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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

So Frustrated With Lack Of Weight Loss- Help!
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14 posts in this topic

I know a lot of people have the same issue- so it is comforting to know that I am not alone- but I am so incredibly frustrated by my body. Maybe someone can shed some light for me.

I was dx with celiacs in June 2012- so I have been gluten-free coming up on 2 years. I was all sorts of vitamin deficient as well but everything seems to be back to normal now. When I was dx I was only 5 months post partum with my second son and I was about 13 lbs above my pre preg weight- with DS1 I gained double and lost it all by 4 months post partum.

Since that time I have tried weight watchers (my old standby), Atkins, just plain eating healthy and calorie counting, working with a nutritionist, and it seems like the scale just will not budge. Since being diagnosed I have lost about 7 of the pounds that I needed to. So that is 7 lbs of pregnancy weight loss WITH diet and exercise over the past almost 2 years- at this rate my kid will be in kindergarten before I finish losing the "baby weight".

I am 5'2'' with a small frame. For the past 3-4 weeks , I have been eating 1200-1400 calories / day. A good balance of carbs, fat, protein with every meal. About 6 meals per day of almost all fresh/ non processed foods- I do most of my own cooking so I know what I am eating. I am working out (walking at 3.5 uphill) for 50 minutes/ 6 days per week. I am walking 10,000 steps per day and according to my pedometer I am burning more calories than I am taking in. And the scale is not budging. I am not even losing water weight. How is this possible? Oh- and my cholesterol is somehow high though I am at a normal bmi (just not my desired weight, working out, and not eating the kinds of food that would raise it).

My thyroid function was fine as of August-/ as were my vitamin levels, I am having blood tests again next week and I am requesting a full thyroid panel- kind of hoping that's the magic bullet.

Any guesses? Suggestions? Words of encouragement?

Thanks so much!

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When I was diagnosed... 10+ years ago... I spent the next year filling myself with the things I COULD eat to make up for the things I could no longer eat. I gained about 40 lbs! The only thing that takes the weight off for me is to cut out the obvious carbs... bread, pasta, baked goods. I just eat lean protein, veggies, fruit, and not a lot of cheese. Seems like all of our "bread" options have more calories (and a higher glycemic index) than regular wheat breads.

 

GO you on the exercise!!

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How old are you? I am the same height, had a baby at 40, nursed for two years, ran, swam and cycled and kept that extra 10 pounds (just gained 26 during pregnancy) until I hit menopause. Peri menopause tends to hold on to fat cells to make up for loss of estrogen from some of my research. I never changed my diet at all during that time. I liked the extra curves and bigger chest. Menopause hit and those extra 10 pounds came right off without dieting.

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I am def not in peri menopause ;). I'm 32 and hoping to ttc again soon for #3. There doesn't really seem to be a physiological answer to this- which is frustrating- I'm kinda hoping the thyroid answers it.

Unfortunately the weight is not in my boobs- as soon as I stopped nursing they deflated :/

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When I was diagnosed... 10+ years ago... I spent the next year filling myself with the things I COULD eat to make up for the things I could no longer eat. I gained about 40 lbs! The only thing that takes the weight off for me is to cut out the obvious carbs... bread, pasta, baked goods. I just eat lean protein, veggies, fruit, and not a lot of cheese. Seems like all of our "bread" options have more calories (and a higher glycemic index) than regular wheat breads.

GO you on the exercise!!

Yeah I def don't eat too many gluten-free prepakaged foods so I don't think that's the answer for me.

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My suggestion to you is based on my experience body building. Start lifting weights. Your metabolism will increase with the amount of muscle you have. Increase your muscle mass = increase your metabolism=increase calorie needs =maintain same calorie intake = weight loss.

 

Also - if you have been doing a similar cardiovascular training for months your body has the ability for metabolic adaptation - meaning the body is used to the exercise you have been performing and adapts, thus you have to work harder.

 

My recommendation is to start lifting weights and change your cardiovascular training. Look up high intensity interval training (HIIT) versus low intensity steady state (LISS).

 

Good luck!

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Thanks for the suggestions. I know a higher intensity workout is probably key. We would like to have another child so I'll hold off on starting that kind of routine until after- but for now I guess I'll just keep on keeping on. I got a new scale and being able to see factions of a lb lost is more encouraging :)

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My suggestion to you is based on my experience body building. Start lifting weights. Your metabolism will increase with the amount of muscle you have. Increase your muscle mass = increase your metabolism=increase calorie needs =maintain same calorie intake = weight loss.

 

Also - if you have been doing a similar cardiovascular training for months your body has the ability for metabolic adaptation - meaning the body is used to the exercise you have been performing and adapts, thus you have to work harder.

 

My recommendation is to start lifting weights and change your cardiovascular training. Look up high intensity interval training (HIIT) versus low intensity steady state (LISS).

 

Good luck!

 

This is a good suggestion to remove the "baby weight", though you may not see much of a difference on the scale.  Anabolic exercise will build muscle mass.  Muscle mass requires a LOT of energy to make, and a lot of energy to maintain.  The scale may not budge much because muscle is heavier by volume than adipose tissue (fat).  You'll notice the difference though because you'll be packing the same weight into a smaller volume.  That said, I wouldn't cut out the cardio excercise.  If your cholesterol is high (specifically the LDL), then its a good idea to keep up a good cardio regimen.

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This is a good suggestion to remove the "baby weight", though you may not see much of a difference on the scale.  Anabolic exercise will build muscle mass.  Muscle mass requires a LOT of energy to make, and a lot of energy to maintain.  The scale may not budge much because muscle is heavier by volume than adipose tissue (fat).  You'll notice the difference though because you'll be packing the same weight into a smaller volume.  That said, I wouldn't cut out the cardio excercise.  If your cholesterol is high (specifically the LDL), then its a good idea to keep up a good cardio regimen.

 

For clarification - I didn't mean stop doing cardio - but change the intensity level. Thanks for expanding on the message Deekle! :)

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you said it just right!  I mentioned it more for AfterAll to make sure that it was clear that anabolic exercise is not a substitute for cardio.

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you said it just right! I mentioned it more for AfterAll to make sure that it was clear that anabolic exercise is not a substitute for cardio.

I understand- no worries. I am pretty muscular as it is. :).I love yoga so I may add that back into my routine- it isn't weight "lifting" but it def builds muscle.

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I was over weight when I quit smoking in January 2013... four months later I was another 25 pounds heavier.. I was 225 pounds. Some time last May I began my diet, I gave up all bread pasta & potatoes.  I lost 10 pounds pretty quick and decided to start riding my bike (peddled my ass off :) ) I also started doing a one hour private per week on a reformer with a Pilates trainer (this was mostly for my back, I have 3 herniated discs). I managed to get to about 200lbs. by thanksgiving.  It was a long slow process but I felt pretty good about it.  Middle of December 2013 I  joined a gym to take the bike classes. Still 200 pounds the first week in January I started 2 one hour private wieght training sessions per week, and I lost 24 pounds in a little over two months, the weight training was key. Actually I am now trying to gain weight, It was like all the sudden lifting the weights kicked my metabolism into high gear. I have slowed down on the number of spin classes that I take, and I have gained back 4 pounds and am trying to stay at my current weight of 180. 

 

Sorry if TMI... But I would encourage you to try some weight training, could just be you will see very quick results too... Its worth a shot and its good for you!

 

 You will figure out what is best for you soon.

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I have been struggling to loose weight too.

For some reason, I gained about 30 lbs during the year before my diagnosis, without changing any of my eating/exercise habits. My energy is quite low, so I don't exercise much, but have tried calorie counting, low fat, etc. and my weight wasn't budging.

Well... I decided to give up dairy because my pre-diagnosis symptoms weren't improving as much as I thought they should be, and believe it or not, I lost 5 lbs in the first week without even trying! My stomach is much flatter and I feel much lighter and more energetic. I know everyone's body is so different and I don't know if you are eating dairy or if it would make a difference for you if you gave it up. I was so surprised at the difference it made for me, so it's pretty obvious my body doesn't like dairy.

Good luck!

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Wow. It sounds like you are doing everything "right" ... except for perhaps weight training.  ... Prior to developing the gluten allergy, I did the "Body for Life" diet/exercise plan. It is 3-months, 90 days... it totally changed my physique and has, I believe, helped my body keep burning fat even when I have fallen off the healthy wagon in years since. Now--here's the kicker. It is an EXTREMELY rigid plan with regard to diet and exercise. So with the new baby I don't know if it is something you can manage right now, but please at least check it out. The diet part would be super easy to do gluten-free,  so no worries there.  90 days completely changed my muscle structure and even after going off of it I kept the weight off.  

 

Best of luck!

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