• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Desperate For An Answer
0

4 posts in this topic

Hi there,

Firstly, thank you for reading my plight. I have been struggling with this digestive issue for a while now, and I figured a good way to figure out what I may be going through would be to ask a bunch of other people who could potentially be suffering from the same or similar issues.

I believed I had a problem with gluten. If I eat wheat bread, I get bloated. I feel sick. Sometimes I have problems with going to the bathroom (but I've largely remedied that just by taking fiber supplements).

Here's the thing, though. I can eat white bread all day. But I can't eat white pasta. If it's a wheat or whole grain product, it will make me gassy and bloated. Any type of pasta does the same--but white bread is totally fine. I feel just fine after eating it. I've been taking probiotics and my fiber supplements. It's definitely helped, but it just seems to unpredictable.

Does anyone else have this issue? White bread is fine, but no pastas or wheat/whole grain bread.

Thanks so much in advance for any insight!

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Hi,

 

Symptoms are pretty random with celiac disease.  The best thing to do is get yourself tested for antibodies and possibly an endoscopy before stopping eating gluten.

 

There is a really wide range of symptoms that untreated celiacs have, including no physical symptoms (silent celiac).  Some people only have a skin rash and no digestive symptoms.  So diagnosing yourself by symptoms and somewhat random reactions isn't always workable.  That's why the antibody tests are helpful.

 

If you really don't want to get tested then doing an elimination diet is the way to go.  You would need to eliminate all gluten from your diet for 3 to 6 months, and then trial eating it again for a month.  Most likely you would have clear symptoms then.  But if you wanted to get tested after that you would have to do a full gluten challenge, which some doctors say is 8 to 12 weeks of eating gluten.  That can be very unpleasant if you have symptoms, so it is better to get tested before stopping gluten.

0

Share this post


Link to post
Share on other sites

That antibodies test, the doctors will know it's name by Celiac Panel. It's going to test your DNA co-signs. Very accurate test. Takes a lot of blood though, so bring water and something gluten free to chow down on afterward if you get faint from giving blood.

0

Share this post


Link to post
Share on other sites

Not all doctors know which tests to order, a lot of doctors in my area are only ordering the tTg IgA and total IgA.  Don't assume that the doctors are going to order a whole celiac panel.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,792
    • Total Posts
      932,460
  • Member Statistics

    • Total Members
      64,273
    • Most Online
      3,093

    Newest Member
    midwayliz
    Joined
  • Popular Now

  • Topics

  • Posts

    • I used to worry I was having a heart attack. The symptoms, a pressing, intense chest pain on left side of chest lasting several minutes sometimes. I went through extensive cardio tests and when they turned up negative was told to live with it. I had bouts of it through my life until I went gluten free for entirely different symptoms. Getting rid of those pains was an unexpected but welcome side effect. It's unpleasant and scary but at least if you know that's the case you have an explanation. Don't let that stop you from seeking medical advice if it persists or is different in any way however.  This is, as ever, good advice: Just think about a busy pizza place on a weekend. Flour in the air and on the hands of kitchen staff. Someone phones in an order. Are they 'really' gluten free or just (insert stereotype) hipster posers impressing their friends with their fad diet. Either way no time to change gloves or use different tools. etc etc. It's a high risk environment.  It sucks, but in these first few months particularly you're better errring on the side of caution.   
    • ???? Lundberg do not use oats in ANY of their products. check the grains section http://www.lundberg.com/products/grains/ I guess try lotus if it still bothers you.....you might be like me and all grains/carbs cause some kind of gut issues. I had to go paleo/keto.....thought for years it was just bad gut bacteria but ended up being another AI issues that reacted to carbs.
    • Unfortunately I have a intolerance to oats so Lundberg bothers me. Thanks so much though. 
    • Thank you guys! Great info and I'm researching your suggestions RIGHT now. I am sure I will have questions - I will ask my doc about vitamin deficiency testing and I will NOT do that gluten challenge!
    • Oh wow!  I haven't been here in days because I have been POURING over the most recent SIBO literature!  Have you heard of Dr Nemechek?  https://www.nemechekconsultativemedicine.com/ His approach is very simple and essentially you STOP using probiotics and start taking Inulin.  It is all very fascinating and falling in with what we are seeing with our daughter. In a nutshell he says that the bacteria that has overpopulated is "damaging" the system (second brain).  That they are meant to stay in the colon but start to grow out (for multiple reasons) and expand into areas of the intestines that should be populated by other area specific bacteria.  They slowly take over and expand out further.  Probiotics feed EVERYTHING and make the SIBO worse and Antibiotics kills EVERYTHING and does nothing to solve the problem either.  There is one antibiotic - Rifaximin that stays in the colon and does not permeate its walls.  Other than that he suggests that you FEED the good bacteria and allow them to thrive and naturally win back the territory.  Inulin is the food that they eat and taking Inulin (Chickory root fibre) will nourish the healthy bacteria.  3 months ago we stripped away Gluten and dairy and saw HUGE results and then lost them.  We also introduced a very high quality multi-strain probiotic.  Dr Nemechek says that the fact that some people see gains when they go gluten-free/DF because they essentially "starve" the bad bacteria and there is a bit of a dying off.  But it is not fixing the core issue and often you can see food intolerances and symtoms worsen even though you are still gluten-free/DF.  This is EXACTLY the dynamic we are seeing with our daughter.  She is eating AIR but is still in pain and now her Sensory issues seem worse than ever (thanks to the probiotic maybe)? He also says that the healthy bacteria secrete an acidic compound that kills off the bad bacteria which also explains why some people feel better when they consume ACV. I find the entire thing fascinating!  
  • Upcoming Events