• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Did This Happen To Anybody Else?
0

6 posts in this topic

I'm a possible Celiac victim (no blood work before gluten-free). When I first removed Gluten, I felt AMAZING for a few days, but then regressed into my former symptoms. In the two months since, I've felt what I perceive to be a steady recovery, but without any jumps like that which occurred right off the bat. 

 

Is this immediate recovery followed by only gradual improvements a common experience?

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Could it be you are getting gluten from cross-contamination?  Did you clean your kitchen well?  Do you have people in your house that are still on the gluten, making it in your home? It's every where, can be in toothpaste, hair product, makeup, lip balms, pet foods, the most innocuous places.  Your significant other could also be getting you if they eat gluten and don't brush their teeth.

0

Share this post


Link to post
Share on other sites

Yes. Everyone is different. Some take months to years to heal. Good luck!

0

Share this post


Link to post
Share on other sites

Yes and no for me. I had a whole list of 40-50 symptoms that went away completely when I went gluten free, some taking days to ease up, others slower and taking weeks to disappear completely.

But it took me a couple months of having some of my pains and some other odd symptoms not ease up, and at times to be worse, for me to figure out that I must also have vitamin deficiencies. Got tested, and sure enough, I had some major ones. Treating them did knock my other major symptoms out.

And I found that I had some new food intolerances that I hadn't had before going gluten-free, so a few more foods were removed from my diet.

 

But I still have odd issues arise from time to time. Some of it I know is related to the damage that gluten did to various organs that is never going to heal. Some of it I still don't understand and continue to do research all of the time, hoping to avoid major problems in the future.

I think one of the things that I have learned through this process is how much I still don't know simply because I haven't stumbled upon the information yet, and how much the medical community still doesn't know because so little research has been done in this area.

0

Share this post


Link to post
Share on other sites

Hi Sidelined.

 

I'm assuming you've seen your Doctor for a look at your symptoms, you may also want to consider a gluten challenge to do blood testing and endoscope.  You could have any number of issues going on and not necessarily Celiac.  You don't want to leave a medical issue untreated and you also would not want to undertake a medically necessary diet if not diagnosed with Celiac.

 

Good luck with what you decide.

 

Colleen

0

Share this post


Link to post
Share on other sites
Ads by Google:


I had the same thing happen. I felt good for a week and now, for the past month, I have felt terrible. I haven't been able to socialize, work or do anything because I'm super exhausted, nauseous and weak. The doctor keeps telling me to be patient. It seems like I get a tiny bit better every week but not a lot. How long before I will feel back to normal??

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,345
    • Total Posts
      935,621
  • Member Statistics

    • Total Members
      65,025
    • Most Online
      3,093

    Newest Member
    Brenda Smith Hicks
    Joined
  • Popular Now

  • Topics

  • Posts

    • Ebetta posted this 6 years ago ... not sure she/he will respond
    • Welp, according to the lady at the gastro's office, my tests were all "fine" and I don't have cancer or celiac. I asked for a copy of the report so hopefully that will happen. I guess I will follow up with my family practice doctor and see what they think I should do next, but I am not going to go back on gluten again. My eye doctor is concerned about an inflammatory condition in my retinas, that is rapidly advancing over the last year and thinks that anything I can do to decrease inflammation should be done. So to me, that means sticking with gluten free and lots of vegetables, especially the leafy greens. Also need to figure out why my liver enzymes are elevated. This is the third time in the last 9 years according to my old labs. I've gone over all my supplements and my one medication (compounded thyroid) to make sure they are all gluten-free. My plan is to live like I have celiac disease from here on out. My only dilemma is what to give people as a reason why I can't eat the food they make for me. For now, "Gluten makes me deathly ill" is going to have to be good enough. thank you all for the help and advice! I've found a wealth of information here and am currently reading Dr. Fassano's book and a couple of different threads on this forum that are incredibly helpful.
    • Hello ebetta! Can you tell me have you found any other or even better drugs to help you with gastroparesis? 
    • That's interesting, thanks.  I will look into both - and I believe our forefathers' habit of boiling up bones was good for the joints, too.  I wonder if you could tell me, did you lose much weight through all of this? I have lost about 4-5 pounds since this began, and I don't really like losing weight when I'm not trying to. Mind you - some days I just can't eat, after lunch yesterday I couldn't face anything much at all.  
    • A gluten free multi won't hurt but it would be better to call your doctor and get them to give you a lab slip for a vitamin and mineral panel. At the least get your iron levels checked before you supplement as that can be toxic over time in large doses.  May not be the case for you but when I went gluten free I started eating a lot more soy. Turns out I am sensitive to it and it gives me issues similiar to yours. Some of us do have issues with other foods. Dairy, soy and corn are pretty common. If you consume any you could try eliminating them and see if things improve. If when you add them back into your diet your symptoms return then drop them again until you have been very well healed.
  • Upcoming Events