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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

My Dr Asking What Tests To Order To Screen For celiac disease! Need Info!
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7 posts in this topic

HI.  My infertility specialist that we used a while back...is asking for the proper tests to order for screening his patients for celiac disease!  He listened!  I am not knowledgeable on what specific tests he needs to order.  Does anyone knowledgeable know what I can tell him?  After hearing my story since my 2 IVF procedures with him...and now my body is closer to normal...he wants to learn more.  NEED INFORMATION AND ADVICE TO GIVE HIM!!!  Especially if it's related to infertility, hormones and PCOS.  I need an arsenal of articles from reputable sources for him to learn all that he can.  My email is s.rivotto@comcast.net if anyone needs to email me articles.  I am not sure that screening will take care of everyone, but it's bound to hit on a few people here and there.  I wish that there was more that I could tell him about all of us that are symptomatic with NO positive results!  Thanks a million.  Is anyone else shocked that a doctor listened and wants to add it to his practice...WOW! 

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I'm still too new at this to have a ton of input but just wanted to congratulate you on getting through to him and benefiting his future patients. That's awesome!

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Total Serum IgA

Tissue Transglutaminase IgA -- (commonly called tTG-IgA)

Tissue Transglutaminase IgG (tTG-IgG)

Endomysial IgA (EMA-IgA)

Demiadated Gliadin Peptide - IgA (DGP-IgA)

Demiadated Gliadin Peptide - IgG (DGP-IgG)

 

older Gliadin Tests:

Anti-Gliadin Antibody IgA (AGA-IgA)

Anti-Gliadin Antibody IgG (AGA-IgG)

 

Nutrient testing is also important as Celiac Disease prevents proper absorption of many nutrients.  My Celiac Doctor runs the following during the diagnostic process and at annual checks:

 

B1, B2, B6, B12, D, K, Iron, Ferritin, Copper Zinc

Complete Metabolic Panel - shows various other nutrients

 

Complete Blood Count - can reveal other associated issues like elevated liver enzymes and more.

 

Most doctors do not run all of the above -- but should.

 

If I had my way...everyone with fertility, gastro, autoimmune issues along with anything labeled mental/behavioral would get a full screening....we can dream...one doctor at a time ;)

 

Good work getting one to listen and learn - it is not easy - but the best doctors are open to expanding their knowledge...even when the information comes from their patients!  Each of my doctors is used to receiving updated research in their inbox and at my appointments.  

 

Spread the word -- unfortunately it is up to us to advocate when opportunities are presented.

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That's awesome, thank you!  I have started to collect data for many of my doctors, but the infertility specialist is the first that I have approached.  He is a very good doctor:)  My new neurologist is more informed about gluten, because he has the same issues.  He says that we are beyond medical borders at the moment.  I am going to forward info to my old neurologist and family physician.  I could still use ANY and ALL articles that any of you can find!!!  You know that doctors like to see studies and hard facts from credible sources!  Keeping them informed of research is a great idea!  I just need to know how I stay informed of the latest research?

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You can look in the publication section of this forum for some good links or search pubmed for particular items of interest to you.

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Lisa...do you know anything about which labs are best to run tests?  I read an article about the MD who owns Enterolab, and he has celiac disease.  Other than that...I think that which labs do a better job...makes a difference.  Right?

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I have never researched particular labs.  Please let me know if your research finds documented issues.  Thanks :)

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