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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Bunch Of Questions
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14 posts in this topic

Hi everyone,

Just a bunch of questions for everyone.

1. During this weather change, does it really affect anyone? I'm finding I'm feeling flu-like most evenings.

2. What were your first symptoms to ease off, and which ones took a little longer to go gluten free?

3. Is anyone ever just scared to eat because you just are sick of getting sick?

4. Does anyone take pepto-bismol for nausea? I've been feeling nauseated lately.

5. What can help me sleep? I wake up fine, crash around 4pm-10pm, then am up til like 3. Valerian sometimes works. Does anyone else get this?

6. What vitamins/supplements do you take?

Thanks everyone.

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Hi everyone,

Just a bunch of questions for everyone.

1. During this weather change, does it really affect anyone? I'm finding I'm feeling flu-like most evenings.

2. What were your first symptoms to ease off, and which ones took a little longer to go gluten free?

3. Is anyone ever just scared to eat because you just are sick of getting sick?

4. Does anyone take pepto-bismol for nausea? I've been feeling nauseated lately.

5. What can help me sleep? I wake up fine, crash around 4pm-10pm, then am up til like 3. Valerian sometimes works. Does anyone else get this?

6. What vitamins/supplements do you take?

Thanks everyone.

<{POST_SNAPBACK}>

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Hi Lorka 150 -

When I was first diagnosed, it was all I could do to come home from work and fall into bed. I was sleeping all evening and waking up and watching tv for a few hours, just in time to fall asleep for another hour or so before I had to get up. Well I guess I was getting my 8 hours of sleep, just not when I wanted them.

My body was retaining no nutrients, so I just couldn't function. I even ended up in the hospital because I wasn't retaining Vitamin K (for clotting) and developed a nose bleed that wouldn't stop and bruises all over my body. I had to get 6 units of blood and 1 unit of plasma. Once I went gluten free and got my blood levels back on track I have a lot more energy than I have had in a long time.

The first symptom that went away for me was the diarrhea. I had it for 3 months before being diagnosed and had lost 30 pounds. I didn't mind losing the weight, but that wasn' the way to do it.

I do take vitamins. Right now I am taking the Spring Valley Allergy Free Naurally Complete Multivitamin and the Iron. In the past I have taken CVS brand.

Be careful and read the ingredients. Before I went gluten-free I was taking Walmart brand - big mistake. THEY ARE NOT GLUTEN FREE (It does list gluten in the ingredients, although it is the last ingredient and I almost missed it). :huh:

Good luck -

Cindy (aka kevs mom - I really do have my own identity)

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I do take vitamins.  Right now I am taking the Spring Valley Allergy Free Naurally Complete Multivitamin and the Iron.  In the past I have taken CVS brand. 

Be careful and read the ingredients.  Before I went gluten-free I was taking Walmart brand - big mistake.  THEY ARE NOT GLUTEN FREE (It does list gluten in the ingredients, although it is the last ingredient and I almost missed it).  :huh: 

Good luck -

Cindy (aka kevs mom - I really do have my own identity)

<{POST_SNAPBACK}>

My daughter just inherited my Walmart supplements. I'd used them before, but ignored my own advice and didn't read the labels when I restocked last month. But thanks to this forum, I was about to answer another post on what I took and so I finally read the label. Gluten was the very last word :angry::angry: No wonder it was all I could do to make it through the week at work - I was poisoning myself!!! I always forget to take my supplements during the weekend - different routine.

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Hi

My son and I have been gluten-free since August and we're both not feeling that great. He just spent the last three days in bed. The intestinal problems are much better but the fatigue is overwhelming sometimes. I have been taking a multivitamin and fiber capsules for the past couple of weeks.

I have read so many other posts and I realize that we should start feeling better in a little while. Until then we just have to grin and bear it.

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3. Is anyone ever just scared to eat because you just are sick of getting sick?

<{POST_SNAPBACK}>

Only food that I can't be sure is gluten-free. What can I be POSITIVE is gluten-free? Whole, fresh fruits and vegetables. Whole, unprocessed beans and nuts (that would mean raw on the nuts). Whole, fresh, unprocessed meat (that really really really means unprocessed).

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Hi

My son and I have been gluten-free since August and we're both not feeling that great.  He just spent the last three days in bed.  The intestinal problems are much better but the fatigue is overwhelming sometimes.  I have been taking a multivitamin and fiber capsules for the past couple of weeks.

I have read so many other posts and I realize that we should start feeling better in a little while.  Until then we just have to grin and bear it.

<{POST_SNAPBACK}>

For the fatigue try CoQ10. This is an enzyme. I can only speak for myself - it has been a life safer. Claire

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on symptoms... my constipation was the first to improve, after several months of gluten-free. brain fog, fatigue and fibromyalgia type pain are still present at 8 mos gluten-free. i have had more energy the past 2 weeks...so hopefully i'm turning a corner!

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The diarrhea cleared up first. Then the brain fog, unless I accidently got glutened. I still have sleep problems, although I've seen a bit of improvement in the last few days. I'm starting to have occasional days when I have energy! Not much, but any improvement is welcome. I only started gluten-free end of August, so I'm about in the same time frame as you.

Oh, I take basic one-a-day. Per their website, they don't add gluten but won't guarantee it's gluten free.

Q. How much gluten does this contain?

A. We do not add any gluten to our products. However, we cannot guarantee that all raw materials are 100% gluten-free.

It was what I had, and I figured that would work for now. When this bottle is done, I might look for one of the others that will guarantee being gluten free. But the one-a day is available anyplace, and comes in several different formulas, which makes it very convenient. I haven't added anything else, yet, but am thinking about it.

Debbie

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1. During this weather change, does it really affect anyone? I'm finding I'm feeling flu-like most evenings. How long have you been gluten-free--maybe you are getting gluten in someway or maybe it is an intolerance to something else that you havent found yet. I cant tolerate much corn or soy and it is a different reaction then gluten for me.

2. What were your first symptoms to ease off, and which ones took a little longer to go gluten free? My first symptoms to go were the diarrhea--the chemical embalances too longer--my panic eased in time--the overall achiness did get better in time, I will always have to deal with my neuropathy symptoms.

3. Is anyone ever just scared to eat because you just are sick of getting sick? I used to be this way. In the beginning, I ate only cottage cheese and fruits, along with caramel corn rice cakes and peanut butter. I never put anything in my mouth that I have the slightest doubt about. The one thing I do that sometimes can be tricky is kissing :P and I am not giving that up ;) .

4. Does anyone take pepto-bismol for nausea? I've been feeling nauseated lately. I find that when I take anything for nausea, it makes me feel better for the time being, but I feel worse the next day. The one thing I do use is Walmart's Equate Gas Relief Extra Strength--I dont have any after effects with it. I havent taken pepto-bismol for years.

5. What can help me sleep? I wake up fine, crash around 4pm-10pm, then am up til like 3. Valerian sometimes works. Does anyone else get this? This I cant help with--I never found the answer. Even if I stay up late, I tend to be a clock watcher. I wake several times in the night--but my prob may be my neuropathy.

6. What vitamins/supplements do you take? I take Nature Made Woman +50 with iron, a good B complex, B12 1000mcg sublingual and I try to take calcium, all gluten free---I am on Long Island now and I have found that some CVS vitamins do state gluten free on them. Always read the ingreds though--I found barley in a gluten free product.

Deb

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1." 3. Is anyone ever just scared to eat because you just are sick of getting sick? I used to be this way. In the beginning, I ate only cottage cheese and fruits, along with caramel corn rice cakes and peanut butter. I never put anything in my mouth that I have the slightest doubt about. The one thing I do that sometimes can be tricky is kissing :P and I am not giving that up ;) ."

I don't know if this is relevant but if I kissed someone who has drank beer, or rye or any liquor like that I would get sick. Actually with beer especially I would be very sick.

I guess I messed this quote up.

Edited by Rusla
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Hi everyone,

Just a bunch of questions for everyone.

1. During this weather change, does it really affect anyone? I'm finding I'm feeling flu-like most evenings. I find I get headaches with the changes in the weather ~ mostly due to the pressure changes. 2. What were your first symptoms to ease off, and which ones took a little longer to go gluten free? I guess the icky bm's... I get really tired at first, and have a lot of gas (attractive, huh??!!)... then the real fun starts. So, I guess you can reverse the order for going away first. 3. Is anyone ever just scared to eat because you just are sick of getting sick? Yes, all the time! I debate every time I am asked to go out if I should just drink a diet coke or actually try and eat something. The diet coke usually wins! I HATE getting glutened, so I avoid eating unless I KNOW without a doubt that what I am putting in my mouth is gluten-free. 4. Does anyone take pepto-bismol for nausea? I've been feeling nauseated lately.

No, I usually just grin and bear it and wish I could throw up! 5. What can help me sleep? I wake up fine, crash around 4pm-10pm, then am up til like 3. Valerian sometimes works. Does anyone else get this? If I am having a bad night, I will take 1 Simply Sleep tablet. It is made by Tylenol. That works great for me. Puts me out. :)6. What vitamins/supplements do you take? I take a liquid B-12 and Viactiv Mulitvitamin. I also take a liquid multivitamin as well.

I hope that helped!! Good luck and I hope you feel better soon!!

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Sorry Rusla--I didnt mean that I walk around kissing everyone--geez--just that I draw the line at worrying constantly. My man is very careful with me. He knows how easily I can be glutened and he is careful, but, if I was to get glutened by a kiss, I would just deal with it and kiss him again the next time. That comment was for a smile :rolleyes: --Deb

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