• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Diagnosed With Lyme Disease
0

3 posts in this topic

Recommended Posts

whitepine    2

Hi, I just wanted to share with you guys that I have been gluten free for over 2 years now. I finally was able to get a better doctor when I moved to the USA. I told him that I have still been having issues regardless of the change to my diet and medication. We randomly decided to shoot in the dark and test me for Lyme Disease. Turns out I have Lyme Disease!

The reason why I am posting this is because as I researched this I realized that people who had LD were also experincing worse symptoms when they ate gluten, so they went gluten free but they weren't celiac.
It's a bit of a controversial subject in the medical community because no one is sure on how to manage or treat chronic Lyme Disease. Acute, however, is usually easily treated within a month.

I think I may have been affected either 4 years ago or I was infected a decade ago. A certain percentage of people end up with chronic arthritic symptoms, nerve, and brain issues. There's a huge list of symptoms that could and are linked to being infected.

So if you are having issues, you haven't been diagnosed with celiac disease, you are having problems being diagnosed with anything, ask your doctor to run a simple blood test to check for Lyme. Sometimes the blood tests, in the early stages of Lyme come back normal but a chronic case will usually be a positive blood test.

Hope this helps someone out. I have a long road ahead of me now and I don't know if I can or will be cured or if I will be able to eat gluten again. I'm just happy that I have some answers.
 

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


quincy    9

Hi, I just wanted to share with you guys that I have been gluten free for over 2 years now. I finally was able to get a better doctor when I moved to the USA. I told him that I have still been having issues regardless of the change to my diet and medication. We randomly decided to shoot in the dark and test me for Lyme Disease. Turns out I have Lyme Disease!

The reason why I am posting this is because as I researched this I realized that people who had LD were also experincing worse symptoms when they ate gluten, so they went gluten free but they weren't celiac.

It's a bit of a controversial subject in the medical community because no one is sure on how to manage or treat chronic Lyme Disease. Acute, however, is usually easily treated within a month.

I think I may have been affected either 4 years ago or I was infected a decade ago. A certain percentage of people end up with chronic arthritic symptoms, nerve, and brain issues. There's a huge list of symptoms that could and are linked to being infected.

So if you are having issues, you haven't been diagnosed with celiac disease, you are having problems being diagnosed with anything, ask your doctor to run a simple blood test to check for Lyme. Sometimes the blood tests, in the early stages of Lyme come back normal but a chronic case will usually be a positive blood test.

Hope this helps someone out. I have a long road ahead of me now and I don't know if I can or will be cured or if I will be able to eat gluten again. I'm just happy that I have some answers.

 

same here. I was still sick with fatigue, muscle pain in my back, hips and legs, body temp was off. was constantly in physical therapy for muscle knots. stab in the dark asked my doctor for a lyme test and it came back positive. been on abx for a year with alot of probiotics and am feeling better.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      107,861
    • Total Posts
      938,368
  • Member Statistics

    • Total Members
      65,761
    • Most Online
      3,093

    Newest Member
    benjamin1993
    Joined
  • Popular Now

  • Topics

  • Posts

    • Ok so is this really true?!?! Conventional? Remember, the fecal transplant was first described in the 1950s, but took decades to catch on as a conventional treatment for gut disorders, such as c-dif bacteria, partly because it was seen as crude and somehow objectionable. But it proved to work. Really well. So much so that it's now a fairly conventional treatment.
    • You are super sweet. I'm sorry your extended family isn't great about get togethers and cards. My family is the same. Once my parents died I don't have anyone who really cares about me except for my husband and kids. My parents started getting really weird about stuff as they got older, and my sisters are way older than me and we didn't grow up together, so we aren't close at all. In fact one sister hates me. They didn't even come to our parents funerals. Families pretty much suck so you gotta appreciate whatever you can put together for a support system. I come here every day looking for a smile or laugh, an encouraging word, or an opportunity to give advice. You guys are definitely part of my extended family   for what it's worth I would be up for secret santa.
    • Wow everyone my memory lane stuff just keeps popping up on this forum!!!! Thanks for sharing the post op and Audrey the pic. I had what looked like this on my inner left ankle in my late 20's!  It never got diagnosed at the time. I was seeing Dr's at time early pregnancy and then missed miscarriage.  dr's I had at the time I asked didn't know what it was. Period of time I had some of the worst headaches of my life etc. I didn't know if I had been bitten by a spider (brown recluse not in my area though) , the miscarriage, or picked up something from the hospital during my follow up miscarriage stuff-stirrup /ankle. I don't have a pic of it to share. Dr's didn't know, my mom a nurse didn't know , that left my husband who is a bit more holistic based and helped me on healing it  at home. I am really shocked to see see posts and all too often say wow! That's my .... from whatever decade  I'm newly recognized/diagnosed too so this was 15 years ago! wow if any one has any active pg I wish you comfort and swift healing . Been there but didn't have the puzzle piece until you gave it to me now. so many puzzle pieces....finally .....start making an image since I joined this forum.    
    • I can guarantee you that once you get your weight back up to normal, your period will come back.  You sound really malnourished and if your weight gets too low, your periods will stop.  Don't panic.......I was down to about 92-94 pounds at diagnosis so you will be able to heal if you do the diet correctly and don't cheat. Once you start to feel better and your other problems are under control , you will find it easy to stick to the diet. Nothing beats health!  Good luck to you!
    • As the other's have stated, you most certainly can go on to have additional AI diseases whether or not you are Celiac or NCGS.  Many AI diseases can be figured out without mainstream testing, as you know from your severe symptoms of Sjogren's.  I also have Sjogren's and knew that I did without any doubt because of the severity of my symptoms.  I was later tested with a new PCP and yes, they confirmed what I already knew.  Have you had the blood work for Sjogren's?  Not that it matters because you already know. As Sjogren's really has no treatment other than treating the symptoms, having a confirmed diagnosis doesn't always matter.  Just see the doctors you need to see for the specific problems you have stemming from it and that's all you can really do.  So far, it has worked for me.
  • Upcoming Events