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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Candida?
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5 posts in this topic

Hi all!

I'm a newbie here but not a newbie to coeliac disease. I'm a 25 year old girl, on a glutenfree diet for 5 years now. Though a lot better than before the diet, I'm still exhausted. Too exhausted to have a life, too exhausted to study, too exhausted for almost everything.

That's why I'm going to have a bloodanalysis for candida.

Has anyone here any experience (good or bad) with a candida treatment? Did it improve things or not?

Many greetings, Flurriewurrie.

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Hi. Yes before I went gluten free I went on a candida diet. I had good results with it. The die-off stinks but is well worth it. I went on a year cleansing program using antifungals. It is tough it really is but I needed to clean my body out which I did. I have been bad again and into the sugar but need to change all of that. THere is a wonderful website that has a message board and tons of help that you can go by and sells products. I've used their products and can say that they definitely work. If you have any quesitons dont hesitate to contact me. I'm not sure if we can post links on here or not otherwise I would give you the website.

But if you are interested you can email me and I will gladly help you out in any way I can. bikerblue@yahoo.com

Tami

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Flurrywurrie, who is doing your candida test? Many doctors are skeptical about this which is not to say that it does not exist.

I suspect other grains besides gluten may cause fatigue--the book Dangerous Grains is interesting on this point.

I assume you've had a full workup--thyroid (full panel, not just TSH), Iron, Folate, B12, other deficiencies?

How about a viral or bacterial infection (as opposed to fungal)?

I mention these things just to be thorough.

Best wishes!

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Here something pertinent from: http://jnnp.bmjjournals.com/cgi/content/full/72/5/560

"But my patient has not responded to a gluten free diet"

Reports in the literature of the effect of the gluten-free diet on neurological dysfunction are conflicting. Almost all patients reported in the literature have the diagnosis of celiac disease before the development of neurological dysfunction. They may represent a different group of patients from those presenting with neurological dysfunction without bowel involvement. Additionally, improvement of gastrointestinal symptoms and improvement of the histological abnormalities on repeat small bowel biopsy often were the measures used to assess the response to the diet. Serological evidence of response (for example, sustained elimination of antigliadin antibodies) has rarely been used as confirmation of strict adherence to the gluten-free diet. Incomplete elimination of gluten from the diet may be enough to abolish gastrointestinal symptoms with recovery of the small bowel mucosa but is insufficient to arrest the state of heightened immunological responsiveness resulting in neuronal injury. There is a group of patients with celiac disease "resistant" to gluten-free diet. This may reflect hypersensitivity to the minute amounts of gluten present in most "gluten-free" products. An analogous situation may exist in cases of gluten ataxia or gluten related neuropathy. The monitoring of neurological improvement in such cases is made difficult by the slow and sometimes incomplete regeneration of the nervous system. In cases of gluten ataxia where the underlying pathology is loss of Purkinje cells, one may only expect the stabilisation of the disease without any definite clinical improvement. This is in marked contrast to the response seen in patients with florid gastrointestinal symptoms who notice almost immediate improvement after the introduction of a gluten-free diet.

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Hi!

Tami, thanks a lot for the hope you gave me! So, I don't have to be so skeptical about it? And yes, I would very much like to contact you further on that topic, you may expect an e-mail from me, thanks a lot!!!

YankeeDB, also thanks for your reply! I've just had my bloodwork done, I'm waiting for the results. My blood will be analysed for deficiencies (iron, folate en B12, and no matter what the results of the B12 will be, I'll be getting 8 injections with a high dosage of it.), for Pfeiffers disease (wich I' ve also had a couple of years ago), for glucose and for thyroid disease (unfortunately only TSH, my doctor didn't want to test the others)

For the candida, I'll be seeing an alternative doctor who has a good reputation so fingers crossed...

About the other grains, I also have to avoid fructose (lactose too, by the way) so I can't have corn anyway.

And with me,rice always causes the same symptoms as do gluten. Do you avoid grains completely? I don't have any problems with buckwheat, quinoa and amaranth. But those aren't grains, are they?

Unfortunately, I'm one of those sensitive persons: I can't have the smallest dosage of glutenfree wheat or dextrose made out of wheat. Contamination is also a serious problem with me.

But I refuse to except this fatigue! So: fingers crossed for the results of my bloodwork, the results of the B12 injections and the results of a candida treatment...

Anyway, thanks a lot for your replies!!!

Greetings to you all, Flurriewurrie.

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    • Hi All, I just got back from my first visit to Montreal in a couple years, and had to report back. STUFF IS HAPPENING THERE!

      One word: Croissant.
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    • Hi ScarlettsDad, Sorry such a slow reply to this, but I also live in Toronto and definitely have a few safe suggestions. Of course, my tastes and your 5-year-olds are probably quite different, but I've got a few we might all agree on. First of all, as a general rule: don't order the gluten-free pizza/pasta anywhere unless the kitchen can prove they use dedicated equipment to prepare and cook it: fresh water for pasta, separate prep area and oven or other protective measures for pizza. Any place with flour flying around on a regular basis is going to be a real gamble no matter how careful the staff are. Anyway, here are a few Celiac safe and kid-friendly spots:

      Off the Hook: fish and chips, you say!? that are safe?! YES! It's true! This fantastic fish&chips joint is on Broadview just south of Danforth. They have a gluten-free chickpea batter, and keep everything safe by having a dedicated fryer for gluten free things, and another dedicated fryer just for fries! I have eaten there many many times and never gotten glutened (though it's still fried food, so have to go easy on it). It's a good spot to hang out if it's not busy, or you can get take out.

      The Dirty Bird: This is more of a takeout spot, but again with the fried food. They use a rice flour batter for the chicken, and the fries are safe too. They do make regular waffles, but can do gluten-free as well. There are 2 locations - one in Kensington market, and one on Bloor near Bathurst. Arepa Cafe - on Queen between spadina and bathurst. One of my favourite places to get a quick meal, but you could easly hang around for a while. Arepas are corn bread stuffed with stuff. Little tricky eating for small hands, so can get a platter instead. Almost everything (except I think for fried stuff) is gluten-free. Magic Oven - I can't do dairy either, so this is my occassional pizza splurge. They are very conscious of gluten free safety, have a dedicated fryer for fries (and wings!), make pretty decent pizza though it is not cheap.
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