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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

How Long After Gluten Free Diet?
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4 posts in this topic

This is my 6th pregnancy. My first two are miscarriages, the 3rd my son was born, 4th was miscarriage, and 5th my daughter was born. Now I am on my 6th and noticed that I am likely miscarrying again. :(

 

I accidentally noticed that I feel better on a gluten free diet. My husband has health issues, so we put him on a gluten free diet and so naturally, I began eating gluten free (easier to cook that way). After a while of eating gluten free, I noticed that every Sunday I would get that gross carsick feeling and terrible headaches. I couldn't figure it out for a long time; until I realized that every Sunday I ate gluten (potluck at church). I started bringing my own meal (for just myself) to church, and the problem went away (I also noticed that coffee gives me the same symptoms; but I was able to test each one and confirm that it makes me feel ill; weird).

 

I didn't bother going to the doctor about it because it's about a 1 to 2 year wait to see a gastroenterologist. And then even after you see them, it takes another 6 months or so to get tested for Celiac. And then after you're tested, it's another several months for the biopsy results to come in. My husband went back on eating gluten for that specific purpose and then tested... so we know about the waits. :(

 

So my question is, how long after being gluten free will it improve fertility? I have been gluten free for almost a year now. I was so sure this pregnancy would turn out well. :( :( :(

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I'm so sorry for what you're going through right now.  I don't know the answer to your question, but I once read a study (Sweedish, I think?) about pregnancy and celiacs, and in the study the women followed a strict gluten free diet for two years before getting pregnant to study pregnancy outcomes vs women who did not follow a gluten free diet. So perhaps there is some belief that two years is the reccomended time frame to allow your body to fully recover?  I would assume that is what the Sweedish scientists believed anyway. 

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I am so sorry for your loss. :( I had been gluten-free (also self diagnosed in 2002, I know it makes me sick, so I stay gluten-free) for about 6 years before I met my now husband (married 4 years now!). We knew quite early on that we wanted to be together (I was 28, he was 31), so we didn't prevent anything. I did not get pregnant until we had been together for 7 months. I had started giving up by then, thinking I wouldn't be able to have kids. What I noticed though, after I got pregnant was that I had been taking a vitamin B6 supplement for 2 months when I got pregnant! So I looked it up, and apparently, vitamin B6 is linked with better pregnancy outcomes!  Then 6 months after my daughter was born, I got pregnant again, but it was a surprise. I started taking the B6 again (as I hadn't been taking it) as I suspected pregnancy, but I unfortunately lost that pregnancy. My next pregnancy was planned and I made sure I was taking the B6 again, and have a beautiful daughter. I got pregnant again when my daughter was 8 months old, but I had been taking the B6 supplement incase something happened again, and have a wonderful son! (So 4 pregnancies, 3 babies, and 1 loss.) For me I swear it was the B6 that made the difference, and helped. I also kept taking the B6 until the pregnancy was further along in case something might happen if I stopped taking it. I don't know if this will help or not, but it can't hurt to try!

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I am really sorry. But don't worry eveything will be fine.

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    • http://www.cureceliacdisease.org/faqs/ You can also find lots of information on celiac at the University of Chicago celiac site.  One test they suggest is the anti EMA antibodies.  I don't see that one listed in her results.  Probably because it is more expensive to do.  So they may have skipped it.  The other test they usually do is the total serum IGA levels, which is used to prove that the person's immune system actually makes IgA antibodies.  Some people don't make IgA antibodies, so the IgA tests are useless in them. It looks to me like she makes IgA though, if this is the serum IgA result. IgA 133 mg/dl Reference range 33-200 There are also gene tests they can do.  The genes indicate the possibility of developing celiac disease, not the automatic presence of celiac disease.  About 30% of people in the USA have one of the genes for celiac disease, but only about 1% develop celiac disease. Some of the celiac genes are associated with other autoimmune conditions besides celiac disease.  So there are lists of AI associated conditions with celiac disease.  Sometimes called related conditions. http://www.drschaer-institute.com/us/celiac-disease/associated-conditions-1051.html
    • Blood was drawn this afternoon... they said I could get results tomorrow or even the next day! I also have a GI appt scheduled for June 9th. I am so glad I will have at least some kind of answer pretty soon. I'll let you all know. Thanks again for being so helpful!
    • Thank you so much for those links, I will check into it. Her pediatrician told me this afternoon she is wanting to repeat the bloodwork since that one test was elevated. I'm relieved that her pediatrician didn't dismiss it like the other dr in the practice did.
    • http://www.houstonceliacs.org/ https://www.csaceliacs.org/csa_chapter_25.jsp You can check with these groups to see if they recommend any doctors in Houston.
    • I have been having issues with gluten for quite some time now and decided to go gluten free back in October, I finally got the celiac blood test a couple weeks ago and it came back inconclusive. My doctor referred me to a gastroenterologist who I saw today, she told me I'd have to eat gluten rich foods for 1 month and then have another blood test done....of it comes back negative she said I'd need to eat gluten another few weeks (up to another month) and then do a scope and biopsy....this would be hell on me as I have severe cramping and nausea when I am exposed to gluten.  I haven't actually eaten anything that is straight gluten like bread so I'm not sure what would happen. She gave me the option to hold off and continue my diet or go through 2 months of pure gluten exposure (and pain) my question is has anyone been faced with this? Should I just continue with my gluten free diet and assume I have it or is the diagnosis really that important? Doc says based on my symptoms and reactions I more than likely have it. 
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