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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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Let me start off by giving a little background on myself.  I am 27 years old and was diagnosed with Hashimoto's Thyroiditis back in 2006.  Since my diagnosis I have taken different doses of levothyroxin and everything seems to be under control except for my anti-TPo antibodies which are very high. 

 

Now fast forward to the present.... I've recently noticed that my eyebrows have started really thinning out so the obvious first thought is my thyroid, but once again everything seems to be in decent shape.  The only lab work out of range that is concerning to me was my Ferritin, it was a 10!!  I should add that I work in a laboratory so I have tests at my fingertips when I'm there so a day later I check it again and its down to 8! Why all of a sudden am I in the beginning stages of Iron deficiency anemia!? :unsure: I say beginning stages because my hemoglobin has not dropped below normal as of yet. My Vitamin D was also low for the first time ever but with the winter we had it wasn't as alarming to me and also my Vitamin B12 was to the lower end of the range.  So I started googling.....google such a great tool but also frustrating at times!! I started seeing that there is a possible link between people with Hashimoto's and Celiac disease... It made sense to me!! I could possibly have both and this is why I'm not absorbing the right nutrition.  We ran some celiac tests such as tissue transglutaminase IgG/IgA as well as Gliadin IgG/IgA,  everything came back normal except Gliagin IgG,  Mine was 3.59 IV and the range is greater than or equal to 1.1 for positive.  

 

My primary physician said that this could be a false positive and that I should see a GI doc because the only way to truly confirm a celiac diagnosis is to do a biopsy... which is fine.. I can't get an appointment with the GI until June though so I'm just a little inpatient and I guess I just want to see if anyone else has had a similar situation? 

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Yep, I have had Hashi's for 20 years. My antibodies have been off the charts over the years. I have thalassemia, so I have always been slightly anemic. Then the last year of perimenopause I began very anemic. No one suspected anything. Lowest ferritin was a 2. Went for a routine colonoscopy and the GI suspected Celiac. Blood test mildly positive but biopsy was a Marsh Stage IIIB. I was shocked as I did not have any intestinal symptoms and my husband has been gluten free for 13 years per the advice of 2 medical doctors (poor advice.....). What are the odds that we both would have gluten issues!

There are plenty of us here with a comparable story.

Edit: keep eating gluten until all test have been completed.

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Yep, I have had Hashi's for 20 years. My antibodies have been off the charts over the years. I have thalassemia, so I have always been slightly anemic. Then the last year of perimenopause I began very anemic. No one suspected anything. Lowest ferritin was a 2. Went for a routine colonoscopy and the GI suspected Celiac. Blood test mildly positive but biopsy was a Marsh Stage IIIB. I was shocked as I did not have any intestinal symptoms and my husband has been gluten free for 13 years per the advice of 2 medical doctors (poor advice.....). What are the odds that we both would have gluten issues!

There are plenty of us here with a comparable story.

Edit: keep eating gluten until all test have been completed.

Thanks for your story!  Doctor told me to start taking over the counter iron and vitamin B12 in the meantime and if I'm still not absorbing that then I'll have to see a hematologist and receive it through IV.  I really don't have any intestinal symptoms either, at least nothing that truly bothers me... I am just TIRED! I'm 27 and I shouldn't be wishing I was staying home in bed than going out and being with friends.  I'm trying to mentally prepare myself for the possible diagnosis even though he said it could be a false positive... Because why else would I suddenly start becoming iron deficient? Update tho my appointment with the GI got pushed to this Friday the 16th so I am relieved that I will get in sooner!  

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http://naturalhealthcareanddiagnostics.com/anemia-deal-breaker-to-managing-hashimotos-hypothyroidism/

 

Here is a link that talks about anemia and Hashi's thyroid disease.  I have both Hashi's and Celiac and my thyroid antibodies were off the charts high when I was diagnosed with Celiac, even though I had been diagnosed with Hashi's for about 14 years by then.  Thinning eyebrows, especially on the outside of the eyebrow, are one of the hallmarks of Hashi's.  You are probably not absorbing your meds as well so are becoming symptomatic again. Hashi's is one of the most common AI diseases that happens along with Celiac.

 

Many people, including myself, do better with a natural thyroid supplement like Armour or Nature-throid, which has both T3 and T4 thyroid hormones in it.  Make sure your thyroid physician does not just go by the TSH to monitor your thyroid gland.  When you have autoimmune thyroid disease, it is important to drive down the antibodies and many doctors do not pay any attention to that. I won't make your head spin by going into that just yet because you need to be tested for Celiac. They absolutely need to do a FULL CELIAC PANEL because tTg can become elevated from thyroid disease alone.

 

Good luck with testing!

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    • Hi Stephanie, I'm also from the UK, I've found this site more helpful than anything we have!  As already mentioned above, in my experience it could depend on what and where you were drinking. Gluten free food and drink isn't always (not usually) 100% gluten free as you may know, maybe you have become more sensitive to even a trace of gluten that is probably in gluten free food/drink. Is it possible you have a problem with corn, particularly high fructose corn syrup that is in a lot of alcoholic drinks? This was a big problem for me and the only alcoholic drinks I can tolerate are William Chase vodka and gin. I contacted the company last year and all their drinks are 100% gluten and corn free, made the old fashioned way with no additives, so maybe try their products if you like the occasional drink and see how you get on. If you drink out, not many pubs sell their products but I know Wetherspoons do and smaller wine bars may too. l was never a spirit drinker but I must say their products are absolutely lovely! Very easy on a compromised gut too considering it's alcohol. I second the suggestion on seeing a natural health practitioner. I've recently started seeing a medical herbalist, as I've got nowhere with my now many food intolerances since going gluten free last year and I've noticed a difference in my health already. 
    • Sorry for the very late reply and thanks for the replies, I didn't get a notification of any. In case anyone else comes across this and has been wondering the same as I was, I did try a vegetable broth and I did react to it in the same way as if I'd eaten the vegetables.  As for the candida, I've been using coconut oil and am seeing a medical herbalist for this and leaky gut. It's only been a few weeks but I've noticed an improvement all round.
    • What did you drink and where did you drink it?   NOTE if you drink something at a bar using their glasses your asking for trouble BEER IS EVERYWHERE in most bars and a CC hell.   If it was at home and a non grain based liqour then I would be really concerned that it might just be alcohol. I personally can not really drink much of anything any more. I love rum, and I cook with it sometimes in sautes. I also have rum extract/butter rum extract/and rum emulsion I use in shakes, homemade keto pudding/ mixed into dishes. and even add some to drink to give it a rum flavor lol.
    • I can only think of two things, 1 something you put on your potato was contaminated like the butter container could have crumbs in it or something like that as mentioned before, and you could be having a reaction to dairy or what ever was put in it.......IF it was just plain potato and you reacted with bloating and cramping you might have a carb issues, tad rare and most associated with additional auto immune diseases but could be in which case a diet of fats and protein would be your answer much like it is for me now days. What all have you eaten in the privous 8 hours including beverages, condiments, spices and foods?
    • They are gluten-free.  Did you use butter that might have gluten crumbs on it?  For me , it takes more than 2 hours to feel the effect of gluten- maybe something you ate before?  Maybe  stomach virus?
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