• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
mikeypick1

Fecal Transparent Cure For Celiac Disease?

Rate this topic

Recommended Posts

Hi!

WARNING! EXTREMELY HIGH ICK-FACTOR!

I'm new to Celiac Disease, and thus this site as well. Though I'm still waiting on blood work to come back, I'm nearly a week into a gluten-free diet and can already tell a major difference. My doctor told me to do some research on a gluten free diet and I must admit that I have been experiencing an amalgamation of excitement for a conclusion to a 15 year search, a fear of the implications of having celiac disease, and an intense dread of having a lifetime of a gluten-free diet.

All that said, in researching cure research progress, I came across several inferences and references to a cure. Unfortunately, however, that cure is a fecal transplant from a perfectly healthy donor. Here is a starter link to one article, if anyone is curious:

http://www.mayoclinic.org/medical-professionals/clinical-updates/digestive-diseases/quick-inexpensive-90-percent-cure-rate

It seems to take a good bit of research to piece together tidbits from here and there to get an idea of where this procedure is headed.

There is also a video on YouTube of a woman showing how to do this from home.

The only drawback I am aware of, so far and beyond the obvious ICK-factor, is that antibiotics could necessitate another transplant.

I am wondering if anyone has any experience or insight into this. If a fecal transplant really can cure celiac disease, what an equally gross and amazing thing! What could this mean for those with celiac, and what can we do to further this along?

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I haven't read the specifics but I don't see how it could " cure" Celiac. Celiac is an autoimmune disease and good germs in your intestines won't change that. It may be that it helps get everything back to a normal & happy flora so you feel better and heal the intestines.

Went back and looked at the article again. Looks like some docs are making claims of it helping celiac in some way but there isn't a lot of research on it. Doesn't sound like it has been declared a cure. Sorry.

Edited by kareng
  • Upvote 1

Share this post


Link to post
Share on other sites

I haven't read the specifics but I don't see how it could " cure" Celiac. Celiac is an autoimmune disease and good germs in your intestines won't change that. It may be that it helps get everything back to a normal & happy flora so you feel better and heal the intestines.

Went back and looked at the article again. Looks like some docs are making claims of it helping celiac in some way but there isn't a lot of research on it. Doesn't sound like it has been declared a cure. Sorry.

Interesting... I was under the impression that celiac was as a result of the digestive tract failing to properly digest Gluten properly, and the improper digestion prompted the immune system to attack the byproduct (or something like that). So theoretically if you were able to correct the digestive process, the body would no longer need to reject the improperly digested gluten.

Share this post


Link to post
Share on other sites

Ideally we would need to find the people whom have had the procedure or know someone who has. Of course that's probably much easier said than done.

Share this post


Link to post
Share on other sites

This article is about fecal transplants curing C. Diff infection which is a completely different thing than celiac disease.   

 

It does mention that some doctors claim that this cures many other things with celiac thrown in the list but it says these are highly anecdotal and there is no real evidence.  

 

"Its use in C. difficile has been well established, but much of the rest is mainly anecdotal,"

 

Anecdotal means there is no actual scientific evidence to support these claims.

 

There is no current cure for celiac disease.  The only treatment is a gluten-free diet.  There are some drug trials underway for medicines you can take that will lessen symptoms upon accidentally ingesting gluten.  I understand the urge to seek out a miracle cure, but do understand the internet is full of pseudoscience and false promises.  A fecal transplant will not change the fact that your body produces antibodies against itself in response to exposure to certain things.

 

For a good quick breakdown on how they do a fecal transplant (FYI The article is from 2008 so it does not contain references to the more current C. Diff. research) and from this information you can infer that doing it properly/safely at home is out of the question unless you have a lot of scientific/medical equipment in your house, here is a good link:  http://www.sciencebasedmedicine.org/fecal-transplants-getting-to-the-bottom-of-the-matter/

 

...I really can't believe there are people out there that rudimentarily do this on their own at home.  That is ridiculously risky.

 

Mikey, if you want to seek out more information on this, no one can stop you.  But I urge you to not act on it, especially at home, unless it is done by an actual reputable medical professional in a controlled research setting.  Even then, just because someone has MD after their name does not mean they are doing everything according to good science.

Share this post


Link to post
Share on other sites
Ads by Google:


Totally agree with LauraTX.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,950
    • Total Posts
      943,644
  • Member Statistics

    • Total Members
      67,318
    • Most Online
      3,093

    Newest Member
    Nitucha
    Joined
  • Popular Now

  • Topics

  • Posts

    • Respected consumer advocacy group Public Citizen is calling for the FDA to ban the sale Benicar, due to the potential for side effects to which Public Citizen refers as "life-threatening." According to Public Citizen, olmesartans risks outweigh any benefits. Should Benicar be banned? View the full article
    • The thing is.  They didn't have to say anything about gluten free food.  They didn't have to put that mean-spirited dig in there at all.  They could have just showed the awesome thing for serving food.  People with food sensitivities would have just substituted gluten-free or peanut free food in their minds.  Just like anyone would have said - I hate cucumbers - so my party tray won't have that on it.
    • Thank you so much! So is the positive IgG pretty indicative of celiac (could it be anything else)? I havent read any of those posts on diet, so I’ll have to start. Honestly, I’m happy to start gluten free. At the start of this, I was so bummed out that I’d have to give up foods. But confirming that it is gluten making me sick, I don’t want to eat it anymore. Kind of nice I got a “farewell to gluten” tour but so happy it’s over. Unfortunately, there is only one office here in Asheville, NC and it’s renowned for being awful (just look at the reviews!!) I’m on Nashville a lot for work, so maybe I can look for a good doctor there instead. 
    • So PC is not celiac pc? I'm sure fictitious  "Tina" in the ad will discard her "immature anti celiac ad friends" like used napkins and find new friends that are less grossed out by her autoimmune disease.  Or perhaps fictitious "Tina " will patiently educate the baffon friends in the ad. Tina's choice. Another company made a bad choice to join the gluten dude list of celiac bashing in the public media  Hey PC want to attempt to get out of dog house ? contact me for where to send my check For your next marketing idea/ script for your commercial  Your next commercial show two tables one designated gluten-free and one non gluten-free show 2 different color coded themes one gluten-free and non gluten-free example red for gluten-free and black non gluten-free ( whatever game day team colors- catch my drift) showing gluten-free cake served on red plate and non gluten-free cake on other table on black plate. Yo support celiac awareness and safety. this marketing tip per AWOL  contact me for my royalty checks  👍  
    • .....damn I thought I had run into stupid doctors on my own, yours flip flop more then a ADHD kid and I should know that one. Yep celiac and gluten-free for life....get copies of all your POSITIVE test and compile them in a folder, write the others off as doctor stupid was tripping on acid. Get copies of all your medical records and personally take them to a new doctor....might want to look through them first and make sure the idiot did not put anything in there wrong. Well if you can anyway......
      Congrats on the diagnosis and sorry you found one of the idiots, you get those a lot in life just sucks when it is someone in charge of your well-being and health like that. I take it you have already been through the newbie 101 thread and gone to a whole foods diet to boost up the healing, cleaned out the kitchen and set for the haul.  
  • Upcoming Events