• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Testing On Toddlers
0

8 posts in this topic

Hi, me and my son have just been dignosed as celiac's (just got results on Wednesday) so still freaking out of how big of a change this all is and trying to rid gluten from my house to get on the road to recovery... I have one thing that I've been wondering about, I also have a 2 year old daughter (just turned 2 in February) and she hasn't been tested because our doctor told us that she was to young for it to be accurate. My whole house is going gluten free and I just wanted to see if I should get my daughter tested before gluten is out of her diet or if I should wait until she's older? She'll be getting gluten at daycare when I go back to work after the summer so she won't be entirely gluten free.... Also looking for any tips or suggestions on making this major transition.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:

Welcome! Be sure to read the newbie thread about going gluten free. The tips are invaluable!

Since it is a holiday weekend, I am not sure you will get a good response from parents of small children. So please be patient! I did test my daughter who is 13 and she did not have any symptoms at all. Amazingly, she was negative and both of us have gluten issues. She will get retested in three years. I did not test her until I was sure it would not impact her health insurance (we are self-employed and she had her own policy.) Whew! There is some good with the Affordable Healthcare Act!

We maintain a gluten-free household, but I send her to school with prepackaged gluten foods or we stop for a burrito or pizza after school as a treat.

So, you could wait, but let us hear about the accuracy of testing in toddlers. I know nothing about that.

0

Share this post


Link to post
Share on other sites

Thanks for the reply I've been looking around the sure and will be sure to make it into the newbie thread! I will be sure to keep checking in for others input on this. This site seems like it will be a great help with all of this and there's so much to learn it's hurting my head trying to wrap it around all of it but there seems to be a great community here to help me get through the adjustment period :)

0

Share this post


Link to post
Share on other sites

Here are two of my favorite tips to speed healing:

1. Do not eat outside of the house until you are feeling well or have this gluten-free diet down pat. There will be days that you just do not want to cook. My fast food is Costco chicken, frozen veggies, and green salad. I also freeze meals to have on hand. Simple foods are best until your gut has healed.

2. Do not kiss any, but potentially slobbery children or spouses -- seriously. Coming back from day care? A quick soap and water wash is best. We have a doc with celiac disease and she was getting glutened by her small kids. My kid washes her hands as soon as she walks in the door.

3. Pamela's gluten-free flour makes terrific chocolate cookies and cupcakes. I have converted my old recipes cup for cup. Freeze and thaw when you need something for a school party, etc. go the extra mile for homage frosting!

4. Never leave the house without some gluten-free food with you. A gluten-free cereal bar, fruit leather...then you will be able to resist eating out and getting glutened. I carry a little ice chest. Got into the habit when my kid was small.

I wish I had really paid more attention to those tips in the newbie section and other advice given on this forum. Since my husband had been gluten-free for 13 years, I thought I had this celiac disease diet down. I did, but I had issues with processed and junk foods. I think it slowed down my recovery. Your son should improve much faster. Ah, youth!

0

Share this post


Link to post
Share on other sites

Welcome! I would recommend getting your toddler tested soon, before her system adjusts to a lot less gluten in her diet. Make sure they run both DGP tests (DGP-IgA and DGP-IgG) as well as the tTG test, since those may be more accurate in very young children. False negatives are certainly possible, especially at that age, so a negative result now would not rule out celiac forever. However, if she's positive that would be great to know sooner rather than later. Since it sounds like your doctor is aware that the tests aren't always accurate for kids, hopefully s/he be willing to repeat the tests every few years (or sooner if she develops symptoms). Aside from the pain of the blood draw - which is certainly never fun for a little one - it seems like there's no advantage to waiting until she's older. My daughter was diagnosed at age 4 and had strong positive on all three blood tests they ran, and I really wish she'd been tested much sooner. Good luck!

0

Share this post


Link to post
Share on other sites
Ads by Google:


Thanks for the tips, freezing meals sounds like a good idea for those nights I just don't feel like cooking or the late nights when I'd normally turn to a can of ravioli or ordering a pizza, I was told by a friend we have a good health food store not far from me that almost everything they sell is gluten free so I'm going to have to go check it out after the weekend :)

Greenbeanie- thanks I'll make an appt with our dr and ask for my daughter to be tested as well she is uassally pretty good at ordering the tests I request but I do have to pay for the blood work so I think it was more her trying to save me money. My daughter doesn't really show any signs as of yet other then some constipation, but I think that was also my sons first sign along with bouts of diarrhea but I never thought anything of it.

0

Share this post


Link to post
Share on other sites

I agree that it is a good idea to test her now while she still has adequate amounts of gluten in her diet for testing. You are correct that some young kids may get a false negative test, but most kids test fairly accurately .

 

If she does have a negative test, you should retest her every year or two anyways as celiac can develop at anytime in life, or it can finally become positive on the tests.... either way, things could change.

 

Definitely get the DGP IgA, DGP IgG, tTG IgA, tTG IgG, and total serum IgA run.  The EMA IgA is a good test too, especially if she ends up with a positive tTG IgA.

 

If she is showing signs of gluten sensitivity, and tests negative, you should consider making her 100% gluten-free anyways.  She could have non-celiac gluten intolerance (NCGI) but it's just as likely that she has early celiac disease and it just isn't showing up in the blood tests yet - sort of like taking a pregnancy test too early will show a negative if you test too soon even if you will deliver a bundle of joy in 9 months. KWIM?

 

Best wishes.

0

Share this post


Link to post
Share on other sites

Alright I'll be sure to push our dr to run the test and retest if needed, I've already considered talking to the daycare about it to see how we could work it to have her gluten free no matter what the tests say as I feel it would lessen the changes or CC for my son and I but it would be nice to know before hand that way if it is positive we won't need to make sure she's had enough gluten for long enough/ been kept on to have her tested again and causing her harm if she does have it and I'm really not sure how the daycare would work that my guess is I'd have to supply her food, dishes etc which wouldn't be a big deal as I already do that for my son at school so it's just making an extra lunch and snacks to send her but I'll have to talk with them first to know for sure

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,112
    • Total Posts
      928,998
  • Member Statistics

    • Total Members
      63,516
    • Most Online
      3,093

    Newest Member
    Ophelia
    Joined
  • Popular Now

  • Topics

  • Posts

    • I do not think anyone was discussing " formed chicken" here.  Obviously, that is a different food than plain fresh chicken.
    • Dermatitis Herpetiformis  can manifest itself in lesions anywhere, not just elbows and knees.  I have it and although gluten free, I still have severe itching and little bumps that itch.  I don't have the lesions any more, but itching can drive a person mad.  the bumps can be on buttocks, shoulders, etc.  Dapsone is the standard treatment, if you are not allergic.  I also use topical prescription creams.  I take 2 Zyrtec a day and benedryl at night.  Benedril spray helps with temporary relief.  Also am on hydroxyzine and doxepin.  Sometimes steroids like prednisone help, but can ruin ones blood sugar counts.  I use Grandma's Baking Soda soap.  Straw may certainly be a factor.  I must be coming in contact with a trigger of some kind even though I'm very careful about my diet.  Change your dermatologist and get a specialist in DH.  I went for years with all kinds of stomach and bowel issues and was 69 years old before being correctly diagnosed.  Don't let anyone tell you it's your imagination!
    • I can not help you except to offer some emotional support.  You are not crazy!  You can get glutened on a farm.  Here is a study: http://www.nejm.org/doi/full/10.1056/NEJMc063112#t=article This topic has come up before: Hugs!      
    • I know I got glutened after handling some straw last year helping out decorating at the farmers market then going to eat something without washing my hands. I later learned it was wheat straw, some of them still had the heads on them and everything. Gave that area wide walk around after that, I did not have much issues with inhalation with it. But if your there with a thrasher running, down wind during the harvest.......I imagine it might be hell if your super sensitive. If you get skin reactions that easily from it I guess taking a vacation during harvest? Try staying indoors, dust mask, long sleeves and pants hope for the best.......I am just throwing some ideas out there. Maybe someone can help a bit more.
    • Hi i haven't been diagnosed yet. Bloodwork was negative (on gluten free diet) and I'm awaiting skin biopsy results  I have DH on the front of my thighs. The dermatologist says DH only happens on knees and elbows therefore I don't have it. It's itchy as hell, blisters, purple scans as It heals, migrates around but always in that spot on both legs. It takes 5 days after exposure to gluten for it to show up and it can last for a month. I throw up 24 hours after exposure, GI symptoms 36 hours after that last for about a week. I also will have a panic attack somewhere in that time.  I've been gluten free since December. Rash went away after a week of no gluten but came back after a few months (I ate a rice Crispie square)  My problem is this. I live in a farming community. I just filled my dogs kennel with straw not even THINKING about gluten. This was last week. All symptoms happened in order and now the DH is back. How the hell am I going to survive? I can stop using it on my property but what if it's in the air during Harvest time? I thought I had a mental handle on this but I'm devastated and terrified. My husband doubts it's possible the straw Glutened me but I know it did. What if this summer the air literally kills me? Has anyone dealt with this? I feel like I'm going insane, I'm so obsessed with this and now I'm itchy and sick too 😥 
  • Upcoming Events