• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Celiac Symptoms And Testing
0

9 posts in this topic

I have had strange health issues for the last 4 years. Unexplained rashes, food reactions (sometimes I react to everything that I eat- my lips get a rash and swell up and my eyes puff up as well….but then it goes away and I can never figure out what triggered it.  I'm always full of anxiety- I feel like I can barely breathe…so I can't sleep at night because I feel like my heart is racing. Apart from this I also have typical celiac gastro intestinal stomach symptoms and recently I find that my mind is just going crazy and I can't focus on anything. Does this even sound like celiac disease?  My doctor gave me a requisition for the test a few years ago and I never did it.  He said he really didn't think I had it so I never did the test.

 

I have decided to get tested now but stopped eating gluten 13 days ago prior to making that decision. (and a couple times during this period i accidentally ate soy sauce and a salad dressing that contains gluten) but I was starting to feel so much better!!.. I really don't want to do a 4-12 week gluten challenge. I've decided to do the home test (Biocard) and if it is a positive I will see my family doctor for further testing.  My question is.. how long does gluten actually stay in the system? After 13 days (almost) gluten free is it necessary to do the challenge? Does anyone have experience or insight into the Biocard test? I am on day 3 of eating gluten again and I can't take the anxiety that i'm feeling from (i believe) eating gluten.

 

If anyone has any input regarding the home test or advice on whether my symptoms sound celiac induced I would greatly appreciate it:)

 

Thanks

 

 

 

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


If you've only been off gluten for just 13 days, I'm not sure that you would need to eat it for a full 3 months in order to get DX'ed. It seems like the antibodies wouldn't go back to normal that quickly, especially since you still got a little gluten during that 13 days.

 

But hopefully someone more knowledgeable than me will chime in.

 

I will say, right now, I am not formally DX'ed and I'll be the first person to say, if you possibly can get a DX, do it now! It makes life easier for you, in terms of people taking you seriously and also gives you information on how to proceed with your kids, if you have any.

0

Share this post


Link to post
Share on other sites

I'm very suspicious of any home kit of any sort.

 

If at all possible get the blood tests done via your Drs. office.

 

It's hard to say how going gluten free for 13 days would affect the tests, but I think you'd probably want to go at least two weeks with eating about 2 pieces of bread a day. Maybe someone here has a better idea but I think it differs from person to person and you may or may not have stopped making antibodies already.

0

Share this post


Link to post
Share on other sites

If you've only been off gluten for just 13 days, I'm not sure that you would need to eat it for a full 3 months in order to get DX'ed. It seems like the antibodies wouldn't go back to normal that quickly, especially since you still got a little gluten during that 13 days.

 

But hopefully someone more knowledgeable than me will chime in.

 

I will say, right now, I am not formally DX'ed and I'll be the first person to say, if you possibly can get a DX, do it now! It makes life easier for you, in terms of people taking you seriously and also gives you information on how to proceed with your kids, if you have any.

Thank you for the response!

 

I would think that it takes a while to leave your system as well.. I just don't want a false negative.  i'm going to stick it out as long as I can before doing the test..

 

I was planning to go to my Dr. for DX eventually, I just wanted to do the home test for quick results!

0

Share this post


Link to post
Share on other sites

I'm very suspicious of any home kit of any sort.

 

If at all possible get the blood tests done via your Drs. office.

 

It's hard to say how going gluten free for 13 days would affect the tests, but I think you'd probably want to go at least two weeks with eating about 2 pieces of bread a day. Maybe someone here has a better idea but I think it differs from person to person and you may or may not have stopped making antibodies already.

Yes, I guess you never know if home tests are as accurate.   I'm in Canada and came across  this test that is approved by Health Canada and I believe its the only one available.  I still do plan to go to my own doctor as well.  I guess I am just a little anxious and wanted to know right away rather than waiting for an appointment and then waiting for the test results as well.

0

Share this post


Link to post
Share on other sites
Ads by Google:


Yes, I guess you never know if home tests are as accurate.   I'm in Canada and came across  this test that is approved by Health Canada and I believe its the only one available.  I still do plan to go to my own doctor as well.  I guess I am just a little anxious and wanted to know right away rather than waiting for an appointment and then waiting for the test results as well.

Yeah, I understand that. Waiting for labs to come back is hard, no doubt about that.

 

You could do the home test and see what happens, if it comes back positive it will make it a lot easier to get your Dr. to do the blood tests. Of course, that is assuming the kit isn't too expensive.

0

Share this post


Link to post
Share on other sites

Yeah, I understand that. Waiting for labs to come back is hard, no doubt about that.

 

You could do the home test and see what happens, if it comes back positive it will make it a lot easier to get your Dr. to do the blood tests. Of course, that is assuming the kit isn't too expensive.

I will probably do it that way…  The test is pretty cheap 50$ I believe the accuracy is 93% so I'm not sure if it might just be better to wait and do testing through doctor.

0

Share this post


Link to post
Share on other sites




I did the Biocard test and had a very very weak positive after upping my gluten intake for two weeks. I took my test to the doctor and he ordered labs for me. I continued to eat gluten heavy and had the equivalent lab run test (tTG IgA) and had a positive that was well over 10X the normal.

 

For either test, I would advise adding gluten back into your diet for a couple of weeks before testing. For some people who would normally have a weak positive, a couple of weeks gluten-free may be enough for a false negative, for others a year isn't enough but there's no way to know which group you fall into.

 

Good luck with the testing.  :)

0

Share this post


Link to post
Share on other sites

I did the Biocard test and had a very very weak positive after upping my gluten intake for two weeks. I took my test to the doctor and he ordered labs for me. I continued to eat gluten heavy and had the equivalent lab run test (tTG IgA) and had a positive that was well over 10X the normal.

 

For either test, I would advise adding gluten back into your diet for a couple of weeks before testing. For some people who would normally have a weak positive, a couple of weeks gluten-free may be enough for a false negative, for others a year isn't enough but there's no way to know which group you fall into.

 

Good luck with the testing.  :)

Thank you for the input!

I'm going to hold off on the biocard test for a few weeks then, and in the meantime I will eat as much gluten as I can take. It's hard to know how much is enough! I'm on day 5 off adding it back to my diet and I don't feel the greatest:/

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,342
    • Total Posts
      935,603
  • Member Statistics

    • Total Members
      65,012
    • Most Online
      3,093

    Newest Member
    sweetiepie
    Joined
  • Popular Now

  • Topics

  • Posts

    • Most of the articles you presented were blogs.  They focused in one article pushed by the American Chemical Society.  The research looked at ground coffee in Brazil ONLY.   https://www.acs.org/content/acs/en/pressroom/newsreleases/2014/august/keeping-filler-ingredients-out-of-your-cup-of-coffee.html We know that Brazil is a very poor country.  Just look at what happened during the last Olympics.   For piece of mind, do not drink ground coffee brands from Brazil.  Instead, grind your own beans or purchase grounds from a reputable company.    
    • Okay, a positive on thyroid antibodies,  but what about the rest of the thyroid panel?  That tells more of the story.   Is  rest of the thyroid panel all in the normal ranges?  Is that why you were recommended to take a supplement instead of actual thyroid hormone replacement?  Many doctors try a tiny dose of thyroid hormone replacement.  Was this considered?   Symptoms besides gray hair?   You can either embrace the gray hair or color it.  My research and personal experience has never come across a method of reversing grey hair.  My SIL grayed  at 18.  She has been coloring her hair black for decades and her thyroid is normal. 
    • Be sure to read "cyclinglady" post and link to an article from the University of Chicago Celiac Center....vitamin deficiency's prior to diagnoses....so helpful. 
    • Hi All - I was recently diagnosed with Hashimotos. My doctor said TPO AB 76 is above range. I initially went to the doctor because since graduating college 3 years ago I have gotten a significant number of gray hairs (25% of my hair I would say) and I just turned 25 and am an African American woman. She put me on OMP Thyrotain. Has anyone used this? She has also advised me to go gluten free. Has anyone seen any reversal in the grey hair? I don't consider myself a shallow person but at such a young age, without any family history of this, it's really impacting me negatively. Any advice or experiences would be so helpful.
    • You shave stumbled onto the biggest secret out there..........the gluten-free diet isn't as horrible as many would have you believe, including the medical profession. There is plenty of good food to eat and the biggest drawback is we have to prepare it ourselves the vast majority of times.  That's the worst part.    And like yourself, I have friends who have much more serious health issues and they do not have the control over theirs as we do over ours. There may be times when you will be faced with temptations you will have to turn away from but you will move on and survive.  Congratulations on having such a positive attitude!
  • Upcoming Events