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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Recently Gluten Free But Having Lots Of Allergic Reactions
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I just came across some information that I thought might be of interest in those who are gluten free but have a lot of symptoms and seem to react allergically to many OTHER foods.

 

There is a somewhat controversial condition known as Histamine Intolerance that is speculated to involve abnormally low levels of DAO, the enzyme that destroys histamine. If histamine levels rise due to this, then they can begin to cause allergic reactions like congestion, headaches, sneezing, itching, rashes, hives, even breathing issues, or stomach and gut problems.  

 

Some women can even experience a cessation of their allergy symptoms when pregnant, because the placenta releases high levels of DAO and so histamine breaks down faster. 

 

The reason this may be of interest to Celiacs or gluten intolerants is because one of the places DAO is found in the membranes of cells lining the small intestine, and in the upper portion of the colon. So people with damage in either of these areas may not be making as much DAO as they normally would. 

 

So if you are recently gluten free, haven't healed up yet, and are having many allergic reactions, it might be worth you while to check out histamine intolerance and a low histamine diet, too. :-)

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Oh, thank you for the link - I haven't seen that one before. :-)

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Oh, thank you for the link - I haven't seen that one before. :-)

 

Looks like there are quite a few of us with this additional intolerance (and oh boy, right?!)  :rolleyes:

 

At least we know what it is, though--trying to figure out what else is at play is maddening, isn't it. 

 

Hope you are feeling better. If I stay away from the high histamines, I sure do. It's the overload that gets me every time.

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Yeah, it does look like that - I wonder how common it will turn out to be whenever it is eventually researched, you know?

 

Very glad to hear that you are doing better. 

 

I'm hopeful for myself. I got a nasty virus and all my symptoms went a bit crazy, unfortunately. :-/  Even on a low histamine diet now, I'm getting things like allergic reactions to exercise, hives from the sunlight on my skin - seriously, what's up with that? 0.o But in some ways, that's kind of a good thing because my symptoms getting so weird and so much worse is what made me go back to my doctor one last time and finally get diagnosed by a new expert in town. And because of that, we got my daughter diagnosed, which makes it all totally worth it to find out something that's going on with her.

 

Do you find that you have histamine overload from normal histamine causing activities, like exercise or stress, or is it more the foods that mess with your histamine levels?

 

 

 

 

Looks like there are quite a few of us with this additional intolerance (and oh boy, right?!)  :rolleyes:

 

At least we know what it is, though--trying to figure out what else is at play is maddening, isn't it. 

 

Hope you are feeling better. If I stay away from the high histamines, I sure do. It's the overload that gets me every time.

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Yeah, it does look like that - I wonder how common it will turn out to be whenever it is eventually researched, you know?

 

Very glad to hear that you are doing better. 

 

I'm hopeful for myself. I got a nasty virus and all my symptoms went a bit crazy, unfortunately. :-/  Even on a low histamine diet now, I'm getting things like allergic reactions to exercise, hives from the sunlight on my skin - seriously, what's up with that? 0.o But in some ways, that's kind of a good thing because my symptoms getting so weird and so much worse is what made me go back to my doctor one last time and finally get diagnosed by a new expert in town. And because of that, we got my daughter diagnosed, which makes it all totally worth it to find out something that's going on with her.

 

Do you find that you have histamine overload from normal histamine causing activities, like exercise or stress, or is it more the foods that mess with your histamine levels?

 

I do not get that reaction from exercise or sun (thank goodness as we have just moved to Florida and that would have been

a bummer )

but Gotta Ski Lisa does. Foods and food additives mess with me. My face and scalp become polka dotted with sores and 

my joints and bones hurts, heart palps, I get racy and suffer  insomnia. I  swell up and look and feel if I have been injected with helium

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Ouch!  Sympathies. 

 

Although OMG - am I remembering right that you get headaches from perfume sometimes? Now it makes sense!

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