• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Summer Parties
0

4 posts in this topic

I am feeling the crunch of summer parties , weddings, graduations and just weekend parties. I feel bad my friends make me gluten-free things and I say , I know thats so sweet but with all my other intolerances I cannot eat gluten-free products. (I don't eat what other people cook) I try and be so nice about it. I try and explain I have to read the packaging before I can eat any thing. My friends even made a salad and I didn't eat any. I think I hurt feelings. But I don't know how CC'd things are. I even went to my step daughters and she just pours everything in a big bowl and then bam I cannot eat it. Even the chips I took got mixed up with a bunch of other stuff. Ughhh! So I go, I bring stuff, then it ends out getting mixed in with other stuff. So I told hubbs I will just eat before. I will still bring stuff, try and get the 1st of what I bring. But just feeling the crunch of all this stuff! I know this is kinda a rant and I don't intend it to be. It's actually kinda depressing. I used to say eat stuff or you hurt peoples feelings! Now I am the one that goes and cannot eat a thing. Pfft!! :( 

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


completely understandable  :)  When I go to visit my parents, they finally are starting to get gluten-free but still have a long way to go.  I watch as they take a sandwich they are eating, and set it directly onto the kitchen counter, and all these alarms go off in my head.  We've talked about what needs to be done to make a meal safe, but I will still not eat anything they make unless I watch them make it and explain how it needs to be done.  I am not a micromanager in other areas of my life, but when it comes to my health and food preparations, I am quite the micromanager.  It's my health, and I'm the one who will suffer the consequences for several days if I get glutened. 

 

Do what you have to do to keep yourself healthy  :)

 

I am feeling the crunch of summer parties , weddings, graduations and just weekend parties. I feel bad my friends make me gluten-free things and I say , I know thats so sweet but with all my other intolerances I cannot eat gluten-free products. (I don't eat what other people cook) I try and be so nice about it. I try and explain I have to read the packaging before I can eat any thing. My friends even made a salad and I didn't eat any. I think I hurt feelings. But I don't know how CC'd things are. I even went to my step daughters and she just pours everything in a big bowl and then bam I cannot eat it. Even the chips I took got mixed up with a bunch of other stuff. Ughhh! So I go, I bring stuff, then it ends out getting mixed in with other stuff. So I told hubbs I will just eat before. I will still bring stuff, try and get the 1st of what I bring. But just feeling the crunch of all this stuff! I know this is kinda a rant and I don't intend it to be. It's actually kinda depressing. I used to say eat stuff or you hurt peoples feelings! Now I am the one that goes and cannot eat a thing. Pfft!! :(

0

Share this post


Link to post
Share on other sites

I don't eat anything unless I make it and I carry an insulated lunch bag with an ice pack in it anywhere I go. Maybe if your friends saw you bring something like that with you, they would get that if you didn't bring it in your bag, it doesn't go in your mouth. I would ask them to please not make me anything again because you can't eat it and you feel bad when they go to the trouble. Maybe keep your food completely separate, and don't put it out with the other food at all. That way you make a stronger division between what you eat and what others eat.

0

Share this post


Link to post
Share on other sites

My daughter and I just had to deal w/ something like this. Her father was so proud to show us all of the gluten-free stuff he bought for her graduation party and wouldn't let us... who've been living w/ celiac for 10+ years... buy what we know is good. People who aren't gluten-free think that if he says gluten-free on the box, it's good. So not true. There can be so many other issues.

 

I'm in the lunch in my own lunch box crowd. I simply tell people that while I so appreciate their concern and effort, I simply can not eat food that I don't prepare.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,433
    • Total Posts
      930,545
  • Member Statistics

    • Total Members
      63,864
    • Most Online
      3,093

    Newest Member
    Shanna
    Joined
  • Popular Now

  • Topics

  • Posts

    • I've been seeing my dr for a few weeks now about my stomach issues. We've ruled out the gallbladder and h-pylori and today I had the celiac blood tests done. From the reading I've done the past two days, it seems to me that it's highly likely that I have it. I've had digestive issues for years, but they've gotten progressively worse over the past 6 months or so. Pain and nausea when eating, bloat, eternal constipation, dh rash, at it's worse, tight cramp-like pain in a fist under my sternum, radiating through my back and around my right side keeping me up at night. Also heartburn/reflux and trouble swallowing, etc. 

      Anyway, about 2 months ago, I needed a change. I didn't go to the dr immediately because it seemed pointless. (I've mentioned stomach ache when eating to drs before and been blown off.) So, I started the Whole30 elimination diet (takes out soy, grains, dairy, peanuts, and leaves you basically eating meat & veggies). Figured it would show me what I needed to take out of my diet and hopefully feel better. It worked- I felt great! And it seems that grains and gluten are my biggest offenders. But, now I've been off gluten prior to celiac testing. It's been 7 weeks. After 4 weeks I tested steal cut oats, that I later found out were probably glutened. And then nothing until yesterday. Yesterday I had 2 pieces of bread and a muffin and today I had two pieces of bread and then the blood test. Is this going to be enough to show up on the tests? My dr said that it would probably show up, since I had some yesterday and today and was currently having symptoms. But, google seems to say that I should be glutened for 2 wks straight before testing. Has anyone tested positive after just a little gluten? If it's negative should I insist on doing it again after weeks back on gluten? I feel awful, but do want clear answers. Obviously, gluten's not going to be a part of my life any more either way. 
    • So just to clarify  had not consumed any gluten for about 4 days before testing. I was assured by my allergist that it wouldn't affect the test. But what was alarming was that she retested my food allergies (my most recent reaction was two weeks ago) and every food allergy I have came back negative. I don't understand how that is possible. These food allergies developed when I was 20 and I am almost 24 now.
    • Thanks! You too! I have learned from this experience to take charge of my own health. It's nice at least that we can try the gluten-free treatment without a firm diagnosis or a doctor confirming the disease. I've also felt some of the gluten withdrawal symptoms, and my stomach pain ebbs and flows, but I'm determined to stick with the gluten-free diet to see what a difference it makes. Gemini, thank you! This was really validating and useful for me to hear. I've felt so confused through this process and just want some answers. If the biopsy results do come back negative, I'm going to follow your advice and do the gluten-free diet with repeat blood testing after a while. If they come back positive, well, then I'll have my answer. I'm supposed to get them back next week.
    • I have celiac and eosinaphalic esophagitis.  I was put on a steroid inhaler recently.  I use it like an inhaler but swallow the air instead of breathing it in.  You may want to look into EOE and it's relationship to celiac.  Just a thought. My swallowing and celiac seem to be related.
    • You have eat gluten every single day until after testing. And the celiac blood test is supposed to be done as well.  
  • Upcoming Events