• Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

My Wife's Test Results And Questions
0

Rate this topic

3 posts in this topic

Recommended Posts

My wife has been feeling terrible all of 2014: bloating, loose bowels, floating, light coloured stools, general aching, abdominal cramping (especially LLQ), fatigue, loss of libido, feelings of depression and anxiety. Many symptoms started mid 2013, but they have gotten worse this year.

 

She had a blood test for celiac, and here are the results:

 

tTg-Iga Ab 5

tTg-IgG Ab 3

DGP-IgA Ab 162

DGP-IgG Ab 3

 

Result Range indication for tTG and DPG

Negative < 20

Weak Positive 20-30

Moderate to Strong Positive >30

 

Test results: Positive

 

Feelings towards test results: :,(

 

My first question is: Could anything other than Celiac produce these results? How positive is the test (90%, 99%, 99.9%)?

 

She will have a GI appointment where they will do a biopsy in a month or so (date not confirmed yet). So far this week, she has been off gluten and it seems already she has noticed improvement. The GI's office wants her to keep eating gluten until the appointment (the receptionist said that it might be an allergy and not Celiac). What are your thoughts? Can she just start eating gluten again a week before the appointment if need be, or does she have to feel terrible for another month?

 

I'm sure she'll create her own account here soon, but I had a bit of time, so I thought I'd ask on her behalf. Thanks community.

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Hi CeZaR,

 

She should keep eating gluten until the testing is completed.  She might be able to get in sooner if they have a standby list for openings.  Often people have worse symptoms from returning to eating gluten after being off it for awhile.  So stopping gluten for a couple weeks and restarting it won't be fun.  She doens't need to eat a lot fo gluten.  They often say something like 2 slices of wheat bread per day.

 

DGP is deminated gliaden protein antibodies.  It is very specific and very low chance of a false positive.  Plus she had symptoms change after stopping gluten.  That means that gluten is casuing a reaction for some reason.

 

She might feel somewhat better if she stops eating dairy now.  That won't affect her celiac testing.  But often people have problems with dairy at first.  She can also try taking pepto bismol   If she has problems with trapped gas she can try peppermint tea.

Share this post


Link to post
Share on other sites

That DGP IgA tests is 93-96% specific to celiac disease as seen on page 12 of this report: http://www.worldgastroenterology.org/assets/export/userfiles/2012_Celiac%20Disease_long_FINAL.pdf  That's pretty specific, especially combined with those classic celiac disease symptoms you listed. It's not uncommon for celiacs to test positive in only a few tests, or even just one so don't worry about those others being negative. The DGP tests in particular are very good at picking up early celiac disease unlike the tTG tests.

 

She should keep eating gluten prior to the biopsy. Most doctors recommend a minimum two week gluten challenge prior to testing; some want as much as 4 weeks. If she needs to go a bit lighter on the gluten now just make sure to add more gluten (about 2 slices of bread per day) back into her diet about three weeks prior to testing. The more gluten she eats now, the better chance of damage showing up in the biopsy.

 

The comment about the allergy makes no sense at all. That receptionist has no clue!  The allergy response is IgE based and not related to the IgA and IgG immune response that is tested for in celiac disease.  It is possible to have a wheat allergy and a gluten sensitivity (like celiac disease) but the tests she had done would not show an allergy... It would be like taking a urine sample to check your blood counts - totally unrelated. ;)

 

Ditto the the dairy idea. About half of all celiacs are lactose intolerant when diagnosed (the damaged villi can't make lactase) but many celiacs regain the ability to digest milk sugars after they have healed, which usually takes at least 6 months.

 

Welcome to the board!

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,133
    • Total Posts
      939,841
  • Member Statistics

    • Total Members
      66,113
    • Most Online
      3,093

    Newest Member
    cb1105
    Joined
  • Popular Now

  • Topics

  • Posts

    • We were in Santorini and Athens in August 2015.   We found eating gluten free easy in Greece.   Their cuisine involves fairly simply ingredients, olive oil, salt, and herbs.   My celiac daughter can eat almost all the grilled meats and vegetables.   Obviously you have to avoid the pita.   Also, be careful of the gyro meat, because some places threw beer in their marinade.   My daughter enjoyed lots of grilled fish, seafood, and meats there. We found the Greeks very friendly and accommodating, when we explained that we have to avoid gluten, the servers knew what that is, and were happy to accommodate us. Airport is different.   I have the habit of calling the airline a couple of week before the flight to make sure they have gluten-free meals for my daughter.   But I always pack backups for long flights.
    • You'll get to the point where you can eat other things, you just have to give it time. Can you do eggs? Hard boiled eggs. They make fast snacks and are highly portable. If you make nut butters, you can just eat it by the spoonful.  I don't like "normal" coconut macaroons, too wet for me, ick! I found this recipe though which drives me insane --- sooooooo good I about swallow my tongue. http://www.foodnetwork.com/recipes/alton-brown/toasty-coconut-macaroons-recipe-1912139 Don't know if you like them or not but re-fried beans. I NEED my carbs!!!!! If I don't get carbs, I will get weak & shaking 30 minutes after eating. I can't eat every 30 minutes!!! So I eat a lot of re-fried beans. I make a big vat & then portion into containers & freeze. If you have or get a stick blender, it will make super fast work of mashing those beans up. Only takes 2 minutes or less. I use olive oil in mine & lots of it -- need that fat. 
    • Coconut, almond butter, and cocoa nib fat bombs...I use plant fats to do it. You can make some great snacks out of fresh almond butter, shredded or coconut flour, and cocoa nibs. Sweeten with stevia for little dough like balls of goodness. Oh you miss potato chips, two options here I like to make my own protein chips with pea protein, or I can have 2-4 protes chips (vegan pea protein  chips made by a company) but they have to be eaten in moderation. Coconut chips....yeah I get Lets' Do Organic ones I can snack on a hand full of them or throw a handful of cocoa nibs in my mouth for snacks. If you like meat, try making jerky. get a dehydrator season your own and just do it.....lucky you can eat meat. I miss making roast in a crock pot....I used to make some of the best shredded meats. My old smoker.....I could make some of the best ribs and roast EVER. The jerky can be made and taken for snacks on the road or while out, crack open a can of spinach (canned unsalted delmonte does not bother me) or pack some stewed greens and have some jerky tear it up stir it in canned keto on the go. Other lovely thing are tuna and salmon if the canned bother you I often find them too salty to enjoy I have taken some and smoked it or dipped it in liquid smoke then cooked in a baking dish then loaded in to the dehydrator. I find doing this I can have that little bit of fish when I want without worry of spoilage (sucking on it and chewing it for a long time make it really satisfying for me) ....SOO doing this next week to try the fish again. Speaking of fish...since I perfected keto bread in my bakery this month......I think I might try making a tuna sandwich with avacado mayo....not had a tuna sandwich in over 5 years.....
    • I am a newly diagnosed celiac and am traveling abroad for the first time since starting the diet. I will be going to Greece in the spring. I was wondering if anyone had any tips for eating gluten free abroad or at airports? Thanks! 
    • Yeah I've wondered a bit if I'm not getting all the other B vitamins from food alone and if they'd do me well. Magnesium content in the keto vitals isn't a lot. I try to get some more through food but I doubt it's optimal. I might have to look into that stuff. Interesting about the meats. Unfortunately I need the fat, especially if I'm gonna continue trying this keto thing for awhile, give it a chance to work. I did know about the difference in omega content, but since starting this diet I've been supplementing with fish oil to offset the omega 6's. Hope you'll be able to eat meat again soon, even if in small amounts. So much this. Every day I want to get up and do anything, and can't and it sucks. I want to climb the walls, get away from myself... Ugh, this takes too long, and I'm too impatient. Yeah, looks like I have to cook everything. I figured I'd at least be able to eat raw baby spinach. I need SOMETHING I can just grab and eat, but it gives me the same slightly itchy mouth that fruit gives me. I've been allergic to fruit forever... Don't have this problem with my steamed broccoli and cauliflower. I already cook everything else I eat. (and it's all organic, real food) So annoying to have to spend half my day cooking, not that I have anything else I can do. But what do I do when (or if) I get healthy again and am like, out somewhere? Damn I miss potato chips. I'll tweak a few things here and there and keep trying.
  • Upcoming Events