4 hours for the explosive D to hit. I've been gluten-free for more than 10 years and the last time I was glutened (last year), it was within an hour and incredibly violent as my body simply purged itself for hours and hours from both ends.

Share this post


Link to post
Share on other sites
icelandgirl    81

How long have you been gluten free? It seems like people's reactions happen faster when they've been gluten-free for longer periods of time. When I first started eating gluten-free, I made lots of mistakes and never had any symptoms. A few years later, I was glutened and it took about 4 hours for the explosive D to hit. I've been gluten-free for more than 10 years and the last time I was glutened (last year), it was within an hour and incredibly violent as my body simply purged itself for hours and hours from both ends.

It's been about 4 weeks. I feel like I've been so careful.

Share this post


Link to post
Share on other sites
CaliSparrow    21

That's awful luvs2eat! I've heard the symptoms can get worse but I am not there yet. Icelandgirl, I've been gluten-free for 15 months. The third and fourth days are the most obvious for me. The first thing it impacts is my ability to think so it sometimes takes the symptoms getting a head of steam for me to realize it's happened. That's unless I try out a restaurant (which is rare) and if I leave really dopey & tired, I know I've been hit. When I don't expect it, I become clueless until the bigger symptoms happen. Also, I have found that stress and lack of sleep can give me some symptoms. Sometimes, I feel generally unwell because the gut hasn't had time to fully heal and sometimes it's because I'm sensitive to a food other than gluten. The first year was hard for me.

I hope you feel better soon!

Cali

Share this post


Link to post
Share on other sites
icelandgirl    81

That's awful luvs2eat! I've heard the symptoms can get worse but I am not there yet. Icelandgirl, I've been gluten-free for 15 months. The third and fourth days are the most obvious for me. The first thing it impacts is my ability to think so it sometimes takes the symptoms getting a head of steam for me to realize it's happened. That's unless I try out a restaurant (which is rare) and if I leave really dopey & tired, I know I've been hit. When I don't expect it, I become clueless until the bigger symptoms happen. Also, I have found that stress and lack of sleep can give me some symptoms. Sometimes, I feel generally unwell because the gut hasn't had time to fully heal and sometimes it's because I'm sensitive to a food other than gluten. The first year was hard for me.I hope you feel better soon!Cali

Thanks Cali. Ugh...it feels icky. And it's so disappointing after starting to feel better. I think I'm gonna have to blame it on the restaurant and it took me 2 1/2 days to feel it.

Share this post


Link to post
Share on other sites
Ads by Google:


icelandgirl    81

Just throwing this out there... any chance it's a bug?

I'm not a doctor so I don't know I guess. It feels much more like everything I was feeling before going Gluten-Free. Even my lower left rib cage is sore again and that was going away.

Share this post


Link to post
Share on other sites


Ads by Google:


icelandgirl    81

Looking over everything I've eaten leading up to what I think is glutening I also realized that I had oats for the first time since my diagnosis. They were Bob's Red Mill gluten free. So...The 2 thoughts are either being glutened by Red Robin and feeling it about 48 hours after or the oats and feeling it less than 2 hours after.

Does anyone else have delayed reactions? How long does it take to get better? And is there anything I can do to help it?

Thanks so much for any advice.

Share this post


Link to post
Share on other sites

I haven't touched oats since my diagnosis so I can't say for sure whether I could tolerate them.  But both my uncle and my mother have Celiac and neither of them can tolerate oats - even the certified gluten-free ones.  They both react the same to them as they would to wheat or anything else with gluten in it.  (Which is why I haven't gone near them.)

Share this post


Link to post
Share on other sites
icelandgirl    81

I haven't touched oats since my diagnosis so I can't say for sure whether I could tolerate them.  But both my uncle and my mother have Celiac and neither of them can tolerate oats - even the certified gluten-free ones.  They both react the same to them as they would to wheat or anything else with gluten in it.  (Which is why I haven't gone near them.)

I really didn't think anything of it. I was making meatloaf and it called for oats and I had gluten free ones. Now I'm suffering.

Have you ever been glutened? What does it feel like? How long does it last? Does anything help? I was feeling so encouraged and this feels like a setback and it's hard emotionally.

Share this post


Link to post
Share on other sites


Ads by Google:


I really didn't think anything of it. I was making meatloaf and it called for oats and I had gluten free ones. Now I'm suffering.

Have you ever been glutened? What does it feel like? How long does it last? Does anything help? I was feeling so encouraged and this feels like a setback and it's hard emotionally.

 

I was glutened once when I took a little tiny taste of tabuli that I got mixed up with another salad.  The tabuli had bulgar wheat in it - and I couldn't have eaten more than about 6 or so tiny pieces of it.  A few hours later I went to bed and shortly afterwards was woken up with chills and cold sweats - like what you get when you come down with the flu or get food-poisoning.  Thankfully I didn't experience any intestinal symptoms and was able to force myself to go back to sleep.  The next day I couldn't concentrate, was still freezing cold, and completely exhausted.  I was tired and "off" for about 5 days and was irritable for a couple weeks or so.  I was so pissed at myself!

Everyone seems to have different reactions though - partially based on how much gluten they actually consume.  Seems like a person's reaction will vary over time too.

Many Celiacs can tolerate gluten-free oats, but some of us can't.  Sorry you had to learn the hard way.

Did you put ketchup on the meatloaf?  I don't think all ketchup is gluten-free either.

 

Edited to add: Forgot to mention, my first sign that I was going to get symptoms was bloating.  Before I went to bed my stomach blew up like a balloon - I swear I looked pregnant.

Share this post


Link to post
Share on other sites
icelandgirl    81

I was glutened once when I took a little tiny taste of tabuli that I got mixed up with another salad.  The tabuli had bulgar wheat in it - and I couldn't have eaten more than about 6 or so tiny pieces of it.  A few hours later I went to bed and shortly afterwards was woken up with chills and cold sweats - like what you get when you come down with the flu or get food-poisoning.  Thankfully I didn't experience any intestinal symptoms and was able to force myself to go back to sleep.  The next day I couldn't concentrate, was still freezing cold, and completely exhausted.  I was tired and "off" for about 5 days and was irritable for a couple weeks or so.  I was so pissed at myself!Everyone seems to have different reactions though - partially based on how much gluten they actually consume.  Seems like a person's reaction will vary over time too.Many Celiacs can tolerate gluten-free oats, but some of us can't.  Sorry you had to learn the hard way.Did you put ketchup on the meatloaf?  I don't think all ketchup is gluten-free either. Edited to add: Forgot to mention, my first sign that I was going to get symptoms was bloating.  Before I went to bed my stomach blew up like a balloon - I swear I looked pregnant.

Thanks...I'm bummed. The ketchup was gluten free. So either the oats or red robin. I'm so painfully gassy and constantly burping and uncomfortable and the D. Hopefully it starts to get better soon? I just went and got digestive enzymes since a lot of people on here say those help.

I guess I want to think it was glutening because I don't want to have something else be wrong with me. Between late December and late January I received 4 diagnoses...Uterine polyps, gallbladder polyps, h pylori and celiac. I'm 2 weeks out of gallbladder removal and uterine polyp removal and was really ready to have my life maybe start feeling normal. Sigh.

Share this post


Link to post
Share on other sites
notme!    287

I'm not a doctor so I don't know I guess. It feels much more like everything I was feeling before going Gluten-Free. Even my lower left rib cage is sore again and that was going away.

when i get that lower left under the rib cage pain, it is a dead giveaway.  my reaction time is also 2 days - very frustrating!  lolz - and the last time i ate out, it was (ta daaa!)  red robin.  i had eaten there before with no issue, but they got me the second time i tried it.  i start getting a headache and gradually, joint pain, fatigue, the big D, all those lovely symptoms i lived with for years.  annnd for me it takes 14 days to get back to normal.  sorry you got hit - hope you feel better (everybody's duration of symptoms seem to be different, as well...)

Share this post


Link to post
Share on other sites
GF Lover    201

I feel it before my dinner is over.  Takes the question work right out of the equation.

 

Colleen

Share this post


Link to post
Share on other sites
icelandgirl    81

when i get that lower left under the rib cage pain, it is a dead giveaway.  my reaction time is also 2 days - very frustrating!  lolz - and the last time i ate out, it was (ta daaa!)  red robin.  i had eaten there before with no issue, but they got me the second time i tried it.  i start getting a headache and gradually, joint pain, fatigue, the big D, all those lovely symptoms i lived with for years.  annnd for me it takes 14 days to get back to normal.  sorry you got hit - hope you feel better (everybody's duration of symptoms seem to be different, as well...)

OMG...The rib pain. I hate it. Does anything help with it? It's a constant.

I was so excited to go out to eat...first time since being diagnosed. The waitress was very knowledgeable. And now this...ugh.

Share this post


Link to post
Share on other sites


Ads by Google:


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      107,916
    • Total Posts
      938,665
  • Member Statistics

    • Total Members
      65,841
    • Most Online
      3,093

    Newest Member
    Jon baker
    Joined
  • Popular Now

  • Topics

  • Posts

    • ....OK ADMIN just delete this one just another slap in the face article. " After demand from the neighborhood, they will soon add gluten-free options, though these crepes will be prepared on the same griddle, so they're intended for those with mild celiac disease or those who just prefer to eat gluten-free. " 

      Sorry Numskull but "mild celiac" FFS there is no such thing, bloody residue smaller then crumbs and you get months of heighten antibodies an damage. This is very misleading and can lead to people newly diagnosed hurting themselves. NOW if you have no problem with gluten free oats, you can make a crepe like batter very easy, it is a bit fluffier like a hybrid between pancakes and crepes but try this one.
      I used to use gluten-free Harvest oat flour to make these but as I have adverse reactions to any kind of oats I gave this up. 50g Oat Flour
      1/4 tsp Salt
      1/2 tsp Cinnamon
      1 tbsp Maple syrup
      1/2 cup water
      2 tbsp applesauce
      Mix all ingredients togehter then let sit for 10mins for the it to thicken up before pouring in the pan. I used to cook them like pancakes but can be used for crepes due to the texture.
    • I’m so sorry you feel you must steal, that must be awful. The only thing I might consider is that it can become a habit, especially the self-justification part. Not that I'm recommending it right now for you , but with a ketogenic diet, the body goes into ketosis, not ketoacidosis, which is something that people with Type I diabetes can go into: in addition to their bodies burning fat, they also have insanely high levels of glucose in their blood. There’s no risk of ketoacidosis on a ketogenic diet, and in fact in the old days before insulin, one of the remedies was a ketogenic diet. It’s still often used for seizures as well. Plumbago
    • Hi Mary Anne, They take the skin biopsy from adjacent to a "lesion".  There are many possible symptoms of celiac disease.  DH is the skin rash symptom of celiac disease. It can take a year for itching to go away from what I've read.  Reducing iodine intake during symptoms may help reduce their duration.  You have to be gluten-free for symptoms to subside as DH is an immune reaction caused by celiac disease. A good place top start looking for knowledgable doctors is in a local support group.    
    • ... these crepes will be prepared on the same griddle, so they're intended for those with mild celiac disease or those who just prefer to eat gluten-free. View the full article
    • I have said since diagnosis that there are two places that I never want to be in for fear I would die from what they would feed me. One is a hospital and the other is jail. Fresh or frozen fruits, veggies, fresh meats, eggs, cheeses etc are also the same proce for us as for anyone who isn't celiac. The specialty gluten free baked goods and convience foods are more expensive but we should be eating minimal amounts of those to begin with anyway. I also have a very limited income so I go with eggs in many forms and Thai Kitchen rice noodles with various veggies and canned beans like Garbanzo (Chichi) for protein. Some schools have food banks for students. Check and see if your school has one. There may not be a lot you can eat there but there will be something. Most cities have a food bank or Catholic Charities (you don't have to be Catholic to use their services) that can help.  My local one is good about letting me know when they have safe foods. They also get a lot of fresh produce this time of year. Have you checked into getting food stamps? You can just sign up for those but not the other services and the process is easier if you are not applying for cash help. You mention having your roommates using your pans and silverware and then having to buy new. A good cleaning on the silverware is enough to remove any gluten residues and if the pans are in good condition they will be fine after washing also. You might want to keep your food preperation items in a bin in your room and just wash and put them away after use then you will know only you are using your plates, pans, etc. I realize how important your education is and the need to finish but have you considered  temporarily suspending your studies until your health has improved? I had to do that with only 3 credit hours left in my degree programs. My grades were suffering and it was important to me to keep my high GPA. Talk to your advisor and see if this might be something you can arrange.  If you are in student housing with your roommates also talk to your advisor about the possibility of a move to better quarters. One of my children was put in senior housing as a freshmen to accomodate her need for her own cooking space. Wouldn't hurt to ask. I hope things improve for you soon. Everything about dealing with celiac can be overwhelming for a bit but hopefully things will improve for you soon.
  • Upcoming Events