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Maria's mom

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Maria's mom Newbie

Hello, my name is Jenny and I am mom of Maria(7) and Chris (6). Maria was diagnosed with celiac disease when she was 18 months old but as we found out later she wasnt diagnosed with the right way..Anyway..she was on a gluten-free diet till she was 4 and then the doctor just told us to stop it cause there have been a mistake and Maria didnt have celiac disease.

Yoday, 3 years later.. Maria started to complain about chest pains and bone pains.So we took her to the pediatrician took some tests.. and he said that Maria probably DOES have celiac disease and we need to see a specialist. So we are having our first appointment in the end of this month..

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Tinkerszs Newbie

I can't tell you very much but I wanted to say good luck. I hope it works out for you.

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    • trents
      And the fact is, no two celiacs will necessarily respond the same to gluten exposure. Some are "silent" celiacs and don't experience obvious symptoms. But that doesn't mean no harm is being done to their gut. It just means it is subclinical. 
    • AlyO
      Thank you, Trents.  I appreciate your helpful and friendly reply. It seems more likely to be a bug.  It has been a pretty severe bought. I feel that I don’t have enough experience to know what signs my little one shows after exposure to gluten. 
    • trents
      Hannah24, be aware that if you are on a gluten free diet, you will invalidate any further testing for celiac disease (except genetics) and would need to go back to eating significant amounts of gluten for weeks or months to qualify for valid testing.
    • knitty kitty
      Hello, @Hannah24 Have you had a DNA test done?  Celiac Disease is genetic.  You must have at least one gene to develop celiac disease.  You don't have to be consuming gluten for a genetic test.   Anemia, diabetes and thiamine deficiency can cause false negatives.  Some lucky people are seronegative, but still have celiac disease.  Peripheral neuropathy, tingling in hands and feet are symptoms of vitamin deficiencies.  Vitamin C, Thiamine B1, Niacin B3, Pyridoxine B6, and Cobalamine B12 can each cause peripheral neuropathy.  These same vitamins are needed to produce blood cells.  Most undiagnosed Celiacs suffer from nutritional deficiencies. The DNA test would be helpful.
    • trents
      We do hear of cases of remission but they generally eventually revert back. I wouldn't push your luck.
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