• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
greenbeanie

Scared Of What Colonoscopy Might Find

Rate this topic

Recommended Posts

I'm having a colonoscopy on Friday, and I'm getting worried that something else is really wrong, in addition to the gluten problem. I'm not worried about the procedure itself, just the results. My previous doctors never referred me to a GI when the daily diarrhea, insomnia, and SI joint pain started as a teenager (22 years ago), telling me that this was just "normal for me" and that occasional blood in my stool wasn't a cause for concern as long as it was bright red, because it was probably just irritation from toilet paper and would only be a problem if I became anemic. I regret not pressing harder for a colonoscopy when I had my endoscopy last year, but I was so glad to finally have a doctor who agreed to celiac testing that I didn't want to push my luck, and she said it wasn't necessary at the time because I'd already had such a good response to a gluten-free diet. Then my celiac tests were negative (after an awful gluten challenge that might not have been long enough), and both of us were very surprised. But the diarrhea went away within a week of eliminating gluten and stayed away all year, plus my neuro, balance/coordination, and skin problems also improved hugely over the next few months. So I thought I'd found the underlying problem despite no definite diagnosis, and for the past year I have been pretty content to wait patiently and see what else clears up with time.

However, six weeks ago the diarrhea came back with a vengeance. My colon is so swollen that, er, it's hard to get even very loose stool out. I feel mildly nauseous all the time, and my SI joint pain and insomnia returned. No visible blood. I cook most of my food myself, from unprocessed ingredients, and I triple-checked all condiments, vitamins, and toiletries. I really don't see how this could be a gluten reaction - except that it did start around the same time my daughter had a resurgence of her celiac symptoms, which coincided with possible exposure to minuscule amounts of inhaled gluten for several weeks (but this seems more likely to be a coincidence: see http://www.celiac.com/gluten-free/topic/107965-mulching-straw-a-concern/ ). Anyhow, my daughter improved again shortly after that while my diarrhea is still going strong weeks later...which is why I'm worried that something unrelated is really wrong in there.

For those of you who had colonoscopies, were they able to tell you right away whether everything looked okay? Do they automatically do biopsies, or only if they spot visual problems? I'll certainly request biopsies when I see the doctor before the procedure, but she assured me that she'd do "plenty" of biopsies during my endoscopy last year, and I later found out that she only took four. And can they even do the colonoscopy if your colon is really swollen? I just want a clear diagnosis once and for all...but I am scared they're going to find something seriously wrong (and not correctable by diet) in the lower end...

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Hi Beanie.  Turn your thinking around.  You FINALLY will find out if there is a serious problem "down there"  It is always better to know, then you can take appropriate actions.  Keep a positive attitude going and try to relax some.  This really is a good thing!!

 

Good Luck.

 

Colleen

  • Upvote 1

Share this post


Link to post
Share on other sites

Thanks, Colleen. I know you are right - there's nothing to be gained by worrying about it, and I'll have the results soon enough.

Share this post


Link to post
Share on other sites

Yes, me too.  I have one scheduled in July.  We just discovered blood in stool.  I might have really freaked about it, but found out my problem use to be worse before my diagnosis.  I believe it was about the time we did our sheet rock mudding project.  I remember blaming the new low flow toilet for my problems.  Learned this week that tar like stool shouldn't be ignored!  Live and learn and let your family know.

Share this post


Link to post
Share on other sites

When you say "blood in stool" do you mean bright red blood that's clinging to the stool or coloring the toilet water? Or do you mean black stool that indicates bleeding higher up that's completely mixing w/ stool and turning it black? The first is common and often blamed on things like internal hemorrhoids while the other shows the need for more study to find the cause. Like the others have said... knowing is what's important!

Share this post


Link to post
Share on other sites
Ads by Google:


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,925
    • Total Posts
      943,547
  • Member Statistics

    • Total Members
      67,162
    • Most Online
      3,093

    Newest Member
    Paula Glenn
    Joined
  • Topics

  • Posts

    • Ouch I am sorry . I know how painful bone,  joint, muscle pain can last weeks for me . Hopefully you'll be able to clear it quickly if otherwise you have been healthy this season. As others suggested some TLC , vitamins, mineral to assist may help. I find accupuncture helpful too or massage. As for a gluten-free pizza I can no longer have them due to additional intolerances to milk. I in past days found sabatassos gluten free pizza carried at my local Costco pretty yummy if you can find it.
    • Maybe it was not the chili.  Maybe you are sick with the flu?  Sometimes, we jump to the conclusion that celiac disease is the cause of our current symptoms.  I know I have done this.   Hormel is NOT considered good, but it is gluten free and safe.  I give it to my kid on top of gluten-free pasta or corn chips in her thermos.   Add plenty of cheese and it is pretty good.  Though I admit, I used to think the burritos and strips I purchased at the beach shack as a kid were SO good!  😆 Even bad cooks can make a simple chili.  Follow any recipe, but sub out the spices for Carroll Shelby’s Chili mix which is even certified gluten-free.   My recipe is 2 or 3 pounds of cooked ground beef, 32 oz can of beans (I usually make my own beans), a can of diced tomatoes, and Hatch’s green chili’s.  I suppose you could add some cocoa to change it up.  Do not hold me to this recipe regarding the ratios of ingredients as I do not follow one as my batch size changes, etc.  I cut back on the spices when I see my family sweat!  😆    
    • This is really a general post about alkalinity and being in the news these days. Alkalinity is totally trendy, but I encourage people to educate themselves about this and not rely on trends. I don’t mean to suggest that I know everything there is to know about this, but, for example this site (http://www.foodenzymeinstitute.com/articles/digestion-in-the-stomach.aspx?list=bydate) states: [Certain enzymes are] only active within the pH range of 3.0 to 5.0 and require the acid to maintain that pH. Pepsin is very specific in its action and is simply incapable of digesting food enzymes, which are very large molecules and are more than just protein. This sites (https://www.livestrong.com/article/459954-the-acid-base-balance-in-the-digestive-system/) states Antacids increase the pH in the stomach, which might make the enzymes in the stomach less effective. I think the focus on alkalinity and acidity in our foods currently en vogue is a huge distraction and a big waste of time. To me, it represents the two steps backwards in the notion of progress. I’ll end with Dr Andrew Weil — https://www.drweil.com/health-wellness/balanced-living/healthy-living/why-alkaline-water/ “Don’t waste your money. Alkaline water is being aggressively marketed for its purported health benefits. It is touted as the solution for everything from helping the body better absorb nutrients to reducing the risk of high blood pressure, high blood sugar, and heart disease, as well as boosting energy, helping you lose weight and slowing the aging process. It is also said to be “more hydrating” than any other type of water. Alkaline water is supposed to achieve all this by correcting the body’s pH, its acid-base balance. In fact, the human body needs absolutely no help in keeping its pH constant. “ /rant
    • After my hiatus hernia was diagnosed they advised me to eat small meals spread out across the day, maybe that may help?
    • Ah I've googled it, as you guessed I was thinking of chilli con carne, this is something different!  Sorry I can't be of help.                      ps, no offence, am sure it's lovely but I did find this hilarious: https://deadspin.com/the-great-american-menu-foods-of-the-states-ranked-an-1349137024 
  • Upcoming Events