• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Getting Rid Of Dh
0

8 posts in this topic

Hey everyone. Just wanted to say I am new here but I appreciate all the information everyone contributes. I was recently diagnosed with gluten intolerance. I do not have any of the digestive issues that come along with it but I get a terrible rash (DH) primarily on my knees, elbows, buttocks and now face and upper back. I have been trying to detox and strictly watching what I eat. I have been eating nothing but fruits, veggies, lean meat and drinking water like mad the last month and a half now. The only thing that seems to keep my skin under control is if I take a corticosteroid. If I stop taking it, within a few days I start to get the rash again. Does anyone know of a good detox to help balance the gut and flush gluten? I am currently on a probiotic, fish oil, drinking apple cider vinegar and eating sauerkraut by the forkfull. Thanks in advance for any advice and help.

 

In good health!

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Hi Willstewart and welcome.

 

Just so you know,  DH is a diagnosis of Celiac.  Gluten Intolerance can have a number of rashes associated with it.  I take it you haven't been tested?  Anyway, glad your in good health and feeling well.

 

Good Luck.

 

Colleen

0

Share this post


Link to post
Share on other sites

There is nothing to " flush" gluten out. It just goes out with the garbage like any other food waste. Gluten molecules don't float around and hide in the body.

Read around. If you truly are diagnosed with DH, many find a low iodine diet helps. Doctors will prescribe Dapsone ( spelling?) for those diagnosed with DH to use for a while. Many find it very helpful. You might want to talk to the dermatologist that diagnosed your DH about a prescription.

0

Share this post


Link to post
Share on other sites

Colleen,

 

   I had a biopsy done the last time I had a bad breakout. It came back 100% as gluten reaction. Like I said, no GI issues, just the rash as far as I know. I am just trying to get it out of my system so that I do not have to stay on a steroid. I would prefer to not have skin flare ups every few days without it. My doctor did not feel I needed any further testing. He did want to put me on Dapsone but I refuse to take it.

Hi Willstewart and welcome.

 

Just so you know,  DH is a diagnosis of Celiac.  Gluten Intolerance can have a number of rashes associated with it.  I take it you haven't been tested?  Anyway, glad your in good health and feeling well.

 

Good Luck.

 

Colleen

0

Share this post


Link to post
Share on other sites

Did the biopsy come back positive for dh? "Gluten reaction" does not tell us if you were dx'd with dh. Furthermore, if you do have dh then steroid cream is helping you say but even topical steroids make the rash flare terribly when they are withdrawn. You either use the cream for years until the antibodies get out from under your skin or you sweat it out w/o the steroid cream until you calm from the backlash of the steroid. 

I will agree that there's no way to flush the antibodies out of your skin if you have dh. You have to wait it out until your body takes care of it. For some (with dh), this can take years. I'm sorry to tell you this but better you know now. For those of us with dh, quitting gluten is not an instantaneous magic bullet. There are antibodies hanging around under our skin & we will only be free of the rash when those go away AS LONG AS WE ARE PRISTINE IN OUR gluten-free DIET & DO NOT GET CROSS CONTAMINATED!

0

Share this post


Link to post
Share on other sites
Ads by Google:


Did the biopsy come back positive for dh? "Gluten reaction" does not tell us if you were dx'd with dh. Furthermore, if you do have dh then steroid cream is helping you say but even topical steroids make the rash flare terribly when they are withdrawn. You either use the cream for years until the antibodies get out from under your skin or you sweat it out w/o the steroid cream until you calm from the backlash of the steroid. 

I will agree that there's no way to flush the antibodies out of your skin if you have dh. You have to wait it out until your body takes care of it. For some (with dh), this can take years. I'm sorry to tell you this but better you know now. For those of us with dh, quitting gluten is not an instantaneous magic bullet. There are antibodies hanging around under our skin & we will only be free of the rash when those go away AS LONG AS WE ARE PRISTINE IN OUR gluten-free DIET & DO NOT GET CROSS CONTAMINATED!

Yes I had a positve for DH. I know there is no magic bullet. I am just trying anything I can to speed up the process. I know getting your gut in balance is a big key. Thanks for all the replies so far. I just didn't know if anyone had any detox or oils or anything to help expidite the whole thing.

0

Share this post


Link to post
Share on other sites

Well, welcome to the forum you never wanted to be a part of. We all wish we had a key to speeding up the process. I haven't seen any medical answers to that question nor have I read anyone who has dh who found a way to speed it up. Unfortunately! It's a matter of the antibodies. Gluten is not under the skin, the antibodies are. One would have to find a way to get rid of antibodies. Sigh.

 

Here is a link for the low iodine diet which may really help you b/c most of us get bad flares from iodine & that is medically documented. Check vitamins for iodine content also -- most contain it. And of you go more than a month or two on it, then you will want to get your thyroid checked on a regular basis to make sure you aren't damaging it.

http://thyca.org/pap-fol/lowiodinediet/

 

Here's a link for help with the itch....etc....

http://www.celiac.com/gluten-free/topic/96552-help-for-the-itching-stinging-burning-pain-of-dh/

 

Read this thread too:

http://www.celiac.com/gluten-free/topic/107452-i-think-i-have-it-please-weigh-in-on-my-situation/

 

In the later stages, I also found soaking in a hot epsom salts bath to help. And along the way, some things that helped at some point would stop helping & back & forth so you'll have experiment & may have to keep changing when something stops working for you & then you may go back to that & it helps again. In other words --- whatever gives you relief!

 

Drinking lots of water is always a good thing & I can't say that it flushed any antibodies out but it certainly doesn't hurt. I have always been a big water drinker though.

 

With dh, most of us do not get the GI symptoms that regular celiacs do or we get them much less severe & fewer symptoms. You may be surprised as you go along & find things you thought were not symptoms, in fact were symptoms. We do still have damage to our villi though even though we are "symptomless". 

 

DH is extremely sensitive to the tiniest amount of gluten!!!! This is why I counsel everyone with dh to be ultra cautious in their diet & don't even risk eating out unless it's a totally gluten-free restaurant. If we get cc'd then we just dump more antibodies under our skin & prolong our torture & that can add months to years to our dh prison sentence.

 

If you have any questions or just want to vent & rant & rave --- we're here. Been there, done that.

0

Share this post


Link to post
Share on other sites




Also, if you wouldn't mind...... would you please go to this thread & post the name & location of the dermatologist who did your biopsy & dx'd you? And put dermatologist in the title of the thread as well as the city. That could really, really help out someone in that area who is looking for a derm who knows what they're doing & knows how to recognize & biopsy dh correctly. 

http://www.celiac.com/gluten-free/forum/6-celiac-disease-doctors/

 

Thanks!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,339
    • Total Posts
      935,564
  • Member Statistics

    • Total Members
      64,998
    • Most Online
      3,093

    Newest Member
    Con Smith
    Joined
  • Popular Now

  • Topics

  • Posts

    • I can't help thinking that all of this would be so much easier if the doctor I went to 10 years ago would have done testing for celiac, rather than tell me I probably should avoid gluten. He was looking to sell allergy shots and hormone treatment, he had nothing to gain from me being diagnosed celiac. I've been messing around ever since, sort-of-most-of the time being gluten free but never being strict about it. I really feel like three months of eating gluten would do my body a lot of permanent damage. I've got elevated liver enzymes for the third time since 2008 and no cause can be found which might be good, I guess. I wonder if it would be reasonable to do the HLA testing first, to decide if I really need to do the gluten challenge. If the biopsy is negative, that is. Squirmingitch, love your tag line about dogs in heaven. We lost the best dog ever last December. I sure hope all my dogs are there waiting for me!
    • Most (90%-95%) patients with celiac disease have 1 or 2 copies of HLA-DQ2 haplotype (see below), while the remainder have HLA-DQ8 haplotype. Rare exceptions to these associations have been occasionally seen. In 1 study of celiac disease, only 0.7% of patients with celiac disease lacked the HLA alleles mentioned above. Results are reported as permissive, nonpermissive, or equivocal gene pairs. From: http://www.mayomedicallaboratories.com/test-catalog/Clinical+and+Interpretive/88906  
    • This is not quite as cut & dried as it sounds. Although rare, there are diagnosed celiacs who do not have either of those genes. Ravenwoodglass, who posted above, is one of those people. I think she has double DQ9 genes? Am I right Raven?  My point is, that getting the gene testing is not an absolute determination either way.
    • Why yes it is! jmg and myself are NCIS, I mean NCGS specialist/experts or is it NCGI people ourselves. posterboy,
    • LilyR, jmg has given you good resources/links. I used to have constant issues with ear infections that went away when I went gluten free. And recurrent bronchitis they I never have now. NCGS can cause low grade inflammation that you don't realize at the time . .. till you stop eating gluten. That said have you been checked for a UTI infection.  It is not uncommon to have low grade fevers when you have one. My friend at work recently had a bad spell of health and the only symptom she complained about before coming down with a bird flu virus was a low grade persistent fever (not for a few months but for a few years). The last time I had bronchitis before it became pneumonia I had a low grade fever in the few months before my pneumonia diagnosis. Keep looking is my advice to you.  Low grade fevers are fighting off an infection . .  sometimes we don't know why until other symptom's present themselves. I do know that when I went gluten free most of my chronic health issues got better.  I can only assume it (gluten) was triggering inflammation in my body. I hope you find out what is the cause of your fever and that being gluten free helps it. ****** this is not medical advice just some of the ways going gluten free helped me and some possible other causes of a low grade fever that have happened to myself or others that I know of. posterboy,
  • Upcoming Events