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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Help? Strange Rash. Doctors Can't Identify. Photos.
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3 posts in this topic

Hi! This is my first post :)

 

I'm still in the middle of the diagnosis process (blood work for food allergies-negative, colonoscopy/endoscopy-scheduled, elimination diet-successful).

 

To make a long story short, I'm highly sensitive and have been off gluten (all grains except rice) and dairy for 11 months. I wanted to try reintroducing gluten (while controlling for dairy) at least one more time before having all of the unpleasant GI tests done.

 

The first time I reintroduced gluten since my initial gluten challenge was this February (9 months after going gluten-free). All of my usual symptoms returned, except that I got a weird new rash on both of my thighs. I only had one serving/day of gluten for four days and the rash showed up after a couple of days. So I stopped eating it, and the rash went away.

 

Then I reintroduced it again for four days in mid-March (10 months) and the rash reappeared on my thighs, again after a few days. So I stopped eating it and went in for allergy testing--negative.

 

Then last week, I was glutened from a cross contaminated olive oil "mayonnaise" jar (I'm that sensitive), and the rash reappeared. 

 

I've had a total of 4 doctors look at it and none of them have any idea what it is. 

 

It doesn't itch, it's completely smooth/flat to the touch, and it doesn't blanch or fade when I press on it. My only guess is that it's a mild case of petechiae or purpura, as it looks like I'm bleeding under my skin. It's primarily on my thighs, but I have a bit on my hips as well. And it does go away, albeit gradually.

 

My PCP/internist said she could refer me to a dermatologist, but she thinks that it's more imperative that I get in to the GI for a colonoscopy/endoscopy. 

 

Any ideas? I'm so sick of being sick :(

 

https://www.flickr.com/photos/101624582@N05/13588883273/

https://www.flickr.com/photos/101624582@N05/13588841195/

https://www.flickr.com/photos/101624582@N05/13585386044/

https://www.flickr.com/photos/101624582@N05/13585005635/in/photostream/

https://www.flickr.com/photos/101624582@N05/13585384024/in/photostream/

Edited by MsHolland
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I have a petechia type rash on the tops of my feet, "crawling" up to my ankles, and a smidge on the tops of each hand.  My GP/GI said he didn't have a clue,  This was about a year ago, and now it is back.  The first time, it started on my left hand and I thought it might be a nickel allergy to a cheap watch.  Then it went to my feet.  I was taking Biotin at the time and the GP/GI thought maybe it was that, but he said go see a dermatologist. I never did.  I put aloe gel on it, and also hand lotion to soothe it.  I still don't know what it is, but most of the stuff I read leads to allergies.  

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I have a petechia type rash on the tops of my feet, "crawling" up to my ankles, and a smidge on the tops of each hand.  My GP/GI said he didn't have a clue,  This was about a year ago, and now it is back.  The first time, it started on my left hand and I thought it might be a nickel allergy to a cheap watch.  Then it went to my feet.  I was taking Biotin at the time and the GP/GI thought maybe it was that, but he said go see a dermatologist. I never did.  I put aloe gel on it, and also hand lotion to soothe it.  I still don't know what it is, but most of the stuff I read leads to allergies.  

 

Interesting.

 

I intentionally haven't been taking any vitamins lately--even though I was very excited that I found some nice gluten-free, DF, corn free, soy free, prenatal multivitamins! I've decided that I'm basically just going to let my body get as sick as it wants to, and then let the doctors figure out what's wrong with me :( Should be tons of fun.

 

Apart from being frightening, my rash isn't irritating or uncomfortable, so I haven't put anything on it other than my usual Cetaphil body lotion. It is spreading though. It started on my thighs, then it appeared on my hips, and now it's on my lower legs. And it's symmetrical on both sides of my body. I know that's a characteristic of DH, but this rash doesn't itch. 

 

I'm almost positive it's petechiae. My guess is it's a symptom of a vitamin K deficiency from malabsorption. But it's definitely my body bleeding under the skin. It looks just like the second photo on this webpage:

 

http://insidetheclinic.com/petechial-rash-pictures-symptoms-causes-treatment/

 

Have you been allergy tested, Singer?

Edited by MsHolland
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