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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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sastolar

Glutened By Now Foods Supplement?

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Hi, I'm new here... Has anyone ever been glutened by taking NOW Foods supplements?  Each supplement that I bought says it does not contain gluten, but that it is manufactured in a shared facility.  Just wondering if anyone has taken them before and gotten sick....  Thanks!

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I have not taken that. I just want to say welcome :) I do know alot of people have a problem with Cross Contamination (CC) so that may be your problem. Just seems some can tolerate more than others. So sorry! I hope your ok. I am sure everyone will want to know more about you. How long you have been celiac. If your Celiac and how long. Any other intolerances. Let us know! it helps if you truly want a good answer. These people here are very smart and have been doing this a very long time. I am under a year. So pffttt to me! Good Luck and let us know! Altho I think you already know! :) Good luck again! 

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Hi, I'm new here... Has anyone ever been glutened by taking NOW Foods supplements?  Each supplement that I bought says it does not contain gluten, but that it is manufactured in a shared facility.  Just wondering if anyone has taken them before and gotten sick....  Thanks!

 

Hi sastolar, and Welcome.

 

I haven't taken those either but from what I can gather, some do have soy, which can be a common irritant and like you said, a shared facility.  I would be more worried if they were shared lines.  Have you tried them yet?  You might have to be the guinea pig on this one... :D

 

Colleen

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I have used NOW food vitamins and supplements and never had a reaction from gluten.

 

Shared facility is not the same as shared lines. (that's something I would never do)

 

It could be the ingredients in the supplement. We can be intolerant of any number of things and the capsules may contain

something that just does not agree with you.

 

If you're worried, use Country Life G F ones instead. 

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Hi everyone... thank you so much for the replies!  I'm really glad to have joined this forum, it's so much better than just always spinning my head-wheels wondering in isolation :)  I am not actually Celiacs (I hope that is okay?) but I have a gluten sensitivity that seems to be super sensitive.  I just found out this past October and have been gluten-free since then.  I have gotten glutened accidentally a number of times since then... popcorn made in a shared facility, turkey lunch meat, gluten-free fries made in shared oil, gluten-free pizza cooked in a shared oven...  and I'm learning slowly but surely, but slowly :)  

 

With these NOW supplements that I've been taking, one of them actually has Barley Grass listed as an ingredient.  I looked up Barley Grass and found that it is supposed to be gluten-free if harvested properly, but now I feel dumb for believing it.  But you guys are right, it could just as easily be any number of the other ingredients.  My husband and I are going to start an elimination diet test tomorrow, with dairy, eggs, and soy being first.  I eat so many eggs that I'm having that, "Oh my gosh, if I can't eat ____ anymore I'll probably starve" fear that you are all probably familiar with...  

 

I can't remember what other questions were asked, but thank you all again for your replies!

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Hi sastolar, and Welcome.

 

I haven't taken those either but from what I can gather, some do have soy, which can be a common irritant and like you said, a shared facility.  I would be more worried if they were shared lines.  Have you tried them yet?  You might have to be the guinea pig on this one... :D

 

Colleen

Hi Colleen, thank you.  I have tried them - I took them for three days and then started having my typical - can't get out of bed reaction - that I have to gluten.  I stopped taking them that day and will hopefully feel better in another week or so... Being a guinea pig is the pits :)

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Hi everyone... thank you so much for the replies!  I'm really glad to have joined this forum, it's so much better than just always spinning my head-wheels wondering in isolation :)  I am not actually Celiacs (I hope that is okay?) but I have a gluten sensitivity that seems to be super sensitive.  I just found out this past October and have been gluten-free since then.  I have gotten glutened accidentally a number of times since then... popcorn made in a shared facility, turkey lunch meat, gluten-free fries made in shared oil, gluten-free pizza cooked in a shared oven...  and I'm learning slowly but surely, but slowly :)

 

With these NOW supplements that I've been taking, one of them actually has Barley Grass listed as an ingredient.  I looked up Barley Grass and found that it is supposed to be gluten-free if harvested properly, but now I feel dumb for believing it.  But you guys are right, it could just as easily be any number of the other ingredients.  My husband and I are going to start an elimination diet test tomorrow, with dairy, eggs, and soy being first.  I eat so many eggs that I'm having that, "Oh my gosh, if I can't eat ____ anymore I'll probably starve" fear that you are all probably familiar with...  

 

I can't remember what other questions were asked, but thank you all again for your replies!

 

 

Well, you did not mention barley grass in your first post. :unsure: you just said "supplements" and "shared facilities"

 

Yeah, do not take those!! I wouldn't.

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Well, you did not mention barley grass in your first post. :unsure: you just said "supplements" and "shared facilities"

 

Yeah, do not take those!! I wouldn't.

Yeah... Somehow I didn't see that ingredient until after I posted.  OOps!  So in your opinion, barley grass is a no no?  

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Yeah... Somehow I didn't see that ingredient until after I posted.  OOps!  So in your opinion, barley grass is a no no?  

here's what I have read and she quotes Tricia Thompson, RD a reputable source. Only you can decide what's best for you.

 

"while wheat grass and barley grass in their pure forms are considered gluten-free, it matters how they're harvested and how products containing them are produced.

For example, if a farmer allows some of the grasses to begin producing seeds prior to harvest, then that particular crop will contain gluten.

In addition, if a manufacturer of supplements produces gluten-containing products alongside or on the same equipment as it's using for gluten-free labeled products, then those products can be cross-contaminated unless special precautions are taken, and they may contain gluten.

So when it comes to the question of whether wheat grass and barley grass can be considered gluten-free, the details really matter.

Dietitian Tricia Thompson, a specialist in celiac disease and gluten-free diet issues, recommends avoiding any product containing wheat or barley grass that's not specifically labeled gluten-free.

In addition, she also recommends avoiding any gluten-free-labeled product containing wheat or barley grass unless you can verify that it's been tested for gluten cross-contamination with a specific type of test: the R5 ELISA test. Other forms of testing may not produce accurate results, since they may underestimate the amount of barley gluten in the product."

 

http://celiacdisease.about.com/od/everydaymedicalissues/f/Are-Wheat-Grass-And-Barley-Grass-Gluten-Free.htm

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