• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Newbie With Question On Labs
0

4 posts in this topic

Let me start off by giving a little background on myself.  I am 27 years old and was diagnosed with Hashimoto's Thyroiditis back in 2006.  Since my diagnosis I have taken different doses of levothyroxin and everything seems to be under control except for my anti-TPo antibodies which are very high. 

 

Now fast forward to the present.... I've recently noticed that my eyebrows have started really thinning out so the obvious first thought is my thyroid, but once again everything seems to be in decent shape.  The only lab work out of range that is concerning to me was my Ferritin, it was a 10!!  I should add that I work in a laboratory so I have tests at my fingertips when I'm there so a day later I check it again and its down to 8! Why all of a sudden am I in the beginning stages of Iron deficiency anemia!? :unsure: I say beginning stages because my hemoglobin has not dropped below normal as of yet. My Vitamin D was also low for the first time ever but with the winter we had it wasn't as alarming to me and also my Vitamin B12 was to the lower end of the range.  So I started googling.....google such a great tool but also frustrating at times!! I started seeing that there is a possible link between people with Hashimoto's and Celiac disease... It made sense to me!! I could possibly have both and this is why I'm not absorbing the right nutrition.  We ran some celiac tests such as tissue transglutaminase IgG/IgA as well as Gliadin IgG/IgA,  everything came back normal except Gliagin IgG,  Mine was 3.59 IV and the range is greater than or equal to 1.1 for positive.  

 

My primary physician said that this could be a false positive and that I should see a GI doc because the only way to truly confirm a celiac diagnosis is to do a biopsy... which is fine.. I can't get an appointment with the GI until June though so I'm just a little inpatient and I guess I just want to see if anyone else has had a similar situation? 

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Yep, I have had Hashi's for 20 years. My antibodies have been off the charts over the years. I have thalassemia, so I have always been slightly anemic. Then the last year of perimenopause I began very anemic. No one suspected anything. Lowest ferritin was a 2. Went for a routine colonoscopy and the GI suspected Celiac. Blood test mildly positive but biopsy was a Marsh Stage IIIB. I was shocked as I did not have any intestinal symptoms and my husband has been gluten free for 13 years per the advice of 2 medical doctors (poor advice.....). What are the odds that we both would have gluten issues!

There are plenty of us here with a comparable story.

Edit: keep eating gluten until all test have been completed.

0

Share this post


Link to post
Share on other sites

Yep, I have had Hashi's for 20 years. My antibodies have been off the charts over the years. I have thalassemia, so I have always been slightly anemic. Then the last year of perimenopause I began very anemic. No one suspected anything. Lowest ferritin was a 2. Went for a routine colonoscopy and the GI suspected Celiac. Blood test mildly positive but biopsy was a Marsh Stage IIIB. I was shocked as I did not have any intestinal symptoms and my husband has been gluten free for 13 years per the advice of 2 medical doctors (poor advice.....). What are the odds that we both would have gluten issues!

There are plenty of us here with a comparable story.

Edit: keep eating gluten until all test have been completed.

Thanks for your story!  Doctor told me to start taking over the counter iron and vitamin B12 in the meantime and if I'm still not absorbing that then I'll have to see a hematologist and receive it through IV.  I really don't have any intestinal symptoms either, at least nothing that truly bothers me... I am just TIRED! I'm 27 and I shouldn't be wishing I was staying home in bed than going out and being with friends.  I'm trying to mentally prepare myself for the possible diagnosis even though he said it could be a false positive... Because why else would I suddenly start becoming iron deficient? Update tho my appointment with the GI got pushed to this Friday the 16th so I am relieved that I will get in sooner!  

0

Share this post


Link to post
Share on other sites

http://naturalhealthcareanddiagnostics.com/anemia-deal-breaker-to-managing-hashimotos-hypothyroidism/

 

Here is a link that talks about anemia and Hashi's thyroid disease.  I have both Hashi's and Celiac and my thyroid antibodies were off the charts high when I was diagnosed with Celiac, even though I had been diagnosed with Hashi's for about 14 years by then.  Thinning eyebrows, especially on the outside of the eyebrow, are one of the hallmarks of Hashi's.  You are probably not absorbing your meds as well so are becoming symptomatic again. Hashi's is one of the most common AI diseases that happens along with Celiac.

 

Many people, including myself, do better with a natural thyroid supplement like Armour or Nature-throid, which has both T3 and T4 thyroid hormones in it.  Make sure your thyroid physician does not just go by the TSH to monitor your thyroid gland.  When you have autoimmune thyroid disease, it is important to drive down the antibodies and many doctors do not pay any attention to that. I won't make your head spin by going into that just yet because you need to be tested for Celiac. They absolutely need to do a FULL CELIAC PANEL because tTg can become elevated from thyroid disease alone.

 

Good luck with testing!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,390
    • Total Posts
      935,831
  • Member Statistics

    • Total Members
      65,077
    • Most Online
      3,093

    Newest Member
    MayonnaisePlease
    Joined
  • Popular Now

  • Topics

  • Posts

    • Hello again i heard somewhere that if you have been diagnosed with celiac disease after all the tests have been done you are entitled to a prescription of food containing gluten free food. I am in the uk but i thought this had been recently discontinued? Anyone help.
    • Hello thankyou its always great to know that other people are going through things the same time. Yes my endoscopy is friday coming at 8.15am, been through the procedure before for diagnosing a hernia so that side of things are ok, just not sure if i needed the biopsy at first being the blood test confirmed  positive but i know now that i do need it not just for me but also for my 11 year old daughter who could also be celiac later and it would be better for her to know 100% mum is celiac.
    • Hi Whitepaw Your question about what was I eating before I fell ill is a good one.  I had given a party the previous month and there was a lot of cake left over and what is more, it was all gluten free because I had made it!  So I was eating maybe a couple of slices a day...  I was taking soluable aspirin when I shouldn't take it, really.  I was also taking iron supplements.   And adding chilli to a lot of my food - normally not a problem.   And I had a huge amount of stress going on having just completed a project and also having tests on a lump on my tongue. Oh yes - and  I ate some marshmallows which may have contained gluten?  And my son had a stomach virus at the time. High fat food + aspirin + iron supplements + chilli + stress+ possible glutening + stomach virus?  = gastritis!! I also ate quite a lot of walnuts the days before it got really bad so maybe they didn't help. I need to be much more careful - it has taught me a lesson. I'm particularly cross with myself about the aspirin and also not checking the marshmallow ingredients as I am usually so careful. I know exactly what you mean about dreading the next meal - last night I had chicken and potato again but added a tiny bit of bolognese and I actually enjoyed the meal, which I think meant it sat easier in my stomach.   I think that there is a psychological element to acute gastritis, too.  I think if one is stressed it can hang around a lot longer.  I have read a few posts from people who found after trying to do all the right things to get better it was going onto medication to help with stress that actually helped them get better in the end.  I can see that - because if I could hear the children fighting, or had a stressful conversation with someone, I could actually feel my stomach react. Anyway - thank you for your help, I am so grateful. And great idea about the food diary.  Perhaps, also, worth making a note about stress factors on a particular day, and what meds one was on.  I think ompremazole was a great way to stop the gnawing pain for me but since I have lowered the dose I have to say that a lot of the bloating and feeling of nausea has gone. I think if I ever get gastritis again I'll stick myself on a gastritis diet first, just for a few days.   If that doesn't help I'll probably check with my doctor but take ompremazole for maybe two to three weeks til the gnawing stops, then taper down.  I hope it won't happen again though!  There is no doubt about it, it is a drug to be taken with caution, but I have to say I have heard some success stories too of people who took it short term and were helped tremendously.  I think tapering off it is probably a good idea, though, because I do have a friend who I think is suffering from rebound at the moment by coming off an inhibitor cold turkey.
    • Hey all so ever since about a week ago I felt a sharp pain in my upper right quadrant, followed by a minor hotflash and it hurts to press on my right side. I'm extremely worried because I was admitted to the ER last night, blood came back fine, xray fine and ultrasound fine. What prompted me to enter the ER was the fact that now my breathing is affected..   SYMPTOMS SO FAR: Sharp Pain Touching My Right Side Minor weakness , no fever. Mucus in stools? (when i wipe its a yellow on the toilet paper sorry for tmi) Right shoulder soreness Mucus in jugular? Or lung!? The "pipe" you can feel on your neck going up to your head, somewhat warm to the touch. Aches to touch. Happens mostly at night. Began last night and returned tonight. Unusually smelly breath. Awful Constipation, when I CAN go barely anything comes out as its flaky. Slight Pain in right leg, comes and goes. Very active stomach, gurgling can be heard from as high up as my chest. Slight stomach pain relief when massaging. I'm very worried people I'm petrified of surgery and I don't want to die.. But I don't understand why everything would come clean if im experiecing these symptoms?   Anyways
    • Well thanks everyone seriously. I'm sure this will get better and I'm thankful this reaction is normal. So guilty when I think of others worse off than me. I will read and read and read until I've taught myself to feel better. And then help others ((((hugs all around)))
  • Upcoming Events