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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

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Currently just over 5 months gluten free with some symptoms getting worse during healing process. Also new symptoms which might be related to rheumatology.

 

 

Out of curiosity, did anyone else notice symptoms being much worse just before your monthly cycle arrived or also perhaps around the time your body was trying to ovulate? If so, did that get better with time? Did this happen to you after going gluten free? Which kind of symptoms were worse for you during that time?

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I actually always had really bad GI symptoms around the time my period would start. I just chalked this up to 'hormone changes' but now I know the gas & constipation (ugh) were due to celiac and somehow just got worse around that time. 

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I have celiac and lupus and mentioned to my rheumatologist that when I an PMSing everything just gets a little worse.  He said inflammation increases at that time and especially with lupus patients (lupus is an inflammatory disease) that is not uncommon.

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Every month I get back pain (often sciatic), migraines, fatigue, and some D. It's a bit better than it used to be, but not by a huge amount. I get the same symptoms, minus D but with cramping around ovulation... on the bright side it made timing trying to conceive pretty easy.  LOL ;)

 

I did not notice any monthly effect on my arthralgias.

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Let me say that the first year is the roughest. The first year after going GlutenFree I glutened myself a lot & reactions were tenfold compared to before diagnosis. I also started to get cold sores on a regular basis near my period that I always had to stave off, which didn't happen previous. Have you been tested for vitamin & mineral deficiencies? That's a huge problem during the healing process cause body may not be absorbing from food or of you are taking supplements. I started getting vitamin B shots and taking rest of what I needed with dropper vitamins underneath my tongue. Also make sure you're getting enough zinc n vitamin D as well. Plus there are a wealth of fruits, veggies and herbs that help w/inflammation & the arthritis. Walnuts, lemon, asparagus, garlic & cauliflower are just a few. Have you tried an elimination diet? Sugar, dairy, soy, corn, etc...

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Kirsten - I'm pretty much down to plain meat, fruits and vegetables. I was told tonight that recent blood work confirms that I also have lupus. So this could be why. I've been beyond diligent with my diet. I have been tested for deficiencies and was tested for more earlier this week. We'll see how they look. My Vit D was real low in the fall as well as my iron. Both have improved.

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My entire digestive system has always cleaned itself out during the first two days of my period.  I always figured it had to do with all the muscle contractions going on in the area and being that everything is sort of connected... the bowels just kinda got in on the action too.  (Almost like a monthly spring cleaning.)  My sister is the same way and she doesn't have Celiac (that she knows of anyhow).  My OBGYN (a few different ones actually) have always said that this is normal and very common.  But then again... doctors say that about a lot of things that may be common but aren't in fact "normal".

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