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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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27 posts in this topic

hello

I started the gluten-free diet on friday

i was doing really well except my mom bought some bread yesterday and asked me to try it she said it was really expensive and she wanted to see if i could handle it

after i ate it i started to get a feeling of being surreal

i just went on cleaning and it eventually went away

but today i ate fruit from breakfeast and veggies for lunch i had them at about 11am and at 130 i almost passed out my face is numb and i feel terrible i started to panic as well and my hands are shaking

could this be from the bread i ate or from not eating enough

my stomach feels empty

i'm terrified right now i don't know what to do ???

thanks for any advice

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sorry forgot to mention the bread was rye

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Rye is a no no ... it has gluten in it! You need a bread that says gluten free on the label. So it's likely from the bread that you are having all the trouble.

Hope you get feeling better soon!

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I went out to eat yesterday and was glutened. I feel really weird after being glutened. My speach gets a little slured and I feel buzzed. Yesterday I was even stumbling as I walked into my house. Sortly after that, I get the digestive symptoms. I too feel like I'm going to panic they day after being glutened.

I was telling my husband last night that I can't believe how sick those tiny particles of gluten can make us. Gluten is hiding in so many things. You might want to take a look at your toothpaste, vitamins etc., if you haven't done so already. There are some good suggestions for gluten-free products on the fourm. Unfortunately for us, comsuing rye, barley and oats is just as serious as wheat.

btw....my dd and I both were really hungry when we first went gluten-free but now we've leveled off. Although, after being glutened yesterday I'm starving today!! :)

I hope you get to feeling better soon.

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rye is one of the forbidden grains on the diet, and you are probably having a gluten reaction. but it also sounds as though you're not eating nearly enough. have some peanut butter on an apple, some bean dip with your vegetables, maybe some eggs, maybe some nuts for a snack, but defintely more food!

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You are probably having a gluten reaction. We can't have wheat,rye,barley, oats, spelt, kamut and a few other ones too. If you check the safe/forbidden list you will see what you can and can't have.

Do you have the lists to help as guidelines?

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I went out to eat yesterday and was glutened. I feel really weird after being glutened. My speach gets a little slured and I feel buzzed. Yesterday I was even stumbling as I walked into my house.

<{POST_SNAPBACK}>

This is exactly the kind of feeling I get after getting even the *tiniest* amount of gluten or casein. By tiny, I mean I could lick a stamp, or give a beer drinker a quick peck on the lips, and I'd be glutened. I don't even have to eat the stuff. The 'brain fog' is accompanied by severe exhaustion (too tired to even talk) and major irritability/depression. It lasts at 100% for about 5 days, and then slowly begins to fade, but I don't feel 'right' again for weeks. Anyone who thinks you can try just a "little bit" of ANYTHING with gluten in needs to understand they are POISONING you. No matter how expensive their bread is!

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hello

I started the gluten-free diet on friday

i was doing really well except my mom bought some bread yesterday and asked me to try it she said it was really expensive and she wanted to see if i could handle it

thanks for any advice

<{POST_SNAPBACK}>

It sounds like your mother may have "wheat free" confused with "gluten free". Rye is a bad thing for us with celiac disease. I'm sure she meant well. Don't worry, we all go through mistakes on this diet, but this forum should help shorten your learning curve. Also, I've read (and it helps me) to try to get more than average protein. The normal diet is about 50 grams/day, those with celiac disease should up that some - but you need to find out what is your optimum for your body. :)

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Also, I've read (and it helps me) to try to get more than average protein.  The normal diet is about 50 grams/day, those with celiac disease should up that some - but you need to find out what is your optimum for your body.  :)

<{POST_SNAPBACK}>

Which brings up a question that's been on my mind. I don't want to hijack the thread, but isn't it tough to get lots of protein in your diet if you're avoiding gluten and casein? I weight train and this is a big issue for me. I don't know how I'm going to get enough protein just from meat and/or eggs.

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There are milk, beans, nuts and good old peanut butter for protien, also all the cheeses if you are not dairy sensitive.

There is a flour free peanut butter cookie recipe in this forum somewhere that is yummy and contains protien too :D

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I might be missing something but if you want protein and you are only avoiding gluten and casien then umm how about beef, chicken, fish, eggs, peanut butter??

Susan

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Which brings up a question that's been on my mind. I don't want to hijack the thread, but isn't it tough to get lots of protein in your diet if you're avoiding gluten and casein? I weight train and this is a big issue for me. I don't know how I'm going to get enough protein just from meat and/or eggs.

<{POST_SNAPBACK}>

yeah, it's not a problem. sure, you end up eating a fair amount of meat - make sure to vary it (pork, chicken, beef, turkey, fish, shellfish and more exotic meats like bison, if you can get it). you may need to have meat or eggs at every meal if you're aiming for 200g a day (which is a LOT! even with normal weight training, from my understanding). beans and some nuts/seeds have a good amount of protein in them as well.

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Like the others have said rye bread is a big no on the gluten free diet. You really need to re-evaluate your diet now. Make sure that you read all ingredient labels for gluten and hidden gluten. Here are some sites to help you get started.

http://www.celiacpei.ca/pdfglutenfreeproductlist2004.pdf (Canadian product list)

http://www.celiac.com/st_main.html?p_catid...-22105022487.2e

http://www.celiac.com/st_main.html?p_catid...-01105324031.a9

http://www.thaikitchen.com/dietaryinfo.html

but isn't it tough to get lots of protein in your diet if you're avoiding gluten and casein?
Eggs are good for protein. Salmon would also be good.
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You need to eat more!

Make sure you eat chicken, beef, fish, etc.

Hope you're not a vegatarian!

Seriously,though, my stomach felt "empty" for a few months and then it went away. Some say it is because you have undergone a change in stomach volume. Hang in there; it will get better.

but eat, eat, eat!

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i find that nuts are a great way to keep satiated- i snack on them all day long- they are very filling and help me so i dont even crave the carbs i used to LIVE on! and peanut butter is a staple in my diet

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This is exactly the kind of feeling I get after getting even the *tiniest* amount of gluten or casein.  By tiny, I mean I could lick a stamp, or give a beer drinker a quick peck on the lips, and I'd be glutened. I don't even have to eat the stuff.  The 'brain fog' is accompanied by severe exhaustion (too tired to even talk) and major irritability/depression.  It lasts at 100% for about 5 days, and then slowly begins to fade, but I don't feel 'right' again for weeks.  Anyone who thinks you can try just a "little bit" of ANYTHING with gluten in needs to understand they are POISONING you.  No matter how expensive their bread is!

<{POST_SNAPBACK}>

Those are my symptoms too....getting glutened sucks. Especially when your licking about 20 envelopes and end up majorly spaced out and crying. That used to happen everytime I payed my bills.

Danijela,

Like everyone else already said. Dont eat rye bread. I know you are just starting the diet but if you dont do it 100% you wont know if its working or not.

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If I wouldn't be eating some kind of meat at every meal, I'd be starving, too. I am also intolerant to all the other sources of protein, I can't have legumes (which includes peanuts), eggs or milk products at all, no grains of any kind (tried gluten-free brownies yesterday, because I wasn't sure about rice being a problem, and feel terrible today, diarrhea, bloating, achiness and fatigue).

So, without meat I wouldn't be able to be on this diet, it is what gives me energy.

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If I wouldn't be eating some kind of meat at every meal, I'd be starving, too. I am also intolerant to all the other sources of protein, I can't have legumes (which includes peanuts), eggs or milk products at all, no grains of any kind (tried gluten-free brownies yesterday, because I wasn't sure about rice being a problem, and feel terrible today, diarrhea, bloating, achiness and fatigue).

So, without meat I wouldn't be able to be on this diet, it is what gives me energy.

<{POST_SNAPBACK}>

I'm afraid I'm going to be in the same boat. When I started losing weight and muscle tone, I upped my whey protein isolate intake. When I got to the point I was in constant pain, it finally dawned on me that I might have a casein/dairy problem, so I eliminated it. I love peanut butter, nuts and nut butters, but I'm afraid they're going to be a problem for me, too, as I get allergic-type reactions when I eat them. Not sure about eggs.

It's difficult to carry meat around as a portable snack. :unsure:

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I make sure to have meat and veggies in every meal I eat...really helps and for in between meals, cashew butter on a rice cake or gluten, soy, corn, yeast, etc. free bread that I make. I seem to need heartier snacks during the fall and winter and lighter snackes in the spring and summer.

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Anyone know of any "protein bars" that are Gluten-free Casein-free?

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Anyone know of any "protein bars" that are Gluten-free Casein-free?

<{POST_SNAPBACK}>

I haven't found any yet, unfortunately. Beef jerky might be an alternative (if you can find any that don't have forbidden things). You can buy jerky guns, and make your own jerky in your oven. I'll have to look into that, as homemade jerky seems like a great snack to take along when going places.

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I'm replying to the protein part of this thread...

A protein powder I like is rice protein powder. I don't like whey and soy is just not one of the things I like to taste. (edamame excluded).

Organic Food Bar makes bars that are Gluten-free Casein-free. They don't have high protein in them, but usually 14g a bar. Also some low-glycemic carbs (agave nectar). Nuts are a great idea, too. Maybe try some different kinds, maybe something you wouldn't have a reaction to?

Oh, another good protein source is hemp seeds. You can get ground hemp seeds, it's like flour, and you can use it to bake with or I would just stick it in my smoothies as a protein/fiber source. And good oils. Also, flax meal has a decent amount of protein, so adding to smoothies adds protein, fiber, and oils as well.

It's hard at first, but you'll come up with other ideas.

Stephanie

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Organic Food Bar makes bars that are Gluten-free Casein-free. They don't have high  protein in them, but usually 14g a bar. Also some low-glycemic carbs (agave nectar). Nuts are a great idea, too.

<{POST_SNAPBACK}>

I checked out their Web site... those look good. They aren't sold from the site. Do you know of any online ordering source?

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I haven't found any yet, unfortunately. Beef jerky might be an alternative (if you can find any that don't have forbidden things). You can buy jerky guns, and make your own jerky in your oven. I'll have to look into that, as homemade jerky seems like a great snack to take along when going places.

<{POST_SNAPBACK}>

First, on the jerky matter. I use a food dehydrator and make turkey jerky, you can make beef jerky in them. I have a special recipe for the jerky which is so much better than any that is store bought.

Now excuse my ignorance on being "glutened" I am still not sure where I fit in this with wheat allergies and high gluten intolerance. However, the question is: how long were you gluten-free when you realized that when you got even slightly glutened that you felt that way? Prior to being diagnosed did you feel the same before as now when glutened or do you feel worse than you did prior to being diagnosed? Does each accidental glutening make you feel worse than the time before?

Thanks for any and all answers and your patience.

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I haven't found any yet, unfortunately. Beef jerky might be an alternative (if you can find any that don't have forbidden things). You can buy jerky guns, and make your own jerky in your oven. I'll have to look into that, as homemade jerky seems like a great snack to take along when going places.

<{POST_SNAPBACK}>

Rather than using jerky guns to "smoosh" out a band of meat, I'd encourage partially freezing london broil, and slicing it, against the grain, by hand. There are a lot of jerkey recipes out there you can make (either without soy sauce, or with your own gluten-free soy sauce), and you don't need a dehydrator to do it (I prefer to use the oven, but a dehydrator will work fabulously too), it's quite easy! :-)

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