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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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veryami1

I Was Doing Well, Then...

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So I've been gluten free for two months, and finally started to see my stomach symptoms abading.  This last week, I was on a THREE week no diarrhea streak, so I thought I finally got my situation together.

 

Then BAM, last night I got sick.  My husband tells me that sometimes people just get an upset stomach, and it might not have anything to do with celiac. I know he could be right, but there's this nagging feeling that maybe I got it wrong on a few things I ate in the last few days. 

 

Do you think any of these could be the culprit?

 

1. Kimchi - the label doesnt indicate anything with wheat - although MSG is an ingredient.  My symptoms started over 24 hours after eating it.

2. white wine/champagne at various points over the weekend - maybe i just had too much and it caught up with me?

3. Gluten free labeled Oat Scones. They were made in a certified gluten-free bakery- but I've heard oats can cause a problem in some??

4. I'm on antibiotics - so maybe they just upset my stomach? or maybe wine/antibiotics together?

 

On another note, it's hard for me not to get really down about these slips when I was doing so well. What do you do do keep your head up and keep trucking?  I was doing so well! I was barely eating out, strictly reading labels, the whole shebang.

 

~Ami

 

 

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When I mess up, I try to keep in mind that I am not back to square one and will continue to gain ground if I stay careful.  Sometimes my lowest lows were followed by my highest highs.

 

Dee

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You are newly Dxed. Your gut is still raw, so kimchee and alcohol can be very abrasive. (even in a non-celiac's gut!)

 

(1) Antibiotics can wreak havoc in anyone's guts too.

 

AntiBs and alcohol---yeah, that would do it. Sorry, hon.

 

Not sure how long the course of anitBs is....but make sure you take probiotics to counter them.

 

(2) MSG always bites me on the butt. Find a kimchi without it, IMHO.

 

(3) oats can be tough on a newly diagnosed celiac gut. Many celiac docs advise waiting 1- 2 years to eat them.  I could tolerate them at 6 months, but everyone is different,

 

sadly, you have many variables at work as an explanation for your little glitch....and any or all could be a culprit.

 

You may want to eat plainly and blandly for a week or so. Sounds like gastritis to me. Do not despair, this too shall pass! you'll be okay! 

 

A stomach does not just get upset without cause, though.  There's always a reason and it is not "normal" to have gastrititis.

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You are newly Dxed. Your gut is still raw, so kimchee and alcohol can be very abrasive. (even in a non-celiac's gut!)

 

(1) Antibiotics can wreak havoc in anyone's guts too.

 

AntiBs and alcohol---yeah, that would do it. Sorry, hon.

 

Not sure how long the course of anitBs is....but make sure you take probiotics to counter them.

 

(2) MSG always bites me on the butt. Find a kimchi without it, IMHO.

 

(3) oats can be tough on a newly diagnosed celiac gut. Many celiac docs advise waiting 1- 2 years to eat them.  I could tolerate them at 6 months, but everyone is different,

 

sadly, you have many variables at work as an explanation for your little glitch....and any or all could be a culprit.

 

You may want to eat plainly and blandly for a week or so. Sounds like gastritis to me. Do not despair, this too shall pass! you'll be okay! 

 

A stomach does not just get upset without cause, though.  There's always a reason and it is not "normal" to have gastrititis.

Thanks! I think I will steer clear of the Oats, as I am guessing that is the problem. I've never noticed a problem with the kimchi, but I do notice in high doses, the MSG gives me diarrhea, but usually it's instaneous. Do you think your problem with MSG is celiac, or is it a different intolerance altogether?    I think there was a lot of stuff going on this weekend for me, and you're right, with so many factors, i'll never know!  

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Thanks! I think I will steer clear of the Oats, as I am guessing that is the problem. I've never noticed a problem with the kimchi, but I do notice in high doses, the MSG gives me diarrhea, but usually it's instaneous. Do you think your problem with MSG is celiac, or is it a different intolerance altogether?    I think there was a lot of stuff going on this weekend for me, and you're right, with so many factors, i'll never know!  

 

 

MSG always bothered me. Most food additives do.

celiacs may have additional intolerances, but even people without celiac have a tough time with MSG

 

I get the big D yes and sometimes migraines, General puffiness (sometimes followed by  Major Spacyness) :D

 

You have a mish-mash  of possible causes, but honestly, the antibiotics always mess with a body. 

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Antibiotics give some people diarrhea. But kimchi is spicy, alcohol , antibiotics, etc. - a lot of stomach busters without gluten.

"What are the effects of drinking alcohol while taking antibiotics?

Answers from James M. Steckelberg, M.D.

Antibiotics and alcohol can cause similar side effects, such as stomach upset, dizziness and drowsiness. Combining antibiotics and alcohol can increase these side effects....."

http://www.mayoclinic.org/healthy-living/consumer-health/expert-answers/antibiotics-and-alcohol/faq-20057946

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Long term, I think a lot of it is a balance between risk and reward.

After the first few months, I got really good at staying 100% gluten free, but I also learned to take very few risks. For me that means not eating out at all, ever, bringing my own food with me when I'm out and about, and I'll admit, I attend fewer things like sporting events where the duration is long but the food options are short. My kitchen is 100% gluten-free so I also don't get glutened unless I knowingly take a risk.

I do have friends and family who are also gluten-free but refuse to change their lifestyles in order to avoid gluten entirely. They still eat at restaurants, try foods their friends or coworkers have made, and don't have kitchens at home that are 100% gluten-free. So they still complain of problems such as insomnia, breaking out in hives, have anxiety, etc. Though they may think that they are doing better with their 98% lifestyles, I can tell you that they are frequently crabby, whiny,  and always seem to be suffering from something ... and they are years into being gluten-free. 

Once you manage to get through a couple months where you haven't been glutened at all, you will feel better and you'll start to make better decisions when it comes to what risks you are willing to take. Month two is still really early in the process and little set backs like this are actually good for learning about potential hazards.

That said, lots of people discover that they have vitamin deficiencies that were caused by the malabsorption or have additional food intolerances they didn't notice before. Keeping a food diary is a great way to identify the latter and deficiencies are easily identified with a blood test. B12 deficiencies can cause abdominal pain.

But I also agree that being on antibiotics and drinking alcohol means this incident has a high-likelihood of not being gluten-related.

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