• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Is A Gi That Specializes In Celiac Necessary If Not Seeking Diagnosis?
0

17 posts in this topic

Is seeing a Celiac GI specialist important if I'm not seeking diagnosis? My current doctor has recommended me to a new GI doc. I told her I didn't want a doctor who wasn't up on Celiac and she told me he was a good doctor.

Nine years ago, I had an adenoma polyp removed and that GI doctor was "blown away" that I had that at my age. The only reason I had the colonoscopy is because of the undetermined 2-month stomach illness after returning from Mexico. Three years later (six years ago), I had another one and I got the all clear - no colonoscopy for another five years.

I'm a year late getting my third colonoscopy and know I need to get in there. I have not been diagnosed with Celiac and do not know if there is anything a Celiac specialist would look for outside the bounds of an ordinary GI doctor.

If I hadn't have been down so many paths with doctors who missed things, I wouldn't be concerned. I know a colonoscopy can't determine Celiac and that's not why I'm going (I've tried but I cannot complete the gluten challenge). I just don't want to go to someone who doesn't have keen knowledge on what to look for if there WAS something a person with Celiac might be more predisposed to having/developing. I don't want to screw up on this but I haven't read anything that would indicate a specialist is warranted.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Is seeing a Celiac GI specialist important if I'm not seeking diagnosis? My current doctor has recommended me to a new GI doc. I told her I didn't want a doctor who wasn't up on Celiac and she told me he was a good doctor.

Nine years ago, I had an adenoma polyp removed and that GI doctor was "blown away" that I had that at my age. The only reason I had the colonoscopy is because of the undetermined 2-month stomach illness after returning from Mexico. Three years later (six years ago), I had another one and I got the all clear - no colonoscopy for another five years.

I'm a year late getting my third colonoscopy and know I need to get in there. I have not been diagnosed with Celiac and do not know if there is anything a Celiac specialist would look for outside the bounds of an ordinary GI doctor.

If I hadn't have been down so many paths with doctors who missed things, I wouldn't be concerned. I know a colonoscopy can't determine Celiac and that's not why I'm going (I've tried but I cannot complete the gluten challenge). I just don't want to go to someone who doesn't have keen knowledge on what to look for if there WAS something a person with Celiac might be more predisposed to having/developing. I don't want to screw up on this but I haven't read anything that would indicate a specialist is warranted.

 

 

I don't know why someone without Celiac would need a Celiac specialist to get a colonoscopy for polyps.  Even a Celiac doesn't need a Celiac specialist to get a colonoscopy to check for cancerous colon polyps.

0

Share this post


Link to post
Share on other sites

I don't know why someone without Celiac would need a Celiac specialist to get a colonoscopy for polyps. Even a Celiac doesn't need a Celiac specialist to get a colonoscopy to check for cancerous colon polyps.

I guess what I'm saying is, I don't know what I don't know and have doctor anxiety because of my experiences the last ten years. Nurses told me to get tested for Celiac but I trusted the doctor knew what he was doing and never brought it up. The doctor I had did an endoscopy in '08 (+ lots of other tests) and only checked for H. Pylori. Now I could kick myself for not having had some discussion with him. He asked me if I ever lost weight with no explanation (and I ALWAYS have an explanation because I'm literal). That was the extent of Celiac testing. I answered one question wrong and that was that even though I took him pictures of me in childhood looking emaciated while sitting in front of him weighing 95 lbs. Then I spent years spending my limited energy in doctor's offices and having labs drawn frightened of what I didn't know. Still, never one test to check for Celiac. My husband ended up my caregiver for years and I don't want him to go through that again if I can help it.

I know a GI doctor is trained to check for polyps. What I don't know is if there would be anything a Celiac specialist would look for outside of that scope.

I am nervous about doctors. My mom is on hospice (dying of Parkinson's that was misdiagnosed as Alzheimer's) and I am sensitive right now about just living beyond her. I have gone from blind faith to zero faith. Neither of those positions are healthy views but here I am. It is what it is. I just want to feel safe in knowing I don't have to KNOW anything in particular and can just let the new doctor do his job.

If all GIs are equal in the realm of colonoscopies, that's the answer I'm looking for.

0

Share this post


Link to post
Share on other sites

There is no need to get any follow up for celiac except blood tests. If blood tests remain positive, they might want to re- endoscopy. A colonoscopy has nothing to do with Celiac.

http://www.cureceliacdisease.org/archives/faq/my-antibodies-havent-returned-to-normal-after-i-was-diagnosed-with-celiac-disease-should-i-do-another-scope

0

Share this post


Link to post
Share on other sites

Thank you.

0

Share this post


Link to post
Share on other sites
Ads by Google:


Cali,

When was the last time your ferritin was checked? If you have been gluten and dairy free for over a year, you should have seen improvement in your ferritin level ( maybe help with a celiac disease diagnosis too). If it was recent, then I would push for an endo and a colonoscopy to determine the inability to store iron or have your blood work checked even if the GI was not a celiac expert. You might have a genetic anemia like me.

Maybe a new GI can find other issues that will resolve your problems. My GI is prey clueless about celiac disease . I honestly think he had either just attended a conference or read an article about celiac disease when I arrived on his doorstep. He just gave me a list of gluten-free restaurants. I am not even going back for blood work (it has been a year) as I know I am in good compliance having lived with a gluten-free eater for 13 years. Plus, my blood test was barely positive for celiac disease despite my moderate to severe intestinal damage. I can tell that I am improving since my anemia has resolved.

Sorry to hear about your mom.

0

Share this post


Link to post
Share on other sites

Hey Lady,

That's good to hear that your anemia has resolved! Do you take iron supplements?

My hemoglobin was 7.9 and Ferritin was 1 when it was first discovered in '09. I had 10 iron infusions and the Ferritin bounced up to 150 before plummeting back down. After three years, my hematologist said I was one of two patients he didn't know WTH was going on. I'd imagine that I would have been tested for the genetic stuff but do not know. I have my notebook of tests for the years we were working to square that piece away. I was put on Rx oral iron and that helped. When I was taken off for five weeks, my hemoglobin went from 12.2 to 11.3 which is a really fast drop.

The last test I took with my new doctor was July '13. It was eight months since going gluten-free and my Ferritin was 7 (I think it dropped a little bit). However, my hemoglobin was something like 12.3. My new doctor (haven't seen hematologist since going gluten-free) said that was strange and that my body must be using all the iron stores to build up my hemoglobin (don't quote me on that - I was still very sick and the appointment was over an hour long). Typically, there has been a positive correlation between Ferritin level and hemoglobin. This time the Ferritin went down and my hemoglobin either stayed the same or increased.

I think I have an appointment set for next month and she will probably run everything again. I will be 18 months gluten-free. My vitamin D (10) and B6 were low too and I've been taking supplements. *edited: actually, the lab req is in my car. My phone will tell me when to go! I completely forgot! :D

She asked me if I'd seen my hematologist lately and I told her no. He was my best doctor of the team but just kept scratching his head and getting irritated at my GI doc. I don't know if I still need to see him.

Thank you for the condolences. I realized I was panicking today and focused here. I lost five lbs in a few days and am afraid I'll start circling the drain. It goes hand in hand with my mom. I am eating but just stressed a lot. If I wait a few more months for the colonoscopy (instead of sticking with the May deadline) the few extra months aren't going to matter if something of concern is there. It would add stress if I kept to that schedule with what is on my plate right now. I need to just take . it . easy and b-r-e-a-t-h-e.

Thank you for your suggestions. I feel like a babe in the woods at the doctor's office. If I don't feel well, I'm useless and if I am feeling better that particular day, I'm crazy happy about it. My doctor said to enjoy it when the figurative rays of sun stream from the clouds in my life and to notice, there are no rays without clouds so enjoy them as they are, take them in. They appear sporatically and don't take it as a sign of spontaneous healing and then over do it (typical me). One day the clouds will part and I'll have sunshine once again. I love that analogy and had forgotten it until now.

What kind of bloodwork would I ask the GI to run?

Cali,

When was the last time your ferritin was checked? If you have been gluten and dairy free for over a year, you should have seen improvement in your ferritin level ( maybe help with a celiac disease diagnosis too). If it was recent, then I would push for an endo and a colonoscopy to determine the inability to store iron or have your blood work checked even if the GI was not a celiac expert. You might have a genetic anemia like me.

Maybe a new GI can find other issues that will resolve your problems. My GI is prey clueless about celiac disease . I honestly think he had either just attended a conference or read an article about celiac disease when I arrived on his doorstep. He just gave me a list of gluten-free restaurants. I am not even going back for blood work (it has been a year) as I know I am in good compliance having lived with a gluten-free eater for 13 years. Plus, my blood test was barely positive for celiac disease despite my moderate to severe intestinal damage. I can tell that I am improving since my anemia has resolved.

Sorry to hear about your mom.

0

Share this post


Link to post
Share on other sites

I feel for you. I just went to the doctor yesterday and came home and cried. It is so frustrating, I had my husband go with me, I thought he could be strong and put his foot down and not let me be bulldozed. NO, he just wants me well, so he listened to the doctor, more testing for me, and lectures on taking the prilosec. I cannot find a good doctor. Still trying. I plan to go to a local meeting next month and ask for recommendations. They only meet every other month I only just discovered them in February, and was unable to make the March meeting.

Just came home and cried it was as useful as the doctor was.

0

Share this post


Link to post
Share on other sites

I did take iron supplements for about five months. Not taking them any longer. My last labs were all in the normal range. Standard blood work should identify any discrepancies, but I do not know that much about anemia. I would think you should be on iron until your ferritin levels improve. Obviously something else is still not right in your intestinal tract.

0

Share this post


Link to post
Share on other sites

I feel for you. I just went to the doctor yesterday and came home and cried. It is so frustrating, I had my husband go with me, I thought he could be strong and put his foot down and not let me be bulldozed. NO, he just wants me well, so he listened to the doctor, more testing for me, and lectures on taking the prilosec. I cannot find a good doctor. Still trying. I plan to go to a local meeting next month and ask for recommendations. They only meet every other month I only just discovered them in February, and was unable to make the March meeting.Just came home and cried it was as useful as the doctor was.

I know what that's like. It's the pits! I finally found a doctor who is helping me but adding more to the list just brings up some bad memories. It's white coat fear. It would be nice to be in the future: Step into a room, get scanned and receive a recommendation on how to proceed. That'll have to go in my science fiction novel. ;) I'm not against all doctors but have had some who didn't know what they were doing and took actions that were harmful. Now, instead of being steadfast, I just don't want to court trouble. Now I understand why my dad stopped going. It wasn't the right thing to do but I understand why he did it.

I hope the group will be of benefit to you and that you find it resourceful. I would love to find a group in Orange County but the one that was here seems to be dismantled.

0

Share this post


Link to post
Share on other sites

I did take iron supplements for about five months. Not taking them any longer. My last labs were all in the normal range. Standard blood work should identify any discrepancies, but I do not know that much about anemia. I would think you should be on iron until your ferritin levels improve. Obviously something else is still not right in your intestinal tract.

My doctor told me it's going to take time. A few of the out of whack issues will take a year which I'm halfway through. The gut part, I'm not sure but now after having been on this site for a while, it looks like it's just going to take time. Someone here wrote about how her doctor told her her bowels were like post-war Berlin. I was in bad shape when I gave up gluten and my immune system was very compromised. I guess I believed everything would be better in a few days and I'd skip happily into the sunset (that's silly to expect spontaneous healing but will chalk it up to gluten brain). I am healing, I just have to look backwards in order to recognize it.

0

Share this post


Link to post
Share on other sites

Hey CS :)

 

Don't know if you were still looking for an answer to your original question about a GI. I just wanted to add that as far as I know, it's the small intestine that gets damaged with Celiac, but it's the large intestine that's checked with a colonoscopy, so it shouldn't matter if the GI knows about Celiac or not. Of course it would be nice to find a GI who does know about Celiac so they could be helpful in other ways.

 

I checked out the cost for the Celiac GI's at UCLA and without insurance the cost is way out of my price range, but there was someone I could have seen in a weeks time if you have insurance. I know you don't want to do the gluten challenge as I don't, and given that I'm not sure what they would do for you. I agree it is really hard to try to figure this stuff out with brain fog. Some days I can't think clearly at all.

 

Hope your mom is doing ok. I can really relate to what you said about living beyond her. My mom is in good health but since I am not, and don't know where my health issues will lead, my life goal is that I live beyond her. It's my number one fear and what matters to me more than anything else. I just always want to be there for her as long as she needs me, so I sure can understand how you feel.

0

Share this post


Link to post
Share on other sites

Hey CS :)

 

Don't know if you were still looking for an answer to your original question about a GI. I just wanted to add that as far as I know, it's the small intestine that gets damaged with Celiac, but it's the large intestine that's checked with a colonoscopy, so it shouldn't matter if the GI knows about Celiac or not. Of course it would be nice to find a GI who does know about Celiac so they could be helpful in other ways.

 

I checked out the cost for the Celiac GI's at UCLA and without insurance the cost is way out of my price range, but there was someone I could have seen in a weeks time if you have insurance. I know you don't want to do the gluten challenge as I don't, and given that I'm not sure what they would do for you. I agree it is really hard to try to figure this stuff out with brain fog. Some days I can't think clearly at all.

 

Hope your mom is doing ok. I can really relate to what you said about living beyond her. My mom is in good health but since I am not, and don't know where my health issues will lead, my life goal is that I live beyond her. It's my number one fear and what matters to me more than anything else. I just always want to be there for her as long as she needs me, so I sure can understand how you feel.

Thank you FE :)

You said it all so well and you have no idea how much it helped to read this this morning.

0

Share this post


Link to post
Share on other sites

Awwww, I'm glad I could help.

 

My life feels to me like a big juggling act, between what to eat, which supplements to take, researching to answer my questions, just knowing what the heck to do next, and trying to have the energy to prioritize. I wish there was someone I could go to (a Dr) who could help, but there just isn't, not yet anyway.

 

Then I have to shop, cook, and try to get decent sleep. Every day at some point I'm overwhelmed and exhausted. I just wish I could have a break from all of it for one day even. It never stops. 

 

I learn more on this site than anywhere else. It's a lifesaver for me. I don't know what I'd do with out it.  (((hugs)))

0

Share this post


Link to post
Share on other sites

 

 

I learn more on this site than anywhere else. It's a lifesaver for me. I don't know what I'd do with out it.  (((hugs)))

Yeap !!

I can honestly say with out this forum and the information here I would have never gotten my diagnosis  or well . It has been truly a life saver for me and many other.

Mushroom ( miss her ♥  ) and Ravenwoodglass were the first to welcome me here ,, I will never forget them I am thankful daily for their advice ( and their patience with me )

0

Share this post


Link to post
Share on other sites

Sorry they are not still visiting the site, but still a lot of great folks here to help... (((hugs))) to you too.

0

Share this post


Link to post
Share on other sites

Awwww, I'm glad I could help.

 

My life feels to me like a big juggling act, between what to eat, which supplements to take, researching to answer my questions, just knowing what the heck to do next, and trying to have the energy to prioritize. I wish there was someone I could go to (a Dr) who could help, but there just isn't, not yet anyway.

 

Then I have to shop, cook, and try to get decent sleep. Every day at some point I'm overwhelmed and exhausted. I just wish I could have a break from all of it for one day even. It never stops. 

 

I learn more on this site than anywhere else. It's a lifesaver for me. I don't know what I'd do with out it.  (((hugs)))

Agree.  Thank you everyone.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,421
    • Total Posts
      930,467
  • Member Statistics

    • Total Members
      63,848
    • Most Online
      3,093

    Newest Member
    glutenfreekiddo
    Joined
  • Popular Now

  • Topics

  • Posts

    • Hi! I've just been recently diagnosed as Celiac through the whole biopsy-shebang, and I have a little bit of insight on the whole diagnosis thing and how I was eventually diagnosed, and my advice for you. Brace yourself, this might be a bit long, but it might be worth the read and I promise I will eventually get to the point. If you don't want the huge story, skip to the long line of capital As: I first saw my doctor when I had a few problems swallowing. I've compared it to when you're nervous and you feel like you have a lump in your throat - but after I eat and (sometimes) drink. I just mentioned briefly it to my family doctor when I was addressing another issue, but right away he referred me to a gastroenterologist and ordered a barium swallow x-ray test. The x-ray came back completely normal, and so the g.e. then suspected GERD, put me on acid blockers to see if they would work, no harm done sort of thing. The only thing I got out of the acid blockers were the side effects, so it was back to square 1. The g.e. said that the next test he could do was an upper endoscopy with biopsies. (hint: the celiac test!) Wanting to find a solution to my problems, the endoscopy was scheduled. Pretty painless, I was in and out in a day, but the results took much much longer. Biopsies, or the little pieces of my esophagus, stomach, and small intestine, were sent to the lab, and they came back clean. I didn't really go back to the g.e. for a whole year after that because life became busy, I wasn't prompted to follow up, and I just dismissed the swallowing problems the best I could and went on my way. Now, I've never been huge on the gluten, big bread-y sandwiches or croissants or pies were never foods that I super "enjoyed". I wouldn't feel bad after eating them, I just didn't like the taste of bread so much, but I loved cookies, cake and a lot of other things that do have gluten in them. I lead a lowish gluten life but I wasn't really monitoring it that way. Everything changed when I got really nasty (systemic) poison ivy. My eyes were swollen shut, and the rash was everywhere. I almost went to the hospital, but cooped out at the family doctor's place and got a script for prednisone (a steroid). But, I found that after I had tapered off the steroids, I had magically become lactose intolerant. So back to the family doctor again probably because I broke my toe or something, but we also got to talk about this magical lactose intolerance business (because I love anything dairy and it was indeed devastating). He was surprised as there is literally no correlation between steroids and becoming lactose intolerant. He asked me if I still had the swallowing problems, which I did, and so it was back to the g.e. for round 3. because my family doctor "does not believe in coincidences". Meeting with the G.E., he mainly addressed the swallowing problems telling me that he had done what he could to diagnose with the technology that we had at the highly specialized hospital that we were at, and I would have to travel about 3 hours away to see a different doctor who would do some tests involving the muscles in the esophagus. But right before I was about to leave, we started talking about lactose intolerance. He brought up other foods that I was avoiding (if any), and then the conversation went to gluten. I mentioned that I had an aunt that was gluten-sensitive. He advised that I do the blood test that can show an indication of celiac whenever in the future. I decided to do it that day. At this point in time, I was not eating much gluten because of the fact that it was personal preference. The normal range for values in this test is from 0 to 20. A few weeks later, I learned that I scored a 35. A second upper endoscopy with biopsies was scheduled, but this time I was told to eat a moderate amount of gluten everyday before the procedure. I ate about two slices of bread per day, which is more than I normally would. I was normal for the first two-three weeks of the gluten plus diet, but then I became really sick. I started getting the normal celiac symptoms, like diarrhea and extreme tiredness. Near the end, I had debilitating stomach pain and I was 2 times more asleep than awake each day. I couldn't do the 2 pieces of bread a day some days, but the pain was still there. I knew that I wouldn't ever have to force myself to eat bread for a test ever again. I was called a few days before my endoscopy telling me that a kid in a worse state than me had to take the OR during my time. I forced myself to eat more bread for another month and a half. The day finally came. I was diagnosed celiac, which I have concluded to be initiated by (1) the steroids/poison ivy and (2) the gluten binge fest.  AAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAA Celiac Disease isn't completely understood yet. Most of the time if you weren't showing symptoms when you were a baby (so your case) it means that celiac was/could be triggered by an event in your life that causes stress on the body (like stress, physical injury, etc.).  The positive result that you got from the blood test doesn't automatically mean celiac, but it could. Here's some options: Talk to your doctor (or a different doctor) or even a specialist gastroenterologist (you can get a referral from a family doctor (general physician)) and see if you can do the blood test again, you have to have some kind of gluten for this to work in advance, so if you don't want to break your gluten-free streak, than don't really invest in this option. If you feel comfortable, you could even ask to do this test under a few scenarios (no gluten (now) and after a gluten binge, compare results). If you do this test and your indication is low off gluten and then high after gluten, I'd probably skip the biopsy. That's a strong enough sign that you don't need to put yourself through the painful-gluten binge. Maybe this is what that first doctor just assumed. But having that test when you haven't had any gluten could make the difference - it acts as a control. Go straight to the biopsy. You could do this, but I'd probably do the blood test first. I went through a lot of stress with the gluten-binge that you have to do to get an accurate result, you would also be breaking your gluten-free diet that may/may not be helping you right now. Do nothing, stay on your gluten free diet hoping that it is helping you. But if you are not celiac or gluten-sensitive (celiac before it starts to wreck your small intestine), going gluten free isn't healthy - you can do some research on this if it interests you. If you feel bad/unhealthy after going gluten free it's probably a sign. Good luck, also know that you might come to a point of stress in your life that can start celiac's destructive path. Ultimately, it is your body, and you should not feel forced or hesitate to act on health issues that impact you.
    • I'm sorry that life is so hard right now. Really.  I can't imagine working 3 jobs and trying to manage this terrible illness.  I think about American society and their obsession with food often.  Whenever you look at the internet, there are all these fabulous gluten-free recipes, but when you don't have time or money to cook these things, a simple gluten-free lifestyle is just that - simple. There isn't a lot of variety, so it's kind of boring. But, I guess I have gotten used to being boring. I just eat corn chex and fruit or yogurt for breakfast. I eat a lot of eggs, beans, rice, corn tortillas, nuts, chicken, fruit and veggies.  A loaf of gluten-free bread will last me 4-6 months in the freezer.  I buy a bag of dried beans for $1.29, I soak them overnight, and put them in the crockpot the next day. I add different spices, sometimes chicken and Voila! - dinner is ready when I get home from a long day. Family gatherings are miserable and I haven't quite figured out the best way to deal yet. If my grandmother were still alive, I imagine she would be a lot like yours - well-meaning but not really able to understand the nitty-gritty.   I just reassure my family that I am fine and that they really shouldn't do anything special for me. I bring a bag of Hershey's kisses or other gluten-free candy I can nibble on along with my meal and then I try to treat myself to a nicer home cooked meal later in the week when I have time to cook - because who has time to cook during Christmas???? And, I agree with knitty knitty. If someone else in your family/friends were gluten-free for medical reasons, it would make socializing a bit easier. One of my husband's good friends is NCGS. When we get together as a group, we can make each other special dishes and it helps to feel less isolated.  Good luck!  
    • Hi!  Um, please forgive my quirky sense of humor..... Celiac Disease is genetic... All first degree relatives of people diagnosed with Celiac Disease should be tested for the disease, too.  Gall bladder problems are often associated with Celiac Disease.  Your diagnosis might save your whole family from further medical problems as they age and the disease progresses... You need to set a good example if relatives are similarly diagnosed.... and then everybody will have to eat gluten free at family gatherings....  
    • That's what I thought!  My father has gluten sensitivity and I almost regret telling the doctor that because I feel that made her jump to conclusions because of that.  He never had the biopsy either.  I feel like doctors think it's just easier to say it's celiac when they show a gluten sensitivity to avoid additional testing, even if that diagnosis doesn't make any sense at all.  My doctor didn't even offer the biopsy, and said the blood work was enough.  Should I seek a third opinion?  I mean, I've been gluten free for 9 months...
    • It will prolong your life....celiac is a autoimmune disease that  causes your own immune system to attack you. The longer your eating gluten the worse it gets, I mean all kinds of other autoimmune disease, food allergies, food intolances. One day you could lose the ablity to eat carbs, or sugars, or become randomly allergic to tomatoes or corn all cause you decided not to be on road to healing I am not kidding here. I am allergic to corn, can not process meats, have another autoimmune disease that makes it so I can not eat dairy or CARBS/SUGARS.   I wish I could go back in time and go on a gluten-free diet a decade ago. Worse that could happen you could develop cancer or other complications and yes we have had this happen to a member before on our forums. Think of it like this your just changing brand here I will give you some links to some gluten-free foods, and how to order them, You can even order alot of them online this should help simplify it for you. I suggest thrive, amazon, or one of hte other links from there, Many you can order from the manufacture. https://www.celiac.com/gluten-free/topic/117090-gluten-free-food-alternatives-list/  
  • Upcoming Events