• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

My Nd Tested Me For These -- Are These Right?
0

6 posts in this topic

Hi All

 

I'm still in the waiting timeframe -- it will be 4 weeks this Friday so I'm hoping I'll find out my results soon. 

 

After having my blood work done at the Naturopath, I followed up asking what was tested and she said these:

 

Tissue Transglutaminase

IgE Wheat

IgG Gliadin

IgA Gliadin

 

I've looked around online to see if these are accurate tests to have done, but thought I would ask here too since they look different than the other tests people have.

 

Also, I've been following the SCD as a trial to see how I feel and when I "slip up" I have my normal IBS stuff, sadness, low energy, but I've also now noticed a low down kidney ache... I think I've always had this feeling, but never paid attention. Now that I'm having really really good days, this ache is quite noticable when I do eat something with gluten. Could this be from something else? My MD ruled out gluten sensitiviy/celiac because "You don't look skinny enough for celiac" so I've been hesitant to go back about all of this (I just need a new MD actually!)

 

I'd love any input anyone has about either of these topics. 

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Hi All

 

I'm still in the waiting timeframe -- it will be 4 weeks this Friday so I'm hoping I'll find out my results soon. 

 

After having my blood work done at the Naturopath, I followed up asking what was tested and she said these:

 

Tissue Transglutaminase

IgE Wheat

IgG Gliadin

IgA Gliadin

 

I've looked around online to see if these are accurate tests to have done, but thought I would ask here too since they look different than the other tests people have.

 

Also, I've been following the SCD as a trial to see how I feel and when I "slip up" I have my normal IBS stuff, sadness, low energy, but I've also now noticed a low down kidney ache... I think I've always had this feeling, but never paid attention. Now that I'm having really really good days, this ache is quite noticable when I do eat something with gluten. Could this be from something else? My MD ruled out gluten sensitiviy/celiac because "You don't look skinny enough for celiac" so I've been hesitant to go back about all of this (I just need a new MD actually!)

 

I'd love any input anyone has about either of these topics. 

 

Here are the testing guidelines.  

 

http://www.cureceliacdisease.org/wp-content/uploads/2011/09/CDCFactSheets3_Antibody.pdf

 

There can always be multiple issues at work.  And yes, a new MD is definitely in order.

 

Colleen

0

Share this post


Link to post
Share on other sites

Have you been eating gluten free?  That can mess up the actual medical tests for Celiac that Colleen linked to.

0

Share this post


Link to post
Share on other sites

Have you been eating gluten free?  That can mess up the actual medical tests for Celiac that Colleen linked to.

Thanks Colleen.

 

And yes, for the past 2 years I've been limiting gluten, but have never been symptom free because I kept slipping up, or ignoring it, or feeling defeated and eating chips or something. I am worried that my spotty gluten-free eating will affect the test but my ND knows all of this so we can have a more in depth conversation once we have some numbers back. After she took my blood sample that's when I started the SCD. it's been just over 3 weeks now and while my symptoms aren't gone, they're improving and my energy is coming back some days. My bowels aren't yet happy though :/

 

I haven't seen the exact tests I was given  listed anywhere which is why I'm curious. Would I have gotten the Anti-Tissue Transglutaminase? She didn't say "Anti" but perhaps that's the only test there is? 

 

Thanks!

0

Share this post


Link to post
Share on other sites

Perhaps you should get a new MD who will test you for Celiac disease?  But, if you have been basically gluten-free (just a small slip occasionally) the tests might be negative.  You have to be eating gluten to make enough antibodies to show up on the tests.  

 

I can't really comment on any tests that an ND does as they are usually not the ones that are medically accepted for testing for Celiac.  Yours could be the exception.

0

Share this post


Link to post
Share on other sites
Ads by Google:


My labs listed the tTG test as tissue transglutaminase too.

 

My guess for interpreting your labs is you had the AGA IgA and AGA IgG (anti-gliadin antibodies in both IgA and IgG), as well as the tTG IgA.  The AGA tests are older tests that are not very reliable (low sensitivity and specificity) but some doctors believe that a positive AGA can indicate  celiac disease or non-celiac gluten sensitivity (NCGS) - not everyone agrees with that though.

 

Good luck with a new doctor.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,373
    • Total Posts
      935,738
  • Member Statistics

    • Total Members
      65,053
    • Most Online
      3,093

    Newest Member
    RichardNDL
    Joined
  • Popular Now

  • Topics

  • Posts

    • I highly recommend being tested for celiac disease before you go off gluten, if you haven't already done so.
    • Hi.  I'm new to this!  Please help me get started. I want to try..I mean DO...a gluten free life so that, hopefully, my health issues will go away. So, please help me.
    • Hello. I apologize for this being long but I feel I should explain the situation so you better understand where I'm coming from. I am here because I do not have the time or money to be galavanting around to different doctors offices. I spent time doing that already, lost money out of my pay from not working but never found A SINGLE ANSWER.  I am a 23 year old female and back when I was about 13-14 I was diagnosed with Mononucleosis. Prior to this, I had been having other issues, or at least the minor problems I had previously considered as 'growing pains' since that's what my primary at the time attributed my pains to. Well now i'm 23 and it's only gone downhill since then. Back then I was told by a GI doctor who had done two or three EDG's and two colonoscopies that I have "the enzymes for crohn's and need to be careful." No other explanation other than eat 'gluten free'..... Now, this was kind of when it was the new 'health fad' for people, so being so young my logic was 'I'm young, I should be able to do what I want and eat what I want without worry!" so that's what i continued to do, despite feeling overall unwell. (I had really always felt unwell so it wasn't really that big of a deal for me)  Now that i'm older, i've literally experience an entire swath of issues. The only reason I am here is because I am now thinking back to that conversation with the GI Doctor that maybe she was right. While I do have insurance, I honestly don't really have the money to be shelling out for these tests all over again as I was lucky the first time around when my grandparents had taken me since I was underage.  My symptoms over the years and continuing have been: (in full, some may have nothing to do with the another)
      Lower back problems, feeling like sciatica but never confirmed. X-rays, MRIs, etc show nothing despite the intense pain. Drs now refuse to do more tests for 'nothing'. So I am left to handle feeling like an elephant is sitting on my lower back, right above my tailbone. (I did fall on that around 12 or 13 but doc never called back after testing, assumed i was fine...)
      Stomach cramping/spasm feelings
      On and off nausesa, any time of day.
      Inability to sleep. 
      Constant changes from hot to cold. (Original doctor has said over the years my temperature seems to run higher than normal. I almost always feel feverish even if only slightly.)
      Headaches/migraines
      Fatigue
      Lightheadedness at times
      Restless legs (DRIVES. ME. INSANE. The muscle relaxers i've been given just made it 1000000x worse! I was so sleepy but couldn't fall asleep due to the restlessness.)
      On and off diarrhea / constipation (I don't know what a 'normal' bowel movement is)
      Costochondritis that has come and gone since I was in 4th grade. (I remember the day because it was April Fools day and everybody thought I was faking the serious pain I was in. I could barely breathe, it felt like my tendons/muscles were being torn apart on the inside) .  I believe this is what my original DR thought was 'growing pains', except they never stopped even after I was finished growing..
      I used to get sick very easily - for about two years it seemed to clear up then i started getting infections non-stop.
      There are some .... embarrassing things... Such as despite how many times I clean myself I feel like i'm.... leaking.......... 
      Sharp/ache like pains everywhere in my body.
      There are likely many other things that I'm just so used to I'm not listing because I'm not sure if they're even related.



      I am just so tired of feeling like dog crap. I've never felt 100%, ever. For as long as I can remember i've always had issues but I come from a family that kind of just.... deals with their problems and not complain 24/7. After years of that, I need help. I am absolutely fed up not being able to do things because I just feel generally crappy. It's seriously depressing and making my depression and anxiety worse. Is testing for a second time worth it? If it is, what tests should I really be focusing on to figure out if this is my problem?
    • Thanks for the responses raven and cyclinglady!  I guess we just have to wait.  Is it wrong that I want there to be no question that its celiac?  She has had so many symptoms for awhile now--seemingly increasing--but I want there to be no question in her mind that she needs to be gluten-free--you know? For now we are working on eating gluten-free but I haven't really tackled the whole cross-contamination thing yet and looking into my freezer, fridge and pantry I have a decent amount of gluten that the rest of us will eat.  Then I guess I'll decide how gluten-free the rest of us should be. On a side note--the gi ran a bunch of tests prior to the biopsy--I haven't seen the results--but they mentioned over the phone that her white blood cells were high--maybe due to celiac?    
    • https://okinawahai.com/tips-for-eating-gluten-free-in-okinawa/ Hope this helps!
  • Upcoming Events