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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Common Deficiencies & Shortness Of Breath
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sidelined    0

I've been gluten free for almost 3 months, but I'm still feeling pretty lousy. Just found out my vitamin D is quite low (level was 15; "normal" range starts at 30). I'm hoping that explains some of the lethargy etc. My most troublesome symptom continues to be my shortness of breath/inability to catch a breath/air hunger. I haven't been tested for any other vitamins/minerals & related deficiencies, but as Vitamin D is typically not correlated with SOB, I'm curious about other's experiences with deficiencies and wondering which are most common to Celiac.

 

Thanks!

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HavaneseMom    5

Hi sidelined,

I had Vitamin D, B12 and Iron checked around the time of my diagnosis. My D and Iron came back deficient. Have you had your iron levels tested? I have noticed a lot of people on this forum have had anemia at diagnosis. Low iron or iron definciency anemia could definetely cause shortness of breath and fatigue. I couldn't walk up the stairs at my house without gasping for breathe when it was at its worse. Ask your doctor to have your Ferritin level tested specifically, in addition to the Complete Blood Count if it hasn't been done yet. If you are having a problem with iron, your Ferritin level could show it before your CBC will. I did a quick search and found this link that explains it better:

http://ibstreatmentcenter.com/iron-anemia-ferritin-and-fatigue

Hope you feel better soon. If it is your iron, it might take a little time to correct. I'm still working on mine.

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KCG91    17

Definitely get your iron levels checked if you are short of breath. I have always exercised a lot and never got any quicker - and could never walk up the hill to lectures without puffing - until I got tested and got onto some supplements. Six months in my absorption is good enough to handle it alone :)

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NatureChick    18

Ditto on the iron but I'd make sure they check B12 as well. But I'd get a full panel that includes about two dozen vitamins and minerals.

Here is an official list of the deficiencies common in celiac.

http://www.cureceliacdisease.org/archives/faq/what-common-nutrient-deficiencies-might-an-adult-experience-prior-to-diagnosis

But before you get more tests, get the printed copy of the tests you have already had. Just testing vitamin D would be pretty odd. It may be that the doctor only mentioned the one that tested as being low. But just being in the normal range doesn't mean that a level of something is ideal, and many "normal" ranges dip low enough to still cause symptoms so you have to get your results in hand and do your own research.

Sorry that I know nothing about shortness of breath as a symptom, but I wish you luck.

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nvsmom    332

Other nutrients that can be a problem are Ca, A, B12, Fe, Mg, K, zinc, Mg, and Cu.

 

Hypothyroidism can also cause fatigue and it linked to celiac disease.  It might be something to check out.

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