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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Symptoms Worse After Going gluten-free
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Good evening everybody! 

 

As I said in a previous post, I was recently diagnosed with Celiac Disease and my doctor said that a gluten-free diet is imperative. I was diagnosed with Crohn's about 9 years ago, so pre-gluten diagnosis, I often got sick from various foods I ate. However, I've noticed that since going gluten-free, I actually am getting MORE sick than I was before when I ate certain foods. Did any of you have that experience after going gluten-free? My best guess is that now that I've been eating gluten-free for a few weeks, my body is even more sensitive to gluten than before which means it definitely was a gluten allergy after all. I just find it odd that pre-diagnosis, I would get sick a lot after eating certain foods. And post-diagnosis, since eating gluten-free, if I eat something wrong or that contains gluten, it goes through me almost immediately and I get even more sick than I used to. Just looking for some more reassurance because it's been one heck of a ride - physically and especially emotionally. Thanks!

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I have noticed since my diagnosis ( three months ago today) that is seems like every food bothers me at some point in time.  I can eat corn today and feel fine but I eat corn tomorrow and get sick.  Right now our bellies are so sore and inflamed from all the gluten damage, it's going to take time.  I was all worried that I have a ton of food intolerances but I just need to let my guts heal and go from there.

 

I try to limit the variety of foods I eat in a day.  I limit my meals to three ingredients( not counting seasonings), this has helped me a lot.  I also noticed that if I eat 5 smaller meals rather than three regular meals, my belly is a lot happier.  I try not to eat too much of one thing either, I have noticed that a lot of sugar can bother me ( gluteny symptoms ) or a lot of foods that are harder to digest.  I am also trying to stay away from processed foods, condiments are pretty much all I eat that is processed right now.  It is really hard to find a balance but the only way for me to learn right now is the hard way, so if I find a balance that works, I stick to it.  I have noticed that some things are bothering me and I don't need an elimination diet to figure it out.  Garlic hates me!  I really hope I can get that one back later, I really love garlic.  I can't eat too much soy in a day either so I really watch what it's in. A little is ok, a lot is not.

 

I think we just notice more now how crappy food makes us feel because we know that is our problem.  I was eating only Ramen noodles before my diagnosis, I thought they were the only thing I could eat without projectile puking.  Lol, how dumb was I?

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Are you combining the Chron's Diet and the gluten-free diet.  Stick to Whole foods, no processed items.  Start taking a good probiotic.  You may feel more severe symptoms if your getting gluten.  Some times the symptoms will evolve to different symptoms.

 

Have you read the Newbie 101 thread under the Coping Section.  It is a must to get a handle on this diet.  Be sure to read all the links too.

 

Good Luck

 

Colleen

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I have noticed since my diagnosis ( three months ago today) that is seems like every food bothers me at some point in time.  I can eat corn today and feel fine but I eat corn tomorrow and get sick.  Right now our bellies are so sore and inflamed from all the gluten damage, it's going to take time.  I was all worried that I have a ton of food intolerances but I just need to let my guts heal and go from there.

 

I try to limit the variety of foods I eat in a day.  I limit my meals to three ingredients( not counting seasonings), this has helped me a lot.  I also noticed that if I eat 5 smaller meals rather than three regular meals, my belly is a lot happier.  I try not to eat too much of one thing either, I have noticed that a lot of sugar can bother me ( gluteny symptoms ) or a lot of foods that are harder to digest.  I am also trying to stay away from processed foods, condiments are pretty much all I eat that is processed right now.  It is really hard to find a balance but the only way for me to learn right now is the hard way, so if I find a balance that works, I stick to it.  I have noticed that some things are bothering me and I don't need an elimination diet to figure it out.  Garlic hates me!  I really hope I can get that one back later, I really love garlic.  I can't eat too much soy in a day either so I really watch what it's in. A little is ok, a lot is not.

 

I think we just notice more now how crappy food makes us feel because we know that is our problem.  I was eating only Ramen noodles before my diagnosis, I thought they were the only thing I could eat without projectile puking.  Lol, how dumb was I?

My husband has had similar problems, and we keep cutting out foods, but he still has digestive issues with almost any grain, rice, bean, oat etc. I found this site today, and she has been to Columbia University where new research is coming out about this, she lists the supplements she is taking to heal her gut, not just stay away from problem foods. I am going to try my husband one of these at a time and see if we have good results. This is a journey, we are gluten free, dairy, soy, nut, and most oil free as well right now. Good luck and don't lose hope, there are many out there that are on this journey. You just have to find what you are sensitive to, and find supplements that might help you heal!  http://www.theceliacdiva.com/im-gluten-free-and-still-sick/

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    • Your issues is probably with the carbs then. there is a alternative. best pricing is miracle noodle. For Konjac rice substitute. Konjac flour works with some people others it does not. https://miraclenoodle.com/collections/miracle-noodle-rice-products There is a trick to cooking it but they make no carb noodles, and rice. I use the rice to make all kinds of rice like dishes like my mothers mexican fried rice etc. It does have a tad off texture and flavor but comes close. If your looking for no carb breads Julians Bakery makes some pretty decent breads but you HAVE to toast them to use them. I just found them a month ago....First time eating a bread in 2 year, and first time in as long as I can recall eating one that did not make me feel bloated and fat. No carbs, no sugars, no yeast, no dairy, no soy, and very low sodium...... Been eating french toast, vegan cheesy bread, bread with almond butter and sugar free jam I have honestly been in food heaven since I found it. BTW some celiacs can not tolerate any grains very rare but it happens.    OH and on what I have is really bad Ulcerative Colitis, so I have a bunch of other trigger foods that cause inflammation, bleeding, distention, constipation, gas, bloating etc. Carbs/sugars is a huge one for me fructose, glucose, sucrose.
    • They rotate growing rice and oats in the same crop. I unfortunately am intolerant to oats.  I have Dysbiosis according to a stool test, which is why I am quite sensitive to gluten among other foods.  May I ask what AI you have that makes you sensitive to carbs? I have been in and out of the doctor since November 2016 with chronic pain.  Trying to figure out what is going on with my gut, it's terrifying. I tried Dynasty jasmine rice from Thailand the other day which was recommended in 2009 by someone on here and a few hours later had the worst low blood sugar attack I'd ever had in my life. I am severely underweight due to the pain and I think this happened because I ate a bit too much (I LOVE rice) upon my first introduction back into my diet.  Even so I reacted just as I do when I ingest gluten (intense anxiety/hard to breathe/fast heart beat/constipation/intense pain under my ribs) So I don't think Dynasty is a safe brand, not for me at least. I only react this way to gluten. My other food sensitivities, the symptoms pop up around 24 hours later and are completely different. 
    • Thanks so much for the information. I tried Dynasty jasmine rice which was a recommendation from a sensitive individual on here. The post I believe was from 2009 so there's plenty of time for practices to have changed. I only ask this here again for updated information as I tried the Dynasty brand and got sick. I do not have Celiac disease (according to an Endoscopy) however, I have been gluten-free for 2 years and only ate a cookie or a donut maybe a few times a month for a year and a half before I was tested. I actually like going without gluten as I get less low blood sugar attacks and rarely ever get migraines. Not to mention, before I had the Endoscopy I was fasting for 2 days with no food or drink while I received other tests while I was in the hospital. I also got a colonoscopy at the same time so I had to clear my system out completely. My doctor believes I have a non-Celiac gluten sensitivity due to my symptoms after ingesting gluten. I was diagnosed with Dysbiosis so it could be my body lacks the correct bacteria to break down gluten. I have several other food intolerances including dairy and oats which many facilities process along with rice. 
    • Hi   I'm in the UK so brand recommendations probably no help to you, although we have Uncle Ben's over here which is fine to my knowledge. I have to say I approach rice on the assumption that it should be safe unless I hear otherwise, that may not be the best approach if as you say you're particularly sensitive and want to cover all the bases. The exception to this is the precooked rice you can find over here in pouches designed for the microwave. That can be a problem.  If you have a brand you normally use or that's readily available you could try googling it to see if anyone has reported issues and of course contacting them directly to check with them. This forum is also worth searching in that way as over the years there's been many accounts from users of their experiences with different brands and products so you could try searching a brand name with them.
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