• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

I Tried To Message Gottaski But
0

9 posts in this topic

She isn't taking messages!  IS YOUR MAILBOX CLEANED OUT?  I better get mine cleaned out.

 

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


People do have the option to not receive Pms.

0

Share this post


Link to post
Share on other sites

Hi D...I don't use this PM system.

 

What ya need?

0

Share this post


Link to post
Share on other sites

I was just going to say...well, I know Lisa was on vacation in Yosemite last week on a much-needed vacation,  and now she is home, but yes, not everyone uses the PMs.

0

Share this post


Link to post
Share on other sites

Once in a while I just like to try to catch the attention of someone I think can help with a thread.

 

As for my mailbox, I will soon not be receiving mail, because I can't part with so many messages from the last 2 years!

0

Share this post


Link to post
Share on other sites
Ads by Google:


Feel free to link a thread here whenever you like.

 

I'll see it as I have responded within this thread.

 

Take care!

0

Share this post


Link to post
Share on other sites

I guess I thought you were the one that did 3 annual endoscopies.  I noticed a couple of endoscopy threads that I wondered if you could help with.  Oh, yeah one thread seemed to be saying there would be no damage left after 2 years gluten free.  I have no idea where that thread was anymore.  Another thread finally has some answers now.  Thanks.

0

Share this post


Link to post
Share on other sites




I guess I thought you were the one that did 3 annual endoscopies. I noticed a couple of endoscopy threads that I wondered if you could help with. Oh, yeah one thread seemed to be saying there would be no damage left after 2 years gluten free. I have no idea where that thread was anymore. Another thread finally has some answers now. Thanks.

Yep...I had four endoscopies...one each year for four years...the first three were similar. Only the last showed minor improvement, but still marsh iii b's and c's.

I do not have refractory celiac.

Edited to add: my case is not the norm. While many folks have lingering symptoms, most have villi recover substantially in correlation to their improved celiac antibody and nutrient absorption levels. My antibodies are all near zero and nutrients have all recovered well.

Edited by GottaSki
0

Share this post


Link to post
Share on other sites

Thanks, I am 2+ years gluten free and facing a colonoscopy, so why not do the endoscopy at the same time? I had decades, ( if not a lifetime of damage), so I expect it to take a long while.  Though I am well,  I am still in transition with feelings of constant healing, but still have some tenderness in the intestine at least at times.  I could see if I could get diagnosed by endoscopy or if healing has taken place.  NO WAY need I to think of a gluten challenge.  I am going to try to consult with the GI doctor to see if they know what they are doing first.  Also, if they care to look without the gluten challenge. 

 

Hopefully, everyone will post their ideas for questions in the other thread. 

 

Dee

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,332
    • Total Posts
      935,538
  • Member Statistics

    • Total Members
      64,994
    • Most Online
      3,093

    Newest Member
    Daisy Charlize
    Joined
  • Popular Now

  • Topics

  • Posts

    • Thank you all for replying. It's good to know that it's not just me. It gives me (and hopefully the other noobs) some comfort to know that it's normal for the ups and downs to happen. I keep trying to tell myself to be patient with it but it's so hard to be able to look down the road further than the moment when you're in the middle of it. I forgot to mention, yeah, I have had a full vitamin, mineral, and general blood panel done and everything came back normal. Regardless I still supplement with a good (and expensive) multivitamin plus sublingual D3 and B12 every day, and naturally I scrutinize the labels on those and everything else for anything even non-gluten that sounds fishy, including the possibility of CC at the factory. I guess it will just take longer to stabilize.
    • Thank you for your reply.  I did make sure to keep eating gluten before getting tested. I'm still unsure whether or not I should ask my doctor to run the rest of the tests in the celiac panel.  
    • LOL, re: trousers vs. pants.   Here in the US, trousers are a specific kind of pants/slacks, with a looser fit and often with pleats in the front.   I also read that Vit D helps digestion;  can't recall the links, but likely within Gundry's writings about lectin.   My Dr. just told me to resume 2000 IU per day, and I do think it's made a slight difference. Have also read that bone broth is helpful, its gelatinous nature supposedly coats the stomach.   I know bone broth has not been formally studied much, but again, probably can't hurt and might help.
    • I'd try the gluten free diet for a few months to see if that helps at all. Can't hurt. If it doesn't help I'd try a low FODMAP meat and veggies diet.
    • A good amount of the neurological effects from celiac are also related to nutrient deficiencies caused by malabsorbtion from damaged intestines and the fact that most gluten-free foods are not fortified and your net eating many grains. You sound good about the CC and everything and seem to be taking percations goods, I still use freezer paper for a clean safe work surface even in my gluten free home lol. Anyway top things to look for and consider are magnesium and B vitamin deficiencies . I take my in a drink to avoid pills and the sublingual forms are more easily absorbed by the body. I normally suggest 2 brand or forms of magnesium and you need to find the one that works for you there. They are Natural Vitality Calm, a magnesium citrate in a powder, you add it to a warm drink let it fizz and drink it. Magnesium citrate can be a bit harsh on some peoples guts, I suggest you start off with 1/4 tsp and work your way up to the full dose over a week, if you get D then your taking too much and need to back down or the citrate version might be too rough for you. In which case I suggest Doctors Best, bit more off tasting and mixes best with a juice but with the powdered form of it you do not have to worry about digestion issues, I just found the citrate to seem to help with my nerve issues more. B Vitamins, I take Liquid Health Stress & Energy and the Neurological Support, I take 1 tbsp of each 2-3 times a day before meals. Really helps with everything and being in liquid forms I just add to tea and drink it. There are many other vitamins to look into and we each have ones we have issues with more then others, getting tested might help, NOTE magnesium and B vitamins sometimes show normal but you will still find you need supplementation...bit of a odd thing I found. Yeah the neurological effects are  huge thing with me as my issues with this disease cause my immune system to attack my nervous system and brain....accumulated brain and nerve damage over the years. Had a whole mental trauma issues with them, my gastro issues back then were mostly just constipation. NOW days I get the Vomiting, D, gas, bloat, and then constipation for a week along with neurological issues which NOW if I get exposed to eating straight gluten (happened twice in 3 years to this extent) I loose motor control and collapse unable to move, normally while vomiting violently to the point of blood coming up (this was what happened last June 2016 after eating out).  
  • Upcoming Events